Progressing

Thanks for the update-
My dad came down with GBS on Sept. 28, 2007 and was completely paralyzed in all but his eyes. He started showing some return last week with his jaw and seems to be able to slightly move his head left to right. I know that this is a slow process…

You mentioned that your son “has had days that he sweat so much we had to keep a rag handy to wipe his face” – did you happen to notice if he had mottled skin too? On Sunday, all he wanted us to do was wipe an ice cold rag all over his head- all day long. And on Monday, he was literally sweating buckets- it was pooling in the area between the clavical and the neck. The sheets were so wet that you could see the water marks moving from under him. And, the strangest thing was that his knees were purple and mottled.

This is the 2nd time this has happened. The last time, he ended up with a fever and they discovered he had developed e-coli in his lung. So of course, now that it is happening again, we are afraid he is getting sick again.
Did you son have the same thing?
Has anyone else?

That doesn’t sound right to me. It seems like no one should be sweating that much, GBS or not. I assume they’ve been monitoring his temperature and he doesn’t have a fever? Or does GBS ever affect your metabolic temperature regulation so that your body thinks it needs to sweat to cool off, even though it doesn’t? I’ve never heard of that, but I guess it’s possible. I’d be nervous, too, though. What do his doctors say?

gbs can effect your autonomic nervous system cuz it is a subset of the peripheral nervous system. take care. be well.

gene gbs 8-99
in numbers there is strength

Glad to hear there is progress!! It is always good to hear great news!

when I was first sick I sweat buckets even if it wasnt warm. I still have wierd temperature fluctuations…not hot flashes. I can get so warm sometimes it feels as if I am going to burst into flames from the inside out, not always with sweating or flushing. My normal body temp is about 2 degrees below “normal”. Yet, I can suddenly spike to 99 or almost 101, and then maybe an hour or so later I will be fine again. I prefer being cold because cold means residuals dont act up. I sleep with my window open and a fan on at night and it has been about 30-35 here. Hubby says I sleep half the night without any covers on, then “wake up” complaining that he stole all my blankets and I’m freezing LOL! Of course I dont remember chewing him out for that but apologize anyhow. GBS does really wierd things to our bodies, some things we may not even realize until we read about it here.

Thats Great news that he is walking. Way To Go!!
As for the spasms, high protein diet and Little Liquids-What?! He is sweating soo much, which in turn means he is losing water/fluids, why little liquids? He needs to increase the liquid intake as to not become too dehydrated. The pain might be less if he had the proper liquid intake. The spams are not only from a uti, that can be treated easily with higher liquid intake-it flushes the system. Juices are also good for utis especially white cranberry juice.
Tell your son to keep up his Good Attitude! Take Care.