Pandemic flu vaccine not linked to rare nerve disorder

Doctor’s have been telling me that as well. I never had the H1N1 vaccine, but a month prior to getting GBS I did have the swine flu. Doctor’s always said they couldn’t link it, but is just seemed too much of a coincidence for me.

My daughter was dx with GBS 3 weeks after the H1N1 Vaccine then later CIDP, lies,lies,lies I dont believe a damn word out of there mouths!!!! Nice try on there part though…..weasels:mad:

[SIZE=”3″][COLOR=”RoyalBlue”]CIDP I hate to disagree with you but I happen to know a father who yanked his daughter out of a top hospital because 5 neurologist had 5 different thoughts on what his daughter had. She had GBS.The course in med school is a elective when it comes to CIDP/GBS and I agree most doctors really do not care to be bothered with GBS. The people here know more about GBS and most doctors really don’t care to know[/COLOR][/SIZE]

[COLOR=”DeepSkyBlue”][SIZE=”3″]GH-CIDP you stated that doctors were doing their best to find the answers to GBS/CIDP and I agree with the post about the doctors are morons and to add to that what northern guy said about the outbreak in Arizona—wash your hands–don’t drink the water–don’t drink XYZ BEER. You will catch GBS/CIDP. and these were educated DOCTORS(lol) what a joke.Doctors when it comes to GBS have a game called WHO IS THE BEST GUESSER.[/SIZE][/COLOR]

[SIZE=”2″][COLOR=”Green”]My friend GH/CIDP. I retired from a top hospital and was around doctors all day long. I have seen doctors have a discussion on someone in the hall where every one can hear. I have heard doctors say give them to Dr so and so. This hospital I worked at had a doctor just walk away from a teen with GBS. Her dad has a law suit against them now.I was blessed as was sent to another hospital with the best around on GBS. I have had doctors say what is GBS. The doctors today are not the doctors of yesterday. Today all they care about is the money–and volumn of people. The new generation of doctors treat by a pill and guessing. Yes I have anger and millons more also. Did you read where all the samples given free to you that the doctors get gifts if they push that drug companys meds.Do you read the warning with your meds. 4 pages on how this med will slowley kill you and 1 line on how great it is. By the way in France GBS is called THE FRENCH POLO. I will say it again why do over 95% of the medical people refuse the flu shot ??????? HAVE A NICE DAY[/COLOR][/SIZE]

[SIZE=”3″][COLOR=”Green”]Northern Guy I stand beside you 100% He sounds like a doctor who plays the guessing game or is connect with a drug company. $13000 a bottle for IVIG or higher sure is not cheap. I feel sorry for the ones who do not have insurence. [/COLOR][/SIZE]

I stand with Mochacat and NGG on this one. I got mild GBS [B]4 days [/B]after the H1N1 vaccine. Do not try to tell me that this was not caused by the vaccine!!! Several people came on here after the 2009 flu vaccines with GBS. I was perfectly fine beforehand. Now, I am a year and a half post. While the neuro issues have gotten better, I deal with chronic arthritic pain that this triggered and ongoing fatigue. I was a healthy functioning full time working mother of 2 kids under 3 when this happened, 38 years old.

I went to the ER and was sent home with a diagnosis of dehydration. Was later told I should have been admitted to the hospital. Went to 7 neuros, 4 at top hospitals in Chicago. Now on my second rheumy. Have been to countless other doctors for related issues. None of them really know what is going on, how to address this or how to treat this. We don’t know what is wrong with you??, they say. Your tests are normal. I have now gone to Miami to the CFS clinic down there, where they understand that vaccines can trigger all sorts of problems. Why did I have to travel from Chicago to Miami? Because of the incompetence of doctors and the lack of experience with this situation. 1 in a million gets a flu vaccine reaction, no wonder they don’t know what to do. No wonder we don’t hear about these people in the news. The doctors don’t know how to think outside the box, outside their specialty. They are taught to support vaccines. While I agree that vaccines save lives, and I continue to give my children vaccines with trepidation, I wish that I had known more about the dangers/risks of the flu vaccine.

Now I don’t know what your experience has been, GH-CIDP, but don’t be so quick to judge when you have not walked in other’s shoes. I lost 25 lbs from severe nausea and vomiting, had numbness and tingling everywhere, severe depression, anxiety, hair loss, etc. Need I go on. I have reclaimed my life to some degree, by taking supplements, starting on gluten free and dairy free diet, doing yoga, and I went to therapy for a year to deal with this. And not one doctor has really helped me except for the holistic ones and my therapist. A lot of money has been spent out of my pocket for this!! So yes, those of us who have been affected are angry, will always be angry, but we live our lives to the best of our abilities, try to accept it, try to have a positive attitude and move on. This forum is a place for people to express all kinds of opinions and we should be supportive of those who have different experiences than we do.

[SIZE=”4″][COLOR=”DarkGreen”]Dear GH/CIDP
I dont know what you call anger but there has not been a sign of ANGER in any posts. Yes we have been stern with answers and open with feelings and about doctors. Have you ever walked in our shoes. We research and look behind the walls for information. Not the (BS) they want us to see. Did you hear SEA GULLS spread GBS??? NOT REALLY but this is to show just how stupid the report was from Arizona. And people without GBS/CIDP believe all this stuff.
Last year the flu and swine flu outbreak the way the CDC and news made it look the end of the world has arrived. My hospital threathen a walkout when they were told they had to have the shots.The only ones who want it is the ones making money from it.
The shot is useless this year against any new flu only last yrs flu. Did you catch flu last year ???? they say it will help to ease any flu you may get this year.(BULL)When you see a new doctor do you say do you know what GBS is and they are trained to say yes.Now put his rear on the floor say WHAT IS IT.
When I had my Bi-Pass my surgon had EVERYONE on his team know what GBS is. They even changed a drug to be extra safe. I and thousands of others who have suffered with GBS/CIDP are fed up with medical doctors lie and guess while playing a game of I AM A STUPID MED SCHOOL GRAD..I am not anger have not been anger as I posted only being open–honest and how I feel[/COLOR][/SIZE]

Remember the big court case of the tobacco companies vs the tobacco-related illnesses. The tobacco companies had all those ‘doctors’ to testify that tobacco wasn’t injurious to anyone’s health. And they even lied in court.
And the thalidamyde deformities, breast-implant cancers, UID cancers, HRT cancers, and how many other medical research/consumer product horror stories.

I don’t believe the GBS rate is 1 in a million. I have since located 3 people within a radius of 30 miles who got it in 2007, in a population of 100,000. As well, there is a now a small GBS group starting up in my area to collect all the cases of years past and since. The medical personnel cover up the truth, even distort it, walk out on us, shove us onto other doctors. They did this to us, but they can’t fix us. Meanwhile, the profits from vaccines and medical treatments, etc. keep rolling in to feed the system as it is.

Sometimes, we patients are in the hands of fools and devils.

God help us!

My last visit to a doc a few months ago: this doc was new; I was seeing him for sudden edema with extremely swollen hands and feet. He immediately said the reason I was using a medical walker was because I was overweight, and he was going to discontinue my asthma steroids because he thought they might be causing my weight gain (though sudden withdrawal from my asthma meds would have killed me, as well as the asthma). He wouldn’t review my file, though it was same clinic, but was more interested in me proving to him that I hadn’t caused my own edema by an unhealthy lifestyle. The time in the office was spent in me proving to him that I am a non-smoker, non-drinker, live & walk a mile from the office, had no vehicle, used 2 flights of stairs in my home daily, but rode a bike and was athletic up until my flu shot in 2007, got GBS from the flu shot (he said there was no info regarding GBS in my medical records, though the last 3 doctors have freely discussed & admitted the diagnosis for a couple of years now). He tightened the blood pressure cuff on my swollen arm till I screamed and screamed in pain, nearly passing out, but wouldn’t release it for quite a while after it registered.
The whole visit was a nightmare from hell, but at least I got my asthma meds renewed, so I won’t die of asthma.

My own case is worsening now; the pain is terrible, and I’m losing ground, but I make the best of each day, as well as I can. We shouldn’t have to come on this site, and deal with other posters who chastise us in our damaged condition. Shame on them.

Their report is flawed; the truth is what counts, and obviously they don’t have that.

In this forum alone, several people who post regularly got GBS from the 2007 flu vaccine. We are all in North America; and there are many, many more cases which are not represented on this forum, many which are undiagnosed, misdiagnosed, covered-up, don’t even go on medical records because they fall through the cracks.
It used to be that the statistics stated that 3 % of GBS patients die, then the figure went up to 6 %, and now it has changed to 10 %. So there are numerous discrepancies, yet these statistics come from medical records.

It’s getting harder and harder to do the math, especially when the real facts are lost in the process.

Hmm, that’s funny, 2 of my doctors said it was 1 in a million, and they think they’re experts. :rolleyes:
My my, how this whole issue gets twisted around and clouded with words, and more words. Just a jumble of contention, instead of the application of truth.

edited to add info.

The truth is out there, but it’s certainly not out there in those so-called ‘studies’.
The Health Department should take out ads in every local newspaper in Canada, and ask people with GBS & CIDP to come forward with their case, and actually deal with them properly concerning diagnosis and treatment, and then they’d have the real facts for their ‘statistics’.

Incidentally, when I was researching the Canadian Medical Association’s statistics on GBS online a couple of years ago, I found out that info was privileged for medical personnel only, and not even available to the public.
Why the secrecy?
And after all those errors administering the H1N1 vaccine in Canada, our Health Minister had only this to say when people exhibited an adverse reaction…’Hospitalized, and no permanent damage’. How would he know, since it takes weeks & months to assure a diagnosis? Where are those people now?

It sounds like you guys are looking for someone to blame for either not being diagnosed quickly or perhaps mis-diagnosed …. I understand the anger behind the disease but to blame all doctors and drug companies is foolish .
Doctor’s diagnose through a process of ruling out . They can not look at you and say ” Oh yes it’s GBS “. They can only go by what you are presenting with and go from there . I too was sent home and told I had a pinched nerve and after my 4th visit to the ER they finally were able to figure it out .
Doctor’s go to school for a long time and they are not always trained in every disease or condition out there …
Also doctors DO NOT get kickbacks from drug companies . When you get samples at your PCP office it is from the drug companies for patients to try to see if the medication works for them . It is also provided for patients who can not afford their medications …they come in for the samples so they can take their medications properly .
You seem so misguided on these issues and obviously something is wrong for you to think this way . I would think that if I didn’t really know the answers I would be better off asking my doctor these questions than to assume the worst . If your doctor is not comfortable answering them …then time for a new doctor !!
Sincerely ,
Kimberly

[SIZE=”4″][COLOR=”SeaGreen”]Hello Ms Kimberley. I hate to pop your bubble but the samples left the doctors are usually a new drug and the more a doctor gives out the better his trip. Like 10 days in Hawai for him and family. Your dream about the drug samples being for the poor. Get serious most doctors won’t allow you in their office if you are not a patient. You are what doctors love (OH YES DOCTOR–YES THIS AND YES THAT.) Have you ever seen a nurse clean an exam room before you come in. My vets exam rooms are cleaner.Because the name had a DR beside it mean they know what they are doing. Ask your great doctors if they took a flu shot and see how many will lie. I trust any report from Canada or France as much as swimming with 20 GREAT WHITE SHARKS[/COLOR][/SIZE]

Hear, hear…mochacat & NGG. 🙂

I’ll never forget the time my old doc was pushing Vioxx samples on me at the same time I was undergoing months of testing and treatment for a serious heart condition. Good thing I read the info sheet. In big, bold print: Has been known to cause heart attack and stroke; do not take if you have heart trouble, high blood pressure, thyroid trouble, asthma, etc. I have all those conditions, so took the samples back to doc, and said I wasn’t going to take them. He grabbed them, tossed them back up on into the cabinet and said, I’ll just give them to someone else.
A few months later, Vioxx was in the media news for causing deaths; I think it was recalled or discontinued at that point.
Live long enough, and you’ll have lots of these kinds of experiences with our great god doctors.

So in this particular issue of the H1N1 studies, let’s take the ‘studies’ with some common sense. In other words, they don’t really represent the facts, since the medical profession is the first to cover its mistakes, and in Canada, we don’t even have practical recourse to deal with mistakes or malpractise unless the patient is a extremely wealthy, persistent and well-represented by legal counsel, with multiple proofs.

I believe it is a very good thing to voice one’s feelings, opinions and experiences in a serious matter like this, and not to bury them inside, or be silent. There is strength in numbers, and as with any other cause, it is the silence of the victims that keeps the problems from being dealt with. It is good to be honest with oneself, speak the truth and get it out there so others can benefit from it. And since this forum is set up to be a support to those afflicted with GBS-CIDP, the major requirement as per the rules is that we share this information in an atmosphere of mutual respect. And although I certainly don’t agree with some of the posters here who seem to be overly defensive of the medical profession to the detriment of the patients, I can only conclude by saying that ‘methinks they protest too much’, and I can’t really understand why.