pain in the bum syndrome
AnonymousFebruary 8, 2007 at 9:46 am
I contracted gbs back in 2004 then got the nice title of ‘the lass in the wheelchair’, or even the ‘the woman with girly barrel disease’ I found that when people asked ‘aww whats up with you then’ ha, which happened frequently that just replying ‘ its guillaine barre syndrome’ got responses of ‘eh’ ‘its what’, so now I tell people its guillaine barre syndrome otherwise known as pain in the bum syndrome (it discribes it off to a t) and I don’t have to tell people 3 times or more, it works wonders, ha!, and it takes away tension when talking to people, only thing is now i’m known as the lass with pain in the bum disease haha but at least I havent got girly barrel syndrome anymore! haha!
AnonymousFebruary 8, 2007 at 2:18 pm
Welcome to our forum! I was known as THE PRINCESS…everyone had to do everything for me while I was in the hospital…..I even had machines doing the breathing for me! SOME PRINCESS! Now that I am back home, I am back to being the Lady of the house….too much work trying to live up to being Queen….too many responsibilities! LOL Glad you found our message boards! Now I even am starting to get the respect from the dogs back! Cat still does not like me much and the Yorkie is still Daddy’s Little Girl aka Little Princess….it would never have worked out with Little Princess and calling me the BIG Princess! Funny the only one I have that respect from is the Parrot and he would check on me while I napped, I still can not do it but it was like a little whisper to see if I was napping yet….if I had not fallen asleep yet I would just wiggle my fingers to wave to him…..if I did not wiggle my fingers he would quietlly go to sleep. He kept me company and we hung out together too much…..I had a terrible time with hic ups and he learned to hiccup as an echo to mine…even in the same weak squeak that I did them in! Now that my strenght is coming back I have a very healthy hiccup now! He still reminds me how ill/fragile I really sounded! Glady you got out of that wheel chair and they did not give up on you!
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