no cold flu or infection since 2002

    • Anonymous
      July 20, 2009 at 12:17 am

      Is there a correlation between the fact that I have not had a cold, flu or infection since the flu that gave me GBS 7 years ago and the possibility that I have CIDP. dispite the fact that I work with small children who are little vectors that carry everything that the first world has to offer. I wipe their noses, butts, they dont cover there mouth when they sneeze and I have worked here for 4.5 years. Is this significant to tell the doctor when we discuss my normal test results? Does this mean my immune system is hyper vigilant? when my immune system goes crazy is it statistically probable that it would follow the beaten path made by the guillian barre syndrome? anyone?

    • Anonymous
      August 5, 2009 at 11:48 pm

      Hi Tara, I don’t visit the forum every day, so I didn’t see your post until tonight. I DO think you should mention your lack of colds, etc. to your doctor on your next visit, and I do think it is significant. GBS is the third autoimmune incident I have had in the last 18 years, and the most severe. I used to like being cold and flu free. For years people joked that I was autoimmune, and I was in total denial. I have had some strange blood test results, but nothing conclusive, so I assumed my health was in good shape. However, at 2 years without a full recovery, I am no longer laughing. I don’t know if I could have changed the course of history, but now I am learning everything I can about the immune response and have gotten much more serious about managing my health. I am doing the rounds with allergists, immunologists because I don’t want the next autoimmune attack to happen ever. My last event prior to GBS hit my joints, and also lasted for three years before it finally disappeared. Mine are always set off by viruses. I’m not sure if the information currently out on “cooling down the immune system” is true, but I’m going with the latest and I will keep following the newest information. This has changed much of my life style, and I’m very nervous about my kids, too, but I can’t imagine what the next “attack” would be. Each one keeps getting worse. If you can not get your GP interested, might be time to get a specialist. I have found books on autoimmune diseases, food intolerances to be especially helpful in developing my strategies. Good luck…sometimes “super” immunity is wonderful, other times tragic! Luv2sail