Neuro’s office staff a mess

For two years previous I was a clinic patient and then I couldn’t drive so had to have it at home.The neuro was at the clinic some and seeing him was simple.
Since I’ve been having IVIG at home this last 12 months I have tried on many times to get an appointment to see the neurologist. His office appointment desk said over and over that since I am an established patient I could no longer see the doctor. I could only see his PA’s.
No, I said. I’m on six IVIG infusions monthly at home and at these prices want to only see the doctor. I went in to the appointments and was only seen by the PA’s even though the desk promised the neuro would stop in for a quick chat. Well, seems the doctor wasn’t even told I was coming in the office.
The home health nurses are also his office clinic staff told me February he wanted to see me-he was wondering where was I all this time?? The nurses knew very well why I hadn’t been able to get in to see him and never told neuro this. So I did finally get in to see my doctor and told him about how inept his office and staff were. He was greatly upset and taken back. I said several patients had all ready left his practice due to this.
He was concerned about my CIDP being managed by (to him) such a long term IVIG dosage of three years. Doubled my Methotrexate meds and then said I may have to go to the next stronger chemo drug to hopefully lessen my dependence on IVIG biweekly treatments.I’ve been all for doing whatever it took to help get the CIDP under control and not have to live around an infusion schedule.I also stood my ground on trying to see him and it was in no way my fault I was still on such an infusion regiment.Talk to your PA’s””
When doctors carry too big a client load and have inept staff they don’t remember if they’re coming or going. I am very upset with the nurses-they’ve been in my house all day for many many infusions-so what’s their problem??
He’s the best neurologist in this area and an expert on neuromuscular. He diagnosed me after so many passed my severely deteriorating condition off as Fibromyagia or Chronic Fatigue.I was barely able to take care of myself at this point and have improved greatly.
So let’s hope I can get even better and he cleans house of the incompetent staff.
I like having home infusions-no driving and I can rest more.
Any suggestions???