My Mother Diagonised GBS

    • Anonymous
      June 19, 2007 at 8:46 am

      [COLOR=”Blue”][FONT=”Century Gothic”]Hi All,

      I am new in this forum and last week I have no idea what is GBS.

      My mother 55 y/o been diagonised for GBS last Tuesday in Chennai, India. She was a healthy lady and only medical complication she has was high blood pressure. Just before her onset she was suffering from Diarrhea for a week. Suddenly on Monday she was feeling numbness in her fingers & toes and very tiring, so she went to regular GP & he suggested she has low blood pressure and given medications for that and advised her if she feels worse for next day also try to get saline. Tuesday morning she was not able to wakeup from her bed & taken to nearby hospital and they checked her blood pressure & ECG and all were normal. But no improvement so they advised for a neurologist checkup and she was sent to a specialty hospital on Wednesday morning and they checked her with EEG, nerve conducting test and they concluded it is GBS & started with first dosage of IviGlob EX (IviG) on Wednesday evening. She was going through lot of pain during the dosage and they have administered 4 more dosage each day till Sunday. On the second day onwards she was given pain killers and she was able to sleep better after the completition of the dosages. For past 2 days she is in observation & they have started giving Physiotherapy.

      She feels much better than the first day and now she can lift & bend her hands on her own (but still cannot hold anything), she can slightly move her legs but not able to bend or lift without others help.

      As I am living in Australia, all the information I have given above are through my telephone conversations with my father, mother & brother. I have gained lot of understanding from this forum & suggested back to my family over there regarding the importance of the physiotherapy & good nutritional food and being brave to go through this GBS.

      Please suggest what you think of my mother’s condition & her severity of GBS and anything else do we need to do?

      I appreciate your suggestions & support. [/FONT][/COLOR]

    • Anonymous
      June 19, 2007 at 9:12 am

      hi aravindh & welcome,

      it sounds like the ivig is working for your mom. given time, she will make a nice recovery. keep letting her know, during recovery, to rest when tired. it’s the fastest road to recovery. the pain med should be an non-opiate. neurontin is suggested. many of us take neurontin [gabapentin], a non-narcotic, for peripheral neurological pain. neurontin is specific, it can work even when ordinary pain killers do not, even the opiates like methadone. great success w many. v safe. start at 300 mg 3X/day [900 total] & increase by 300 every other day till pain stops. taking it 6X/day instead of 3X/day gets more bang for the buck. 3600 is theoretical max/day that your body can absorb. 5600 is practical absorption max/day. the only reason for the slo build up is it may make you sleepy till your body gets used to it.

      take care. be well.

      gene gbs 8-99
      in numbers there is strength

    • Anonymous
      June 20, 2007 at 5:16 am

      IT sounds like she was diagnosed pretty quickly and given treatment straight away which is a great start. It sounds like she is starting to regain movement which is a good sign that the IVIG may have halted the progression of damage. Recovery is slow but each little movement is a milestone.

      It must be hard for you being so far away. I am also in Australia (Brisbane) and grew up in Melbourne … so if you want someone “local” to chat to, please fell free to pm me.