My introduction doctor said" working diagnosis Guillian Barre"

I have had shortness of breathon slight exhertion, muscle cramps in legs, FATIGUE, all since Jan after having bronchitis. I have Adult onset Stills Disease take Prednisone 5mg and Methotrexate. I saw my rheumatologist she ordered lost of blood and other test, including heart stress test. So she referred me to pulmonologist , he did pulmonary stress test…said some asthma and over weight. I knew it was more saw my family doctor too.
The rheumatologist sent me for a EMG…thought myositis.So they referred me to Johns Hopkins. I saw neurologist at JH..he saw slight myopathy …he referred me to Johns Hopkins rheumatology. Did the whole work up all over again. Then she refferred me to Johns Hopkins Pulmonology, more MRI, xray lung test, even bronchospy. Then he refers me back to neurology after starting having tingling burning in my feet. Two weeks ago did EMG again, and included my diaphram. Saw weakness there, he ordered more bloodwork and now waiting for Lumbar Puncture.Doctor said working diagnosis is Guillian Barre. I have seen a lot of doctors so far and many test. I have long term disability working on SSDI, just got turned down.Starting on appeal or reconsider. I am using ALLSUP.
I think after reading alot here I am at the right place