My experience at symposium
AnonymousNovember 9, 2010 at 10:29 am
I’ll write about this first before I talk about sessions I attended. I had a panic attack when I arrived at hotel in a taxi. When the taxi pulled up to let me out I told him I needed my wheelchair brought around so I could transfer to it. A shocked look crossed his face, WHAT WHEELCHAIR, I DON’T HAVE ONE! PANIC crossed my face. My walker was with me, but since I only needed it to transfer I brought my lightest one which is not really strong and sturdy. I knew I had to do it and by the grace of God I walked with the walker into hotel so I could sit. Another blessing from God, the hotel had a few loaner wheelchairs. And a third blessing, the taxi driver went back to airport, found my wheelchair and brought it to hotel. If my wheelchair could not be found I would have had to send someone out to a medical supply store and buy a new one. I would not have been able to get home without wheelchair.
AnonymousNovember 10, 2010 at 3:17 pm
Wow, Liz. You may qualify for the “trip from He_ _ award! I am glad that it all worked out in the end. it only cost you some shattered nerves, probably almost lost your lunch, and no doubt a rough night’s sleep that night. But you bounced right back – as always. What A Gal.
AnonymousNovember 13, 2010 at 9:55 am
Liz, I am so sorry to hear of your troubles with the wheel chair. God is so good and made it all come out right. I hope the rest of the Symposium went well for you.
I have not been on the boards for a long time. Have been feeling pretty well and seem to improve from year to year. However, the neuropathy has caught up with me. I have been distracted from here and need to get back to the site. Believe it or not, I too came to the Symposium, but on Friday only. I was hoping to find you so we could meet at last. I am so sorry that I missed you. Should have made prior contact by e-mail. (not only do my feet need help, but my brain also!)
The Symposium was wonderful. I learned a lot. Am so glad I got to go.
I hope your return trip home was successful. I remember that you moved to Fla. and hope you are happy there. I wonder if you have my E-Mail address?
God bless you Liz, Mary Ann Chisnell / Va. Bch.:)
AnonymousNovember 14, 2010 at 2:32 pm
Liz, I am so glad everything worked out for you with the wheelchair!!!
Must have been some nerve wracking moments and panic.
I hope you have shared your thoughts on the symposium elsewhere, I just haven’t seen it yet, if so.
Also, i sent you a PM.
AnonymousNovember 15, 2010 at 7:28 am
I sent you a private message which answered your question. According to the words of neurologist Dr. G, I am CURED of CIDP. I have been off all treatments other then PT to maintain for seven years and I just don’t relate to all the sessions. Just didn’t work out to take pictures, tape recorder was broken when I unpacked. I tried not to show on outside, but inside I was pretty well shaken almost losing wheelchair and things just didn’t fall into place for me so I could be a reporter for forum. That happens to me when stress becomes extreme.
Check with administrators to see what foundation will have available. Next communicator should have articles.
AnonymousNovember 15, 2010 at 3:12 pm
Thanks, Liz. I am so sorry that the whole WC experience ruined the symposium for you!! That’s awful. This one sure was a “trip” for you, with all the problems with your ear too, prior to it!
I am glad the symposium will be accessible to us at some point, I would love to hear some of the sessions.
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