AnonymousJanuary 30, 2009 at 8:36 pm
Hi everyone I have a question. In the last summer I have been getting hurt more at work. I realize it is most likely because I do to much for what my body can handle. I am a production line worker. I don’t have the strength I once had to do lots of the job at work. Last summer I hurt my arms and I had to get physio therapy for 8 weeks. I got them to give me some exercise the last 2 weeks to help strengthen my back. Just before Christmas I hurt my arms again due to a work related injury then I got better. It helped I had time off for 2 weeks during that time.
Now after Christmas my first back was Jan 5th I hurt my back and it still hurts. I saw a DR 2 weeks ago and I saw another DR today for a follow up. He says my back muscles are very weak so I need physio therapy.
I wonder will my muscle in my back keep becoming weak unless I do exercise of my back every single day for the rest of my life? Is this just part of having CIDP? My friends says I have to realize I can’t do as much as before which I know but I wonder if the muscles in my back will ever get strong again.
Also I can’t read the request for physio.. I see the last 2 words as spine dysfunction but can’t make out the 2 words before that. Can anybody read the handwriting?
AnonymousJanuary 31, 2009 at 3:17 am
Agree with above. Most back problems in people are in the lumbar spine in the “small of the back” in the area where the spine curves forward and back. Thoraco-lumbar indicates that this problem extends higher and goes with muscle weakness along the length of the back. the spine has four parts. The cervical is in the neck from the skull to the bottom of the neck. The thoracic is from the neck to the bottom of the ribs in the back. Ribs come off each of the thoracic spine vertebrae. The lumbar spine in below the ribs to the top of the pelvis and the sacral spine is the very bottom to the tailbone.
AnonymousJanuary 31, 2009 at 5:08 am
I have some input for you if you would like to hear. I have CIDP that was very gradual to some point in time. My muscles would get better if I did PT
daily and I would even get stronger. If I stopped or reduced my schedule, I would decline and small injuries would occur.
MY GP doctor told me physical therapy for the rest of my life. I said what, I have been working out the last 12 years on my own to build strength and now your telling me that isn’t enough!
Over my undiagnosed period of 3 years. I did over 100 PT sessions at a facility and all thoughts were that I had a bad back causing sciatica, lower lumbar pain and weak lower legs. The Neuro’s did a double lumbar microdiscectomy. They were wrong. That didn’t fix a thing. as a matter of fact if pissed of the CIDP to where a year and half later I was reduced to a cane. Anyway,
We did alot of core abdominal strength. this is good for anybody. especially if you are on a production line where you may lean forward alot and doing some lifting etc. The possibility exist that you may need ongoing PT. I do mine at home and have been so regimented it no big deal. I understand you may be tired after work so try to do it before work or when watching TV. And as the older more experience folks say. “KEEP MOVING” don’t stop. Good Luck.–tim–
AnonymousJanuary 31, 2009 at 8:02 am
Hi Hope and Tim thanks for your replies. So Tim in your case you are getting weaker and need IVIG. I was told I am not getting weaker last Sept.
My problems at works is my strength and the bending and twisting and the repetitive pace. When I hurt my back I was taking a set of metal slides and turn around to put it in a box going down the production line. The metal slide were themselves in a box of 20 weighing 33lbs. That took about 90 sec to go through a box so then I would have to pull another box up towards me and contine the process.
I find that when it hits the Thoracic part it really hurt and it bothers my breathing like somebody is squeezing me in that area.
Well this time Workers Compensation is going to let me have physio therapy probably 5 weeks worth. Then in March I am planning on taking about 11 weeks off work to work on my emotional health and to become more assertive. Which will help me deal with the people at work who give me a hard time. My drug coverage will only last me 3 months then I would have to wait a full month before getting drug coverage so I have to go back before my drug coverage is done. Last year the insurance paid almost $5000.00 of my medications about $450 a month.
People at work whine when they realize I am still on light duties and getting it easier then them. They don’t understand what I am going through everyday.
AnonymousJanuary 31, 2009 at 10:06 am
As in my case and over the time I was doing PT there was light cidp activity
with back and forth remissions. By doing PT with light CIDP activity, you can increase strength and keep nerve channels open. I did it. When I took it easy a decline would occur. SO there you go. doing PT and daily exercise in my book slows down the damage. At least it did in my case.
I at one point intentionally quit any form of PT or exercise so the Doctors would see my degredation and it came on just like I thought it would. they game me steroid that accelerated my decline. now I had two IVIG’s and I am
hoppin and jumpin.
Sue be careful with any twisting while holding weight. try to rotate your whole body. with neuromuscular interference in the abs and lower back muscles, you are particularly prone to a spinal injury or herniation.
AnonymousJanuary 31, 2009 at 10:19 am
Sue be careful with any twisting while holding weight. try to rotate your whole body. with neuromuscular interference in the abs and lower back muscles, you are particularly prone to a spinal injury or herniation.[/QUOTE]
My job requires me to twist and turn most times. Lots of people see me as whiner. But I am not. I wish I could get some prednisone. I got some 2 years ago and it helped me so much. I was loosing my hearing and had a very bad case of Tendinitis and the prednisone helped but they stopped giving me the prednisone before I had a chance to see how much I could recover. I felt I could have recovered more but nobody wanted to give me prednisone then and now.
AnonymousJanuary 31, 2009 at 2:35 pm
Hi Again Sue,
So, you have CIDP. Currently are not on any medication so you are in remission or stable?? Not getting better Not getting worse?? You figure steroids would help?? Why can’t you get some?
Most back injuries I hear about revolve about twisting, not to say twisting ruined your back but made it present. Thing like Vacuuming where you reach
out and rotate, or cleaning the bathtub, bent over and twisting etc. the most common are the last two Levels and the tailbone.L3L4L5 area. very curious.–tim–
AnonymousJanuary 31, 2009 at 3:08 pm
I am not getting better or worse and compared to most people very good. I still got the pain from my nerve biopsy I had June 9 2005. In the 2007 I had swelling in my hands that was so bad I thought I had Raynaud’s but then found out it was tendinitis. It was really bad and the worse it got the worse my hearing got.
One day I had sudden hearing lost in both ears and while getting my first 5 days of IVIG I went to the ER and the made me go see specialist.. Long story short the day after I finished my IVIG treatment I started 50mg of prednisone for 2 weeks. Most DRs were on holidays at the time after 2 weeks my Ear DR took over and weened me off the prednisone. Doesn’t believe in it. It’s to dangerous. Well the day I stopped the prednisone is the day the improvement in my ears and hands stopped. They never gave me the chance to see how much more I could have improved. Any DR I talk to now says the same thing the drug is to dangerous.
My psychoanalyst this week told me he figured my hearing start dropping as soon as I stopped the prednisone. I said no only when I have inflammation issues like last fall and now that I notice it affect my hearing. Also I notice I still have some swelling in my fingers. But nobody cares because Prednisone is to dangerous. But not having it is causing me problems with my Mental Health which right now is very serious. I know my body I have had problem with my hearing for 42 years I know the signs of it getting worse. I feel there is inflammation in my ears causing my problems.
Sorry for ranting and raving but my ears have always been a problem for me especially since I got CIDP.
AnonymousFebruary 1, 2009 at 9:43 am
Is there any possibility of going on disability? It seems to me that your job is way too physical and is contributing to the constant inflammatory episodes. My job is what really put my CIDP into action and what ultimately led to my needing to stop. I don’t know how it works in Canada but maybe your Psychologist could help you find out. I wish you the best.
AnonymousFebruary 1, 2009 at 10:00 am
I could probably apply for a disability pension but I can’t live on the amount they offer. But with the Human Rights Act and the Disability Act. I am protected and I am now getting help from the provincial Government to help me keep my job. They are going to make it easier for me at work. I also know I was doing to much so now I just got to make sure I don’t the jobs I can’t and only do the job I can. That will make my co-worker mad but by the law I am protected.
I wanted to find a new job but their is no job that has close to the same salary I have right now and I have good benefits and seniority. This June will make 25 years I will be there.
I wish I could quit but financially I can’t at this time
AnonymousFebruary 2, 2009 at 3:49 pm
Sue I have read your posts here from the very begining of my visit to this forum and I know you are not a whinner. Don’t worry what the co workers think…it is hard enough getting family members to understand what we go thru. I am sorry we all have to go thru this illness and we all have different residuals but very common residuals. They are real and not in our heads. I do think that was alot of weight they were having you lift. I am not sure with the CIDP but I do know with the GBS that we need to keep moving and I choose to do daily stretching and yoga or tae chi exercises to keep my muscles moving and those tendons and ligaments healthy. Proper posture is something I have to concentrate on all the time. I get little pains daily from tiny little muscles that cramp. It has been over three years since my onset and I am slowly getting stronger. Just in the last year I was able to finally tighten or control muscles or muscle groups. Finally my back is getting stronger and my ads were weak and they are actually starting to just respond to the exercises I have been doing over the years. Guess they just were not getting the signals correctly and now have healed. I still have a long way to go and to try and single out the areas that are still weaker and work on them. In an other thread I seen someone was having trouble going up on tiptoes…..I still am having the problem. Getting up from the floor is very painful in my foot and ankles and now the swelling is starting to effect my knees. I just keep trying to work on these areas to get them stronger and back to where they used to be or close to it. Don’t stop moving but becareful of the twisting, that causes me rib pain and cramping and spasms. Keep working with your Doctors and rehab people. I hope that some day this discomfort leaves our bodies alone! We just have to help each other to unlock the secrets. Keep us posted on your progress….remember you are not alone in this battle!
AnonymousFebruary 2, 2009 at 6:22 pm
Hi Kit thanks for your reply. I bought a Wii game with the Wii fit and tried some games that doesn’t affect my back and I notice it give my legs a work out.
I know I need stress leave and I am thinking of going in March for about 3 months. That should help me think clearer and be able to face my co-workers again.
AnonymousFebruary 3, 2009 at 7:39 am
HI Thonda I wouldn’t get much from CCP and where I work we don’t have a Long Term Disability.
Right now I make about $2100 a month clear if I don’t miss time from work and my drug plans pays about $450. of my medications. But I will be taking time off work and right now I am going to be filing a claim with WSIB for Traumatic Mental Stress and hoping if they allow the claim they would give me time off work and I wouldn’t lose any money because they would pay me.
Part of me wish I could be off work permanently.
AnonymousFebruary 4, 2009 at 5:53 am
Hi Sue and Forum,
This whole situation is a Rock and Hard Place, especially if you are supporting yourself or Primary earner.
I have worked on the books for like 31 years and had a decent salary for probably the last 25 years. If I got SSD now I’d get $2100 a month. I don’t know if they tax it or not. That is not enough to pay the insurance, electric and utilities taxes and still eat, never mind paying for scripts or uncovered med exp. I live in a small town and a modest small twin home. I figured it costs like $1500 a month just to be here and keep the lights on, taxes paid and home and auto insurance up. I would not be able to handle any loans, car, equity etc.
I would go upside down fast. This is why I was firing at my doctor to hurry the heck up and do something here. I have a job and HC that I will certainly lose if I don’t improve soon. They took me down to the wire until they fixed it.
If SSD were offered to me today. I would not take it. I have a daughter going to college and I am a long way from the finish line. Planning to work until not possible.
The real crazy part is that is costs like 2-3 times my annual salary just to keep me functional. Go Figure! I guess its better to have the person functional in society than paying out of the gov’t fund for all of it.
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