• Anonymous
      February 18, 2007 at 12:00 am


      Nothing mega but I thought I might start this Thread just as a way of learning I suppose.

      I’m 50 – I blinked at some stage and then I was 50 -any road, around Christmas I got a mega headache around the back of my head. It was scary. It eased off but was still there. It happend the same, a second time. I drove to the GP and on the way realised that I had some sight problems – not he bet thing to discover when you’re driving.

      Optician said my eyesight had deteriorated markedly in the last 6 months and wouldn’t prescribe new glasses until I had seen the eye specialist again. I saw the eye specialist a couple of weeks later and was told – there is no change in my eyesight over the last 6 months.

      Strange. So I went back to the optician. She rechecked my eyesight and the change over the last 6 months was minimal. The upshot was that I was probably in the aftermath of a migraine when she first checked my eyes (that makes sense to me).

      What caught my attention was that my optician used to (may still do) suffer with migraine.

      My only knowledge of migraine was that: you got a terrible headache, couldn’t stand bright lights, could get slurred speech and had to lie down in a dark room – this is solely based on the fact that I once drove a guy home when he had a migraine headache.

      My optician said that with her, migraine could be a headache and numbness down her left side and sometimes no headache, just numbnes down the left side. This was an eye-opener for me.

      I am intrigued because I previously had what appeared as classic radial palsy followed by unclassic radial palsy! and a visit to the Neuro – who finally seems to believe that I don’t fall asleep in the chair (though I have still to persuade them that I normally don’t move a lot in bed – they think I fall asleep heavily after drinking and don’t move during the night, and thus lie heavily on one arm I have yet to get them to believe that I have never moved much in bed at night and I don’t know how I could sleep heavily on both arms at once – and that I have yet to wake up with radial palsy as it has only happend whilst I have been sitting up).

      I would be very interested to learn of others experience with migraine.

      God bless

    • Anonymous
      February 18, 2007 at 7:20 am

      hi t.a. ! i think i’m the migrane queen. i had one a day for the last three days. my doc. gave me a prescription called “zomig”. it’s a miracle drug. i know some things that trigger my migranes. i almost ALWAYS get one at christmas from eating too much chocolate. if i have too much caffeine and then suddenly stop, i’ll get one. the doc. also told me that dairy products and nuts can cause them in some people. i’ve also read from this site that some people get them as a gbs residual. i’m assuming that that’s what brings on some of mine. i too went to the optician and an opthalmologist. my left optic nerve was damaged during my onset of gbs, therefore i’m not a candidate for lasik vision surgery. i jokingly said that i wouldn’t risk getting that done anyway, becuse if i ever lost my eyesight, i’d never be able to read braille, (due to my hands being numb). i have a warped sense of humor, but that’s how i get through this mess.
      well that’s the only input i can offer on migraines. i get them and the zomig stops them within half an hour. i hope you can get this under control. i know the pain of migraines and it’s not a pleasant thing to deal with while having to handle all the other day to day crap we deal with. well, gotta run for now. we’re going to lancaster, pennsylvania to see the amish country. hope we don’t get hit by a horse and buggy as we did once before. the horse was fine. no harm done. i’ll check in with you later. feel better sweet pea!!
      love ya,

    • February 18, 2007 at 3:31 pm

      Migraines are no fun. My whole family suffers from them….even my son who will be 13 soon. His first was about a year and a half ago and he has had several since. When mine start (they are more frequent since onset) I can feel it poking at me right before I get slammed. I was perscribed one of the migraine meds but havent taken one yet. One of the contraindications was smoking so I am iffy about how I will react or what it would do. My doc knows I smoke so I am not sure why he wouldnt take that into consideration when perscribing it. Am I being paranoid? Sometimes I end up doubling up on normal headache stuff knowing that isnt good for me, but that is the only way I get complete relief. A pillow over my head, an ice pack, and quiet…and sleep if I can.

      When I was really young I was taking care of my mom who suffers from almost constant headaches. When a bad one hits she has to go in for a demerol shot. So I have had a busy life taking care of people. And then to have them myself *sigh*. I am thinking my son may have to go in for a bit more testing since he was complaining the other night when one hit him that he got dizzy and sick and couldnt walk straight. He slept it off and was fine but it freaked me out. Of course he told me this after the fact 0.o or we would have been at the ER. Anyone else have that happen? I usually just get nauseted and dont want any stimulation, sometimes I see little flashes of white light if I move my eyes. Thankfully my MRI’s and CT scans showed nothing at all (HAHAHAHAA!!) so I was able to rule out anything serious. I’ll be doing more research on childrens headaches and talk to my sons dr.

    • Anonymous
      February 18, 2007 at 9:42 pm

      I have had migraines since I was about 20. My daughter and youngest son also have them and my mom did when I was a kid. I know my triggers but it isn’t easy to stay away from them, especially chocolate.
      Nate never had bad headaches until he got GBS. Now he has horrible ones.
      They start at the back of his head then move to the left side like mine.
      We saw our doc friday and I told him that they seem to be getting worse.
      I asked him if we can try Nate on Imitrex to see if they are really migraines.
      He agreed that it would be a good idea so he gave us samples.
      Next time Nate has a whopper, I will give him some. Hopefully it will work like it does with me.
      Nate has not had a really bad one though since he got a chiropractic adjustment a week ago last friday. He got a small one last week before we saw our regular doc, which was easily controlled by Vicodin.
      I wouldn’t wish a migraine on anyone but I hope if they are migraines that Imitrex will work on him.
      Watching him in such intense pain is hard, knowing how much he has had to endure already.

    • Anonymous
      February 18, 2007 at 11:54 pm

      hi ta, i will make my migraine story really short since i need to get some rest before daybreak!:D i went from severe migraines-the vomiting, nausea with aura type, everyday for over 15 years to almost none since my first bout with gbs in 8/05. i have tried everything from narcotics to the simple stuff, even as far as dying from an injection at my dr’s office, and i finally found a med that will help most times, its Relpax. since my gbs i have had really bad migraines with each paralysis event i have. they start in the occipitals and go on the leftside only up to the eyes. just alot of pain and neck pain now-no nausea or vomiting. i use the relpax and they are gone. i think i have had a total of 4 migraines other then the event ones since 05, which is a welcomed feeling. wow i didn’t think i could fit 15plus years of migraines into that small of a paragraph-i just wished it could have felt that short and sweet all those years.:rolleyes:

    • Anonymous
      February 19, 2007 at 12:36 am

      Its a relative of Imitrex. Its Supatriptan and Relpax is Eletriptan. [url]www.relpax.com/relpax/relpax.portal?_nfpb=true&_pageLabel=sectionPage&section=About+RELPAX&menuid=Menu-AboutRelpax-info.xml[/url]
      No wonder it works so well for you.
      The first time I took Imitrex, my migraine left in about 20 minutes. It was weird.
      I felt sorta funky the rest of the day but my head didn’t hurt. That was all I cared about anyway.

    • Anonymous
      February 19, 2007 at 9:58 am

      i tried imitrex and all those others before relpax. relpax took care of the pain and doesn’t mess with my bp like imitrex did. for a while there i was using toradol injections along with relpax-until the injections started making me ill-don’t need that ontop of a migraine.:eek: but now since gbs i only use relpax and usually its while in the hospital paralyzed. tooo bad the numb feeling doesn’t go up into the head! well i guess some people thinks it does anyway!:D

    • Anonymous
      February 19, 2007 at 1:15 pm

      Have you had any problems with understanding things or comprehending things since you got sick? I don’t know if its the meds or the illness doing that.
      It can be a touchy subject with some but I really would like to know.
      I thought about making a post but I don’t want to offend anyone.
      Trudy, natesmom

    • Anonymous
      February 19, 2007 at 2:06 pm

      Hello Fellow Migraine Sufferers,

      I have apparently had them off and on for many years. I did not know what was wrong until I had one when I went for a visit to my neuro. and he got a good look into my eyes. I get the auras first then the pain/pressure on my whole head. Imitrex has worked – I guess it is the blood pressure part I would feel a few minutes after taking the meds as I got real light headed and barely made it home from work. I think mine are hormone related.

      The auras are the strangest thing… and I remember having them for many years. The doc. said these were called silent migraines.

      Thankfully, I haven’t had one in a while. Good luck to everyone!

    • Anonymous
      February 19, 2007 at 2:58 pm

      My whollistic doctor told me that most headaches come from your stomach and I find that to be true in my case. He said to eat a peppermint candy to stop one. He thought it came from a stomach that was too acidic. I found that if I did not eat for awhile or if I ate the wrong foods that made my stomach too acidic, I got a migraine. I would stop it by eating a slice of pizza and a Pepsi. Usually junk food stopped it! It sweetened my stomach. It works every time but you have to take it before you get to the throwing up part.

      I had a migaine equivalent where it did not hit the pain center of my brain but hit the vision center. As I sat in my classroom, I saw a hot dog suspended at the ceiling for a second. My doctor explained what happened. He also said that sometimes it hits other centers. You could get paralysis on one side of your body. I asked him how one would know if it were a stroke or a migraine equialent. He said that if the paralysis leaves, it wasn’t a stroke!

      AS for losing vision, I lost most of my vision in my left eye and it was from eating soy. When I stopped, my vision returned. Luckily I figured it out before I got on medication. Doctors don’t have enough time to figure out what we are eating. I have blood type O. Soy is not good for us. I wonder how many of us that get migraines are blood type O. I’ll bet that a lot more O’s get migraines than blood type A’s.

    • Anonymous
      February 19, 2007 at 8:42 pm

      Trudy, huh?:D
      actually i now have the confusion more since gbs. before gbs it was on occassion, i think the worst was when i was in the hospital for migraine iv treatment and my labs and potassium levels were really bad. since gbs i have the brain fog-worse on days that i have over done it, or during a relapse. it slowly goes back to my new norm after each relapse-well so far anyways.:rolleyes: you don’t need to worry about offending anyone when all you want to do is get answers to your questions. ask away!:) give nate a BIG HUG for me. take care

      Carolyn, I’m A+, and my migraines don’t have a food trigger, most times its from a fibromyalgia flareup. my stomach problems were a sign of other problems though-immature cancer cells in my r ovary and the cyst/tumor, and stage 4 endometriosis. the stomach is the control center of the body, if its not happy, you’re not happy.

    • Anonymous
      February 19, 2007 at 11:35 pm

      I’ve learnt a great deal from you guys, reading this Thread. I was amazed to read about numbness – that’s just what my optician said happened to her.

      I had no idea that there was medication available and it’s good to know.

      I must admit Carolyn, if I don’t eat it does affect me – though not with a migraine – yet! thank God.

      Dear Natesmom, please don’t be worried about offending by asking a question – I’ve asked some right ones over the years! I remember a good deal of discussion on here about memory problems and ‘brain freeze’ following GBS. I stil remember totally losing it during a conversation – I had no idea what to say next.

      As to understanding stuff, I felt like I had a rusty brain. It has been suggested on here that you try doing puzzles or the like to knock the rust off, so to speak. Don’t get scared when/if you don’t do as well as you used to. Just practice regularly – it does help. You could try crosswords or Suduku.

      I do think that GBS somehow affects the memory – it got better over time for me.

      God Bless

    • Anonymous
      February 20, 2007 at 9:06 am

      i agree with ta, i use sudoku and it seems to help me recover easier in between events. my mom started me on it after my intitial event, with the book, she has since given me an electronic style that keeps your scores-just 2 nights ago i broke my record, solved a level 2 puzzle in 5 mins 37 secs with 35 moves.:) that is a great ego boost!:D

    • February 20, 2007 at 5:10 pm

      when I was at my worst, I felt very empty headed and “slow”. I would forget what I was talking about usually mid sentence or what I was just doing. Once I was comfortable driving I would forget where I was going, my son was most helpful and understanding. Even now i have my moments, but everyone here chalks it up to me being wierd. I have noticed an improvement and I can remember [B]a lot [/B]more than I did 3 months ago…funny you should mention doing puzzles to knock the rust off. I really enjoy puzzles and they do help ignite something. Even online puzzle games that include finding patterns. But, now things are better and I am not as absentminded…well, not as bad as it was anyhow:o

      I believe GBS affects more than anyone realizes. My neuro still says headaches are NOT at all associated with GBS. HA!

    • Anonymous
      February 20, 2007 at 5:24 pm

      Its funny that one Neuro says headaches don’t have anything to do with GBS and others say it does.
      Even Nates PT says they do, his primary care doc says they do, his hospital nurses says they do, his old Neuro too.
      How they can be so divided is puzzling.
      If you don’t have them before you got sick, then suddenly you do should tell them to wake up and smell the coffee. LOL
      Nate only had one migraine that I knew of about 3 yrs ago. Now he has them 2 or 3 times a week.
      He has been doing better though since we took him to the chiropractor.
      Its such a relief for him too.