Many here have asked,,,How do you KNOW?

    • Anonymous
      June 15, 2011 at 11:32 pm

      IF you have CIDP?
      Well, web up the following: [B]CIDP DIAGNOSTIC CRITERIA[B][/B][/B]
      Here are some of the easiest sites found:
      URL And…
      It seems more emphasis at first is on the nerve conduction studies, but then the blood work and reflexes do come into play… they used to be presented consistently in all formats? But these days they vary and it can make it harder to sort out the basics…
      And, yes? For bloodwork? Those many, many VIALS are necessary. Wish it weren’t so? But they are essential keys to getting a diagnosis.
      There is a heap more information here. Just go to it and ask questions if you don’t think your docs are doing enough for your diagnosis. ASKing gets you lots farther than demanding…be sure you’ve got good info such as from here to back you up!
      Keep at it one and all. Keep faith in yourself and hope as well.
      Also? Remember that any one doctors’ opinion is just that? AN ‘opinion’! Lots of docs don’t have always the right opinions for any one of us. So keep asking questions and press for any crumbs of answers you can get.

    • Anonymous
      June 17, 2011 at 7:02 pm

      The first neurologist I saw admitted right out front, that he was not an expert in neuropathies at all. I couldn’t get to the neurologist that I found out from this website was the grandest of all in my area, unless I had a referral from him. A six month wait to get the best.Fight hard to find one you know and trust. There are not a whole of them out there that specialize in this.

      Take Care, Val.