Looking For Anyone From My Area
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April 9, 2010 at 12:00 am
I was woundering if there were many of us in my area state of ohio.
im curious to know & could you put your hometown.
thanks for any & all inquiries.
Istaroaz
Severe case Nov 10.2006_______________________________________________
A PEARL IS A BEAUTIFUL THING THAT IS PRODUCED BY AN INJURED LIFE. IT IS THE TEAR, THAT RESULTS FROM THE INJURY OF THE OYSTER.
THE TREASURE OF OUR BEING IN THIS WOURLD IS ALSO PRODUCED BY AN INJURED LIFE. IF WE HAD NOT BEEN WOUNDED, IF WE HAD NOT BEEN INJURED, THEN WE WILL NOT PRODUCE THE PEARL. -
April 9, 2010 at 1:45 am
There are several people on the forum from Ohio. I have attending a support group/informational meeting in Dayton a couple of times. The next one is 5/22. If you are interested, I will be happy to send you additional information when I receive it about location and time. The meetings are usually on Saturday early afternoon and last about 2 hours. Every other meeting has tended to have a speaker and the alternative less formal with people introducing themselves and briefly telling their story with GBS/CIDP. It is a distance for me (I’m in Indiana), so I have not been able to attend all the meetings there.
WithHope -
April 9, 2010 at 9:55 am
Dayton area is to far for me to travel . I dont travel well due to the GBS & severe low back pain from hitting it on sink counter last year. & my motion sickness i get now. i’m about 1 hr from Akron & Marrietta if you go south Akron is north. The only GBS support thing i’ve been to was the symposium in Chicago in 2008 & we flew there.
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April 9, 2010 at 2:05 pm
Hello,
Go to the members list under K and look for Kassandra Ulrich. Kass is from Akron, Ohio. She doesn’t post on the forum anymore, but she is very involved in the GBS/CIDP Foundation in other ways. If you are able to go to the symposium being held in Valley Forge, PA in November, you’ll probably meet her in person. -
April 9, 2010 at 6:27 pm
Yes i know kassandra. my mom talked with her alot when i was sick. I also talked with her on the phone & she has visited me a few times & i seen her at the 2008 symposium. I also know she is deeply involved with the foundation. I also know for the state of ohio there are 4 other liasons. I meet one of them. i was woundering about other people as well as the liasons. I also talked with 2 of the liasons. I was also woundering if there was anyone close to where i am.
istaroaz -
April 29, 2010 at 6:09 pm
I am near you in spirit, I have an idea what you are going through. I care. Please lean on me, share with me how you are feeling. Get it off your shoulders. Every little bit helps.:)
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April 29, 2010 at 6:10 pm
I am near you in spirit, I have an idea what you are going through. I care. Please lean on me, share with me how you are feeling. Get it off your shoulders. Every little bit helps.:)
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May 8, 2010 at 9:53 am
I am in the Columbus Area. I am still a little far from you but if you need to talk you can write me.
Will keep you in my prayers. -
May 11, 2010 at 2:05 pm
Have you had a Stem Cell Transplant? Read all about it on this forum! Am praying for you.
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May 11, 2010 at 7:57 pm
no i haven’t had stem cell transplant. 3 1/2 years ago when i first developed gbs i had plasma pharesis done 5 times. i later heard my uncle a doctor telling another dr that i had the plasma done & he said it helped but i didn’t do as well as they thought i would with it. i had a very severe case of it, & was within a few hrs of having to be put on a vent. & i almost dided from the gbs & then another time from the vicoden building up a toxic tolerance in my system & was given narcon 2 times to get me to come out of it.my neuro thought i would never get out of bed but i walk with arm cuff crutches normally. but im in a wheelchair some of the time due to a broken 5th metatarsal. i did this 1/21/10. it is slow healing bone anyway & the gbs makes it more slower because of the effects of gbs restricting the blood vessels. its just all been one big NIGHTMARE!!!
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May 14, 2010 at 5:53 am
I live in Findlay, oh but my neurologist is at OSU, and we travel down quite a bit. We also travel to the Akron area quite often as we have family there.
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June 15, 2010 at 6:15 pm
Sorry I haven’t checked your post in a long time. Sorry for your suffering. Wrapped up in my own tiny world. Crutches & wheelchair, is it electric or can you manually turn your own wheels? Do you get around, out of your home?
In the last 2 months I am no longer ambulatory. Can’t get over all my house, haven’t been upstairs for over a year. Only leave my house to go to Drs. & to church. Can’t get out of my house to my yard. Have been depressed over demise. Am sure you know a whole lot more about that than I. My Dr. ordered me an electric chair, don’t have it yet, can’t wait!
How are you doing now? You are in my prayers & in my heart.
smitty -
July 30, 2010 at 4:53 pm
I live in Columbus. GBS onset March 2005 a serve case.
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July 31, 2010 at 9:54 am
Looking for anyone in the Albany NY area with CIDP
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