Life is always changing

    • Anonymous
      November 26, 2007 at 10:55 pm

      Hi everyone it has been a while since I have checked in. I have been doing very well with my CIDP it has been almost 3 months since my last IVIG treatment and that is the longest I have ever gone so I think I might be in remission. I found out a few weeks ago that they found something suspicious in my 6month cancer check up. I had a breast biopsy done on Friday and should know Thursday if my cancer is back. Question every time I have surgery my CIDP gets worse except when I was getting chemo the problem is I have a hard time thinking about chemo again cause of what it does it makes me feel so sick but my CIDP goes away while on chemo my family does not want me to do chemo again and try more healthy life style like diet and other things I am scared cause I am so torn as to what would be the best. How my body fight cancer with a suppressed immune system and it can apparently did not work the first time if in fact it is back again. My chemo was in January 2006, so it has not been quite two years. I would like any info that might help me make the right decision. Is there anyone reading this have had cancer with CIDP or GBS?? I know I am not the only one I just can’t believe this is happening again then again it might turn out to be nothing. Thank you for your support. Sorry for such a long note.

    • Anonymous
      November 27, 2007 at 9:52 pm

      Peggy, Only you know how you felt when you went on chemo before. You really need to stay positive and gather all the information you can on what treatments are available now, new ones are coming out all the time, and than make the decision if the time comes for one to be made. You know This Family will always be here for you. You are in My Thoughts and Prayers.