just a bad day

Hi Jeff,

I know what you mean. Treat yourself to a pain vacation. I rewarded myself that in the formative years, looking for a balance. Tell your doc you want something that will kill the pain, or directly get to the point. In my case, vicodin. If days off can be worked to just do this, it might give you other alternatives to look at. You can’t get crazy, but 5mg X 6 per day, may give you relief, plus or minus. The initial head effects should deminish rather quickly over a few days, and feel what happens. Maybe you have. Under real good control, this method can be functional with very little side effects. Trade the valium in for something else if you do. Stay with neurontin, and use the other for a boost and complete relief day. I know for one, after it knocks you out and you sleep like a log, it gives you more energy to start out with. Less to none, on body movement during a sleep. You deserve a reward, and pain deserves a day off or two. Keep working hard and I hope you find some relief.

Yep, racer 13 is right…………….vicodin is the answer for your pain.

P

Jeff,

I think I would have gone mental by now if I were in your shoes. I definitely think you should do what Racer said, that is if you havent tried it already. Racer has been through a lot, its unfortunate learning from others pain, but I think everyone can benefit from what he has been through. Its easy for us to tell you what to do when we’re not in your situation, I just hope that you get some kind of relief soon!

Thank goodness for this forum, I dont know where I would be if I couldnt vent on here when I have needed to.

Hi Jeff,
This forum is great just to vent and ask advice (and of course for lots of other things). But it allows us to say what we want without worrying about our loved ones. You know you can always talk to us. Pain will definitely cause other problems so your doctor needs to explore to find something that will work for you. Don’t give up. Take care and good luck

Sherry

Feldenkrais tapes are available and essentially afforded me the opportunity to learn how I could move, and where and when I evoked pain. It’s a gradual process of learning how to move again, in a new body, or at least a different one, using basic mechanics of movement to work with the momentum and not against it. Example: Using the head as a weight, and curling the body into a roll, so that we aren’t weighting against the direction of movement we are attempting.

First off, I do not take pain meds because of problems with regressive apnea. And I’m weaning off Cymbalta now, but I applaud anyone who can take a day off from pain and I’m rethinking how I could possibly do this. Massage, reiki and acupuncture have worked for me…maybe I’ll do a day where I get all 3 repetitively….Yumm:)

A bad day vs a not-so-good day vs a not-so-bad day etc. Sounds alot like “normal” to me! I’m glad that you knew that you could vent to your “family”. Just knowing that someone who “understands and cares” is listening helps to lighten the load. I hope that today is a better day for you:)

Jeff,

I hope the increase in Neurontin works for you. I read that if you take an extra one at bedtime, it should give your body time to adjust to the extra dosage without interfering with your schedule too much.

I really feel for your poor wife. I know how much it hurts us to see our hubbys in so much pain.

Take care and please give your wife a big hug for me.

Shannon

Hi Jeff….It seems to me, that more than a few Dr.’s don’t see the chronic pain and fatigue as normal. Believe me, it is. Afterall, they (Dr.s) don’t know much about this syndrome and the only way for them to learn more, is for all of us to be vocal !! So stick to your “guns” and insist on help when it’s needed !!! I hope you find a comfort level that will make each day easier for you and your family. Feel free to vent all you need to on here…I wish I had known about this site when I was first diagnosed 🙂 Take Care and Stay Positive