Jumpin’ Out A My Skin! Help?

    • Anonymous
      June 13, 2010 at 7:15 pm

      For the past couple of weeks I have developed a new symptom – at least for me. You know how when you are just about ready to fall asleep and all of a sudden you have a whole body jerk? This happened pre GBS, and I know it happens to lots and lots of people.

      Well, that same all over body jerk or jump has been happening to me during waking hours as well as those “drifting off” times. I can be sitting quietly in my chair when all of a sudden my arm, my leg, or my whole body just jumps or jerks.

      Does this happen to anyone else? Do you have any answers? Or am I just wierd?

    • Anonymous
      June 14, 2010 at 12:59 am


      I have the same thing happening to me. I also get shocks that do that.

      It is happening less with monthly IVIG and gabapentin.

      Rhonda from Canada

    • Anonymous
      June 14, 2010 at 9:46 am


      You are not weird!

      I get those jerks (spasms) usually in the evenings in my legs. Once they start I am in for a rough evening with the knee hitting the underside of my desk and the constant uncontrolable movements. I never get them in both legs at the same time, it used to be that when one leg settled down the other leg would start, that happens less often now.

      When spasms start in bed the only way I have found to deal with them is turn my night light on, get a book and read until it runs its course.

      It’s bad enough having spasms in the legs only, can’t imagine having whole body jerks.


    • Anonymous
      June 14, 2010 at 3:20 pm


      I got the “jerks” in the beginning very badly, like whole body ones. Now they come and go, mostly when I am resting or drifting off to sleep. I get them in my neck/head and legs. It is very disconcerting. Not sure what it is. Maybe the nerves healing or in a flux? I was planning to mention this to the neuro next time I go. It has been bothering me too, that they came back.

    • Anonymous
      June 14, 2010 at 9:53 pm

      OH MY
      Yes I do get the same jerks. It happens in my whole body, mostly it is in several limbs at one time. These will cause the jerking. I hope we can figure out what is happening.

    • Anonymous
      June 15, 2010 at 9:55 pm


    • Anonymous
      June 15, 2010 at 10:24 pm

      I get them too, some really big ones lately while I’ve been sick.
      Head jerks to one side, limbs just jerk together all at once as if I’ve been startled. Sometimes a big nerve spasm that really ‘gets my attention’.:eek:
      I’m putting it down to all my sudden infections of ears, nose, throat and lungs right during pesticide, herbicide and fungicide season. The ‘cides’ are toxic to me, and my body has been seriously affected for weeks now. I expect that when the spraying lessens or stops, I’ll be able to make some improvements in recovery again. It’s a predictable pattern for me.

      These sudden body jerks have a medical name (can’t think of it); apparently, even severely brain-damaged and paralyzed people get them. It’s an unconscious reflex.

      And just a few days ago, after a week of infections, my body repeatedly experienced a flush of tingling starting from head to toes at various times. Within 5-10 seconds, every nerve that could still feel tingled, so I know now what I’ve still got left.
      When the tingling reached my feet, there were only a few short channels where it went, then stopped. Almost nothing in my toes. A bit more in my hands.

    • Anonymous
      June 21, 2010 at 12:12 pm

      Thank you all for the supportive input! I would love to ask my neuro about it when I see him in 2 weeks, but I am going to beg him for a “return to work” statement so I can go back to school – and I don’t want to say anything except smile and say “Oh, yes, yes, all is well. Look, I can walk, I am just about normal, and oh, yes I feel good.” I think it is input like that that makes the medical community feel like we do get better. How many of us gloss over the truth, just to stay at work so we can afford to live? Gosh, teachers in Arizona (we are now # 50 in the nation, big surprise) barely make enough to make the rent, little less “live” – but I digress. I bet if we were all 100% honest with our docs the phamplet that says “almost everyone has an almost 100% recovery by the end of the first year.” would have to be reprinted.

      So, I am so glad I am not a wierd jerk – that a lot of you have jerks just like me, and I guess together we just need to add them to our list of stuff we learn to live with. ๐Ÿ™‚

      Thanks to you all – – –

    • Anonymous
      June 21, 2010 at 12:20 pm

      LOL Cathie, I like your comment about “weird jerk.” Put a needed smile on my face. ๐Ÿ™‚