Is this uncommon in CIDP?

Hi! I have GBS residuals but I too, have this happen. Most usually it’s in WalMart. I can’t stand the “odors” and the huge florescent lights drive me nuts!! I’m not much of a shopper any more 🙁 Also, I have experienced driving down a familiar street and not knowing where I am. “Probably” it has a lot to do with the fatigue thing as you suggested 😮

Current medicine now acknowledges that GBS/CIDP can affect the central nervous system. To many of us have had heart issues and thinking problems.

These diseases are just one huge guessing game 😮

Hey Kazza,
Yes I have had that happen, and I’ve seen other people report it on the forum here too. It’s one thing when it happens in some place you don’t visit every day but when it happens to you at home then you will REALLY panic! I think you are right though, this tends to happen to me now only when I am very fatigued – a moment of disorientation. I do wonder if it has something to do with the amount of information we are asking our brains to process – you know if you aren’t used to that amount of stimulation, plus asking your muscles and nerves to work more to get around shopping… maybe your brain just hit the reset button a couple of times to clear the buffer and start over again. I don’t know if I’m explaining myself well but at any rate it doesn’t seem to be that uncommon with us. I think I spent a whole year that way actually. 😮

Julie

Hi Cazza,

I don’t have a firm dx yet but I too have had that happen. Only I was driving both times. It is a horrible feeling to be confused like that.

(hugs)
Kelly

I refer to those occasions as a “brain fart”. I contribute it the medications I take.

I have had CIDP for almost 11 years. When I experienced these “episodes” I was told they were panick attacks and given Xanax. Then I was told I was having depression with “disassociation”. I can fix the public places by leaving, even with a full grocery cart. The driving still gets me sometimes. I will just pull over and call somebody just to talk a minute and when it passes i travel on. I don’t feel myself panick but that is my dx.

I have had this sort of disorientation occur with me many times. I would imagine each person describes it differently. With me, I suddenly feel odd followed by a few seconds of “what is this” then a bit of anxiety attack.
Next, a panic occurs because of a sensation like this is uncomfortable.
Then it goes away. Sometimes it takes a few seconds to get my bearings straight. What I found in my particular case is that fluid accumulates in my inner ear during allergy season. It is so severe, a type of not vertigo but, like
Someone else said, a reset sensation occurs, brain fart so to say. If it is accompanied by any light dizzyness or imbalance, and occurs relatively frequently and more so when tired or later in the day
Try a decongestant, you may be suprised. It all goes away after the freeze
For me. What I have mentioned may not be a match but it sounds close.
See ya

This feeling is called Cognitive Disfunction. Brain fog and some of us call them brain farts! LOL! Many people with auto immune disorders get this with their diseases. Sometimes weather changes can cause it and you will notice it more when you see a weather change. Our blood vessels in our bodies are just like rubber bands. Put a rubber band out in the cold weather and it gets hard and freezes. Place it in heat and it softens. Extreme heat and it get’s very elasticy! Just like a door that expands and contracts with weather change! Humans do the same thing! People with auto immune disorders though it effects them more than a normal human being. When a person’s nerves get damaged it can cause our blood flow to go much slower than the average person. So what happens is our blood vessel constrict not getting enough oxygen to the brain on time and causes us to get cognitive. It comes and goes. In fact there is alot online about Cognitive disfunction and those that have this problem might pay to look it up! Very helpful in helping to understand what is going on. Can get scary if you don’t know what is happening but once you know what it is, it makes it easier to understand and deal with it. Some diseases can cause bad cognitive while others can cause only mild attacks. Hope this helped!

Wow, this was great, because I thought I was loosing it, or having a wicked late 60s flashback! lol I was at work and in a meeting, when I thought I was watching a movie, that I wasn’t part of. Weird……….actually, it made the meeting a little more interesting!

D

I thought the average body temperature was 98.6 F year round??
Blood vessel don’t get cold or hot do they?