IS GBS genetic?
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AnonymousSeptember 29, 2007 at 2:48 pm
😮 Ok guys and gals, I attended a GBS conference yesterday for medical professionals. One of the speakers was Dr. Daid Cornblath from Johns Hopkins University School of Medicine – Dr. Cornblath is on the medical advisory board for the Foundation and a GBS expert. I was sooo impressed by him, all the experts were absolutely amazing, all the experts were absolutely exeptional, and believe me (for those of you who know me) I dont say that kind of thing easily.
One of the slides he presented and discussed went something like this …..
Demyelinating Neurophathies are either Hereditary or Aquired :
Hereditary Demyelinating Neuropathies are :
[LIST]
[*]Congenial hypomelination
[*]CMT family
[*]Refsum disease
[*]ALD, AMN
[*]MLD
[*]Krabbe desease
[*]Cockayne syndrome
[*]HNPP
[*]Cerebrotendinous xanthimatosis[/LIST]Acquired
[LIST]
[*]GBS
[*]CIDP
[*]MMN
[*]Diptheria
[*]Hexacarbon
[*]Buckthorn intoxication
[*]Perhexilene[/LIST]He did go into GREAT detail, however I could never try to even begin to try to explain what needs to be missing or ‘less’ in the myelin or nerves for it to be affected or to give it a certain varient. He did mention that there are varients out there that have not even been named as yet – its all a learning curve, which he is a HUGE part of.So ……..
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AnonymousSeptember 29, 2007 at 7:59 pm
This is a subject of special interest to me. I had GBS twice, once in 1993 and again in 2004. When I was hospitolized in 1993, I learned that my sons paternal grandfather was in a hospital in another city, also with GBS! I am very concerned about my son and his daughters! Anyone have any insight?
Alma.
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