information request

    • Anonymous
      November 11, 2009 at 10:06 pm

      Need help with subject matter. Got GBS in Nov 2005 from a flu shot that was given to me when I was sick. Spent 6 months laid up at home, went back to work and the employeer will only give me light duty when available(Air Traffic Controllers are subject to high medical standards, higher than pilots) . Still have sensory deficients, weaken muscles throughout, high blood pressure, sleep apnea, and now I have to take testosterone suppliments. I would like to address the fact with my doctor, but I would like to present her with medical information stating that high blood pressure, sleep apnea and endocrine system problems can be caused by GBS. If anyone knows where I can find medical information to present to her please let me know where I can locate them. This is going to help with getting the proper disability that is deserved. Thanks and God Bless everyone

    • Anonymous
      November 11, 2009 at 11:07 pm

      Does it matter if all these “side effects” are caused by GBS in order to get disability?

      My doctor just filled in the medical reports stating all my problems
      (CIDP, high blood pressure, coronary disease, type 2 diabetes etc…)

      He stated on the forms that I was disabled and that I was in no shape to work. We didn’t have to prove how they were related just that I have them and I can not work.

      Maybe others can help you out about their expereinces on how to get disability. Other than reading medical studies I don’t know how you can prove that it is all related.

      Good luck,
      Rhonda from Canada

    • November 11, 2009 at 11:38 pm

      Try contacting TJPTR 6 a member by the name of Tim. He also is in the airline industry. I don’t think he filed for disability, but perhaps he can give you some insight with his recovery/limits/guidelines regarding airline rules. Try contacting him by e-mail, he has not been on the site as much lately. Good luck.
      Dawn kevies mom

    • Anonymous
      November 15, 2009 at 9:25 am

      It does matter what side effects and that they are a contributory factor of the Gbs. My Gbs was thru a flu shot administered at work which made it a workers comp case. If I can help my doctor by showing thru medical research a link between Gbs and high blood pressure, Gbs and sleep apnea, and Gbs and the endrocrine system, she is willing to write a letter for proof to workers comp. I feel that she has never seen a gbs case before and is relunctant to put anything in writing. I am lost on the Internet on were to find this material so I can print it for her review. This has been an uphill battle for me since day 1 (at a 70degree incline) and I am seeking guidance on were I can find medical materials. Any help would be greatly appreciated. Thanks

    • Anonymous
      November 15, 2009 at 11:29 am

      Unfortunately, I don’t have any information, just suggestions. Have you checked with an endocrinologist? Perhaps they have information which can show that your immune system was compromised by having GBS, which was caused by the flu shot.

      Another option is to consult with an attorney…one who specialize in workman comp cases. I realize GBS and its residuals/additional issues aren’t well known, however, they may have doctors on staff who can link everything together.

      Good luck and take care,


    • Anonymous
      November 15, 2009 at 11:42 am

      Hi: Unfortunately as far as I know there is no research indicating a link between GBS and sleep apnea, and I doubt between GBS and high blood pressure. I may be wrong and I know a number of us have both, but to prove that they are residuals related to GBS will be tough. You may want to write or email Dr. Perry who co-authored the best book on GBS/CIDP and ask him about it. I think you can find his address in the book. If you put the emphasis on residual fatigue, weakness and pain it might well qualify for disability. Good luck. Jeff

    • Anonymous
      November 15, 2009 at 2:58 pm

      Hi Shadow,
      I am trying to do some research for you since it is monsoon weather here and I’m bored. I did come up with this abstract on GBS and high blood pressure. [url][/url]

      Hypertension has often been observed in patients with Guillain-Barré syndrome, and various underlying mechanisms have been implicated. We report the case of a child with the Guillain-Barré syndrome whose hypertension was associated with increases in both renin activity and circulating catecholamines. This case also appeared to be complicated by hypertensive encephalopathy. Following administration of intravenous regitine, a blood pressure change was observed and cardiac performance was assessed by two-dimensional echocardiography. Results indicated that increased total peripheral resistance may have been responsible for the symptoms and the hypertension. The hypertension was effectively managed by nifedipine, captopril and prazosin without the need for β-blockade.”

      I’ll keep digging and see if I can find anything on GBS and sleep apnea.

    • Anonymous
      November 15, 2009 at 10:46 pm

      Thank you all for you responses. I have consulted with a workers comp attorney since mid 2006 (6 months into recovery) and have consulted with a vaccine attorney which gave me a good lead on but I can’t seem to get the full reports. The workers comp attorney is getting educated along with me all about GBS. I keep on informing my doctor that I did not have these problems prior to GBS but I guess that is not enough. Because I was active prior to GBS, I ended up gaining 40 pounds and my doctor thinks the high blood pressure and sleep apnea could have come from the weight gain.
      As for the endocrinologist, I have scheduled an appointment with one to help me rationalize all this.
      My employer has given me light duty tasks for the time being, but I don’t think it’s going to last much longer. They have put my temporary job up for bid and I am being told that I maynot get it, but they should have work for me.
      I have done real well on Cymbalta, but because of a possible side effect I had to stop using it and switch to Tramadol. As a result of all what is happening, I may have to go back to Cymbalta.