I need help understanding EMG/NCS results.

I am sorry Stacey I can’t help you much but maybe you can find out stuff from this article more or less based on Diabetic Neuropathy but maybe you can understand it. I am tired right now can’t think straight

[url]http://www.aapmr.org/education/archive/9699/emg9610c.htm[/url]

Sue

Also check here maybe you can get some answers I am going to check out the page also.
[url]http://www.teleemg.com/old_web/emgfaq.htm[/url]

Hi Stacey!

I am so sorry to read your frustrations! I read all the way back to your first posts. You are right, basically nothing working as you said regarding “No Response” I read a post you made in Feb. indicating some improvement, wiggling your toes then. It seems that was when you were are the 5 day loading dose regimen. Perhaps this once a month Booster as you call it is too far apart. Maybe the doctor could start over and do a couple of loading doses again and then try a once a week maintanence schedule and then after a while of good reception and giving your nerves a chance to repair , he could try to spread the maintanence to two weeks.

As you know, if you are getting worse, you are active in a demylienation, more damage is happenning. Call the doc, it will just take that much longer to repair. (mm a day) I do not know if Kevie has gbs or cidp yet, but if it is cidp, the ivig schedule he has been on is what worked for him. We are going to stop treatment and observe (he had his last one last Thurs. 95 g over three days) We are going to do the same thing as you, use the emg/ncv as a tool to guage improvement and decline if there should be additional symptoms. Kevin also had conduction blocks in some of the nerves but not all of them, it will be interesting to see if with all of the ivig, clinical gaines and return of all stregnth and reflexes if the ncv results have changed since the two previous.

I feel awful that you have to go through this! I hope that maybe it could be as simple as more ivig closer together. I hope you have support and help at home. If I were your neighbor I would come and clean the house for you so you could have energy left over to play with your son! Good luck! Dawn Kevies mom

Stacy, WOW! You have alot going on! Are you invested in Calgon?!:D In my opinion, you really need to have your dr go over the results with you. There is a site that can give you information on reading emg/ncv results-goodsearch it, I found it under absent f waves I think. It might give you some information, maybe enough to give you an idea of what questions to ask your dr. You are in My Thoughts, and I’m Praying for good results to come your way. Big Hugs!
Maybe Dawn can watch your babes, so you can let Calgon take you away for a little r and r.:)

Hi Stacey,

You certainly have a plate full in front of you and I do wish you the best. Like you, I had a dickens of a time figuring out the results of all the conduction and velocity tests. As you probably know already, I’m big on getting records. Bubbleboy says it best, “the doctor works for you”. That said, I ended up google-ing my test results because my neuro didn’t explain the results to my satisfaction either. I do know a reference to a fat nerve is the start of demyeliniation (sp?) and they (enlarged nerves) will also show up on a low back MRI. I have total paralysis (zero movement) from my knees down on both legs. My brain hasn’t a clue as to where my legs and feet are but with a cane and a lot of looking down, I manage to get around. All of the conduction tests confirmed the lack of feeling and movement with a lot of words that meant, “it ain’t workin”. Having spent most of my life as an electrician I figure wiring errors are fixable. Maybe I got zapped one too many times? I haven’t given up on this theory but the IVig hasn’t done a damn thing…yet? Keep the faith, it could be worse. A little person in a crowded elevator has it worse than we do…Dughy

Hi Stacey

No answers for you, but a question! How can we have complete conduction blocks and still wiggle our fingers??

Helen 🙂

Hi Meadow,
I was wondering about the same thing. Kevin has conduction blocks in his hand and feet, but still functions relatively normal. I wonder if it is because other nerves that have not been affected pick up the responsibilities. Thus accounting for fatigue when over used. Maybe Doc David will read this and answer.
Dawn Kevies mom 😮

ConnerZmom,

Pretty much word for word the way I hear it, “It doesn’t seem any worse”. Any worse? Try walking on these bundles of exposed nerves that I do! By my own admission, I tell them the Lyrica works for me and all of a sudden we have a course of treatment. If the IVig treatments are designed to give the patient migraine headaches and nausea, well, I guess they’re working? Hopefully they work for everyone else, just not for us. I wish you the best…Dughy