I am still screaming
-
-
AnonymousJuly 16, 2009 at 11:46 pm
Hi remember I was going to scream if I didnt get answers So my MRI came up normal I am assuming my EMG was normal as well otherwise why would he make me do an MRI afterward. I am going to look into B12 deficiency but if that doesnt work should I ask for a nerve biopsy? what is the likelyhood that a negative emg can still be CIDP. PLease refer to my previous post for my history if you have an answers let me know.
-
AnonymousJuly 17, 2009 at 2:05 pm
Tara – I would get a nerve biopsy. Then you will know for sure if you have CIDP or not.
Jo-Jo – When a dr does an MRI & suspects CIDP they are looking for inflammation. The dr may be looking for inflammation on one of your cranial nerves. The dr will order the MRI with contrast. Inflammation only shows up with the dye from the contrast.
Kelly
-
AnonymousJuly 18, 2009 at 2:05 am
JoJo a skin biopsy might tell you a reason for your bowel/bladder issues by way of dxing a small fiber neuropathy. It looks for the amount of nerves present in a small section of skin from 2 places on your leg.
A sural nerve biopsy will show onion bulb nerve growths. The layers are from regenerated and degenerated and regenerated nerves. Each layer representing a relapse and remission of the neuropathy. Remember there is no true test for cidp, but every test will knock out other possible diseases on the way to the final dx. Don’t give up hope for a dx and never give up or give in.
If a skin biopsy comes back with a dx of small fiber neuropathy, the next step would to find out what caused that neuropathy-it is a long road, many of us are walking down it with you. Take care. -
AnonymousJuly 18, 2009 at 5:24 am
Hi,
Sorry you are having a difficult time with a diagnosis. I just thought I mention my experience. I’ve had sensory CIDP for several years now and remember during my first attack, I had an EMG and the results came back normal (I can remember that I couldn’t even feel the needles in my legs). Then a few years later (when my symptoms had improved quite a bit) I had a Nerve Conduction test which then came back abnormal (absent sensory reponses, absent F waves, etc). I don’t know why that is??
Good luck.
Kazza
-
You must be logged in to reply to this topic.