how many have had all clear lps?

    • Anonymous
      November 1, 2009 at 3:14 pm

      I was looking at my old records for the first time and it turns out that I was never definitive for GBS. all this time I thought it was a slam dunk. my bout 7 years ago was “very suspicious”. the doctors were NOT questioning my paralysis the emg showed that definitively. also absent reflexes, possitive babinski (on the early examination before it hit me all the way) yada yada. there were tests the report says they couldnt do because of their “inability to put her in an upright possition”. but the report says “we are diagnosing her based on clinical presentation”. the bout was once again reversed almost instantly by PE and I went from dead legs and arms parylized up to my lower shoulders to walking with a limp in 11 days. once again no autonomic involment.

      I have had 5 lps all of them clear.

      my question is how many of you have had clear lps?

    • Anonymous
      November 1, 2009 at 8:16 pm

      Hubby had slightly elevated protein in his LP. He has CIDP–MADSAM.

    • Anonymous
      November 1, 2009 at 8:24 pm

      Normal upper level is 45 I think. Mine was only 56, what’s that 15% or 20% over “normal”? Not enough for a “Big Red Flag”

    • Anonymous
      November 1, 2009 at 8:47 pm

      Emily had 3 LP’s. The first 2 were elevated & the 3rd was within normal range. That was 11 months after GBS diagnosis & 8 months after continuous IVIG that came with the CIDP diagnosis.

      She still showed slowed nerve conduction & had inflammation on her spine. She had all of her reflexes back & seemed to be functioning just fine.


    • Anonymous
      November 21, 2009 at 5:18 pm

      I never got the exact numbers for the LP. I asked for the results, and what they printed out for me was not what I asked for.
      (and yet they charged me for it regardless)

      NE who.. they said that my LP was within “normal” range.

      Which is why I’m getting a nerve biopsy next week. (the EMG wasn’t difinitive enough for diagnosis, and they need a secondary confirmative test, and since spinal was normal, we had to move onto the biopsy)

      I’m sensory greater than motor, which I am not sure if this is more common in persons with a more sensory issue?

    • Anonymous
      November 22, 2009 at 12:10 am

      yeah I am just finally reading mine after all these years

      2002 42 protien, 11 white blood cells, 52 glucose

      2004 49 protein, 2 white blood cells, 50 glucose

      2009 38 protein, 4 white blood cells, 89 glucose

      even though the protiens werent elevated in 2002, my EMG was very consistant with GBS. they couldnt even get me in an upright possition to complete the tests they wanted to do but what they did do was definitive for gbs. AS the first one goes and so goes the rest. From an I know my body standpoint they are all the same disease.