Hi-I’m a new member

Ms. Judy

I don’t know the answer but is there a specialist you can call and ask that question? I am interested in what they have to say.

Keep us posted
Rhonda from Canada

First off, welcome!

Hmmmm….

I’ve never heard of IVIG causing glaucoma.

My thinking is that the CIDP may have something to do with it. Apparently people with other autoimmune diseases, such as diabetes, lupus, rheumatoid arthritis etc., are at a higher risk to get it.

I would question the dr on stopping your treatment. My daughter has right eye involvement (it becomes paralyzed) & has seen an opthamologist for 3 1/2 years. He has never once said that IVIG could alter any eye exam he was doing, in fact he asked the neurologist to give her IVIG more often at one point.

If it were me I would put a call into the dr on Monday & ask for a better explanation as to why the IVIG treatments were stopped.

Good luck,
Kelly

I agree. The easiest thing to do is ask the neuro “Why”.

I have not researched glaucoma or its causes, But IVIG just puts a lot of antibodies in your system to help ward off the autoimmune attack on your nerves.

Maybe he is using this situation to assess what would happen if you are off IVIG for a while.

Good luck, but get answers
Dick S

Hi Ms Judy,
Welcome to this forum. There are a lot of great people here, who have been through the different stages of CIDP & GBS, and on all the various protocol of treatments. Unfortunately, you have joined the group due to CIDP.
Whenever you have questions or vents, just come here for help. We can at least try to give you life experiences what some of us have gone through.

Now–about the eyes…
I got “Horner’s Syndrome”, (you can google that to see what that’s about, rather than me explain it, if you want), and can not tolerate bright light, (photophobia), ALL from CIDP. I have to see an Ophthalmologist every 6 months, as they watch to see if the CIDP is doing any more damage to the optic nerve.

As for CIDP with glaucoma, I cannot answer that. But, I copied something out of Yahoo, which is below, when I googled “Glaucoma causes”:
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“What causes glaucoma?
Damage to the optic nerve is often caused by increased pressure in the eye (intraocular pressure). This can happen when extra fluid builds up in the eye, such as when the eye makes too much fluid or does not drain well. But some cases of glaucoma aren’t caused by increased pressure. In these cases, the cause may not be found.

You can get glaucoma after an eye injury, after eye surgery, or because of an eye tumor. Some medicines (corticosteroids) that are used to treat other diseases may cause glaucoma.

What are the symptoms?
If you have open-angle glaucoma, the only symptom you are likely to notice is loss of vision. You may not notice this until it is serious. That’s because, at first, the eye that is not affected makes up for the loss. Side vision is often lost before central vision.

Symptoms of closed-angle glaucoma can be mild, with symptoms like blurred vision that last only for a short time. Severe signs of closed-angle glaucoma include longer-lasting episodes of blurred vision or pain in or around the eye. You may also see colored halos around lights, have red eyes, or feel sick to your stomach and vomit. In congenital glaucoma, signs can include watery eyes and sensitivity to light. Your baby may rub his or her eyes, squint, or keep the eyes closed much of the time.

How is glaucoma diagnosed?
Your doctor will ask questions about your symptoms and do a physical exam. If your doctor thinks you have glaucoma, you will be sent to an ophthalmologist for more tests. This may take more than one visit.

An ophthalmologist or an optometrist can diagnose and treat glaucoma. An optician cannot diagnose or treat this disease.

See your doctor if you notice blind spots in your vision or if over time you are having more trouble seeing. It’s also a good idea to be checked for the disease if you have a family history of open-angle glaucoma, are over age 70, or have diabetes. ”
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I know that with glaucoma, the sooner discovered, the better the treatment for it will do. So, if your neuro thinks there is a problem with your eye(s),
then you should go as soon as possible to the eye doc.
I did notice one thing the article mentioned as a possible cause, was that about being on corticosteroids. That I didn’t know.
When I read over all possible side effects with IVIG, it does NOT mention anything about glaucoma.
BUT, one of the normal protocol of treatments for CIDP is using steroids.
Are you on prednisone, or solumedrol, or any other steroid? Maybe THAT is the bugger that may be affecting you?

Anyways, welcome again to the forum, and get going to the eye doctor!
KEDASO
(Ken)