Hi All Jim 101 Question

    • Anonymous
      December 8, 2008 at 9:25 am

      I just started doing this two weeks ago. when I go to bath room 2 /100 sitting. my lower back and legs go numb it makes it rough.should i be worried?? thanks jim:confused:

    • Anonymous
      December 8, 2008 at 11:54 am


      Hopefully, someone on here can answer this properly, but that doesn’t sound healthy. I think I’d be on the phone with the neurologist if it were Ben or me.


    • Anonymous
      December 8, 2008 at 3:11 pm

      sounds like a pressure issue to me – the toilet seat tends to press on important nerves. This happens to me if I have to sit there for more than a few minutes. The question is why is it happening to you now – were those nerves damaged in an attack?

    • Anonymous
      December 8, 2008 at 9:24 pm

      Yes both legs back and arms hands .i didnt get real sick thank god just numb legs and arms hands. and lower back.but after didnt heal in 1yr they did mri.and found scolyosis in mid back 6degree lower back 10 degree and stinosis in neck.they found after. so this is why i havent healed and also residuale effects. but its been 3 1/2 yrs now and still cant walk far with out cain and if i go more than four houses away have to have my kids with in case i fall

    • Anonymous
      December 9, 2008 at 4:48 am

      Hi Jim,

      It sounds like you had GBS, not CIDP, is that correct? Well my thoughts on what’s going on with you are pretty simple – your muscles are weak due to the damage done by GBS, therefore whereas before you might have been able to tolerate the spinal stenosis and scoliosis with only mild pain and occasional numbness – now you can’t do that because your muscles are too weak to compensate. Unless you make a conscious effort to sit with your back straight on the toilet you will subconsciouly relax into a comfortable position thus crinkling up your spine and putting pressure on your weak places. I’ve had several slipped and ruptured disks in my life and pretty much the only prevention for that kind of thing is to strengthen your muscles.

      I would definately seek out your neurologist and see what is going on for sure, if it turns out to be the weakness contributing to your other back problems then ask him what kind of PT you can do to strengthen your back and trunk muscles. I have issues with my trunk muscles too which makes sitting up difficult – they have me doing these twisty-reaching kinds of things to strengthen them. You really need to have supervision if you are going to try to strengthen your muscles and I mean professional help, not your kids. You can easily hurt yourself by something simple and you don’t want to cause any more problems right now. It’s best to stick with the professionals on things like this.

      Good luck Jim – you might want to take a walker into the bathroom with you in case you get too numb to be able to stand back up again. That could get a little embarrasing! :rolleyes: