April 18, 2010 at 12:13 am
Wishing you well. You need to check with you doctor about hemolytic anemia. There are many different types of hemolytic anemia and many different diseases cause this anemial. This anemia can be acquired or hereditary.
Call around for a good specialist who also is familiar with GBS.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
AnonymousApril 19, 2010 at 9:34 pm
i developed hemolytic anemia while in icu with gbs. they said i was bleeding but didnt know from where. after several transfusions, they called in an oncologist and he found the h. a. i had 4 rounds of rituxan infusion. i have blood counts checked every 3 months and so far so good
AnonymousApril 20, 2010 at 3:13 pm
I, too, developed a blood disorder while in recovery with GBS. It was as a result of using Heprin while doing the PE. Called H I T. I also have a hemotologist who is watching me closely. I believe all sorts of odd diseases or syndroms can develop with GBS. In my case it was because of treatment I developed the disease (HIT). I get blood tests bi-weekly, too. Have your neuro or PCP get a hemotologist referral ASAP. Blood disorders are nothing to fool around with.
AnonymousApril 23, 2010 at 9:50 pm
Yes ! I have had CIDP for 9 years now and I have severe anemia. The doctors have done alot of test and have found that I am not producing the right size red cells as well as they do not live the typical 120 days .They feel my CIDP is actually attacking my bone marrow . So I am always low on blood . I typically hang around 9.5 but it recently dropped to 6.9 so I was dragging 🙁 Have you had any testing to see if your low because of production or perhaps the CIDP is doing some damage ?
Best wishes 🙂
AnonymousApril 30, 2010 at 4:46 pm
Hmmm… this thread has me wondering. For the past 5-8 years, my white blood count has gone up and up and up. Can’t remember the last count as it has been 2 years since regular doc checked it. He did send me to hematologist about 4 years ago and said it just looked like it was from inflammation. He said it was from smoking. I do not believe that – I can see how my left side of my body has grown bigger than my right (right dominant). So I feel it is inflammation of nerves on my left side. Any thoughts???
(P.S. Will have insurance May 1 – none since Oct. 2008 and plan to see regular doc)
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