HAD GBS and now UTERINE CANCER

Hi Everyone,

In 1998, I was diagnosed with GBS, was paralyzed briefly (facial paralysis lasted longer) and had 10 plasmapheresis treatment. I still have residual weakness and paralysis, just a bit. It took about a little more than five years before everything felt almost normal (99%).

Last year, I was diagnosed with uterine cancer and had surgery called TAH+BSO. The incision is bikini style. It’s been over a year since my surgery and I’m still having pain in the pelvic area. My doctor could not find anything wrong, I wonder if GBS has kicked in, since the nerve ending (or beginning?) is in the pelvic area. It’s a very uncomfortable feeling. It feels like as if someone if trying to pull or push down the pelvic area really hard. Sometimes, it feels like as if I’m carrying a heavy load, more so after I lift something heavy. But I also find, that even if I didn’t lift anything heavy, I still get this feeling from time to time. I never had a child, so I can’t compare the feeling being pregnant. Sometimes, I also get this burning sensation (more so on the left side of my pelvic area) which is quite intense and it stays for few days.

These sensations/pain that I am having now is quite similar to when I had GBS, but in the legs (especially in my left leg) and face. I remember having pain and weakness and burning sensation even if I was idle. I am wondering if anyone of you has similar experience, kindly share or if any doctor is reading this, can you please tell me what to do. Thank you.:confused: