• Anonymous
      October 16, 2009 at 5:49 pm

      I wanted to get a consensus on what people thought regarding getting the H1N1 vaccination? I personally don’t ever want to risk experiencing what I did with GBS. Although my triggering event was viral and not from a flu shot I am still extremely reluctant. I am debating even with my kids. I am going to have a contingency plan to contact my Dr in the event that I have symptoms and see if I can get Tamiflu the antiviral. The other concern is if the H1NI outbreak is as virulent as some say I worry it could cause a relapse. Please give any and all input. This is such a great resource. Thanks to all that contribute.

    • Anonymous
      October 16, 2009 at 8:10 pm

      Though Im Not Sure, But I Too Believe My GBS was Triggered By Some Sort Of Viral Infection And Not A Vaccine Which Kind Of Puts Me In A No Win Situation. Do I Risk Getting The Vaccine Where Its Been Proven To Trigger GBS Or Risk GettingThe Flu, Which May Trigger It Too. Im not Sure What To Do. My Neureologist Told Me That It Was Safe To Get The Flu Shot, 2 Years After My GBS, But I Never Did. Recently With All This h1n1, My Primary Doctor Strongly Suggested I Don’t Get Flu Shot or h1n1 Vaccine At All. He Says Way To Risky.

    • Anonymous
      October 16, 2009 at 9:08 pm

      Hi Dave,

      Although I have not discussed the H1N1 specifically with my neurologist, I was told not to get a flu or pneumonia vaccination. I honestly don’t know if it is recommended, even if you have 2-3 years of recovery behind you. Tom

    • Anonymous
      October 17, 2009 at 11:57 am

      Christina and Tom,
      It certainly seems to be a quandry at the least in terms of making an “educated decision” since some physicians say do it and others advise against. I feel I have a higher probability with three young kids since they spread germs/viruses more often. Anyway, I am likely going to forego the shot and hope for the best. I wish you both luck and thanks for your input.

    • Anonymous
      October 17, 2009 at 12:49 pm

      [SIZE=”3″]Hello all.
      I DID GET GBS FROM THE FLU SHOT. I will NEVER TAKE A FLU SHOT AGAIN or any shot that comes from an egg. My Neuroligist told me if it comes through an egg stay away.
      Remember the flu shot is for last yrs flu and it DOESN’T protect you from this years flu or make it any easier if you get a new flu this year.
      I retired from one of the top hospitals in the country and 98% of the employees refused the free shot.
      If you watch the news almost 70% of parents have refused to allow their children get the H1N1[/SIZE]READ the warning list on the flu shots. Ask your doctor to prove they took the shot and how many of their staff did.I feel you play with a loaded gun to your head and wonder when it will go off.Also in 1976 when they came out with a Swine flu shot more people died from that shot than from the flu that year.And GBS cases went from 3 per 100,000 to 30 per 100.000
      Blessings (Lakoda)

    • Anonymous
      October 17, 2009 at 7:28 pm

      For several years the Centers for Disease Control has employed behaviorists and communications specialists to instill fear and anxiety in the public about infectious diseases in order to promote mass vaccination.

      But the rhetoric about flu risks have been especially exaggerated. Example: The CDC says there will be 36,000 or more deaths in the U.S. caused by the flu each year. If this were really true, wouldn’t we have a pandemic every year? We’ve had approx 1,000 deaths from the Swine Flu, and we already have a pandemic – right?

      Google up “Trends in Pneumonia and Influenza/Morbidity and Mortality,” page 11 of the American Lung Association stats. the average U.S. death rate is less than 700 per year from influenza for the time period of 1979 – 2005. So, how does the CDC come up with 36,000 + deaths from influenza? They add influenza and pneumonia together, but influenza is not a direct cause of pneumonia.

      You may hear health professionals attempt to justify the legitimacy of combining flu deaths with pneumonia deaths with the statement that “influenza leads to pneumonia.” The facts do not support this frequent, broad misstatement by health professionals. The American Lung Association describes pneumonia as having over 30 different causes. Neither the CDC nor ALA know the specific causes of the pneumonias that resulted in death. However, they do know that influenza is not the major cause.

      Keep in mind that the influenza vaccine provides no protection from bacterial infections. The National Institute of Allergy and Infectious Disease as well as other health agencies estimate that the single bacteria — streptococcus pneumoniae — is responsible for 15 – 50 percent of all cases of pneumonia in the U.S., including up to 40,000 deaths annually.

      Pneumonia is also caused by other bacteria such as Staphylococcus aureus (staph), Pertussis (whooping cough), Streptococci, and Mycoplasma pneumoniae (a common cause of walking pneumonia). There are also many non-infectious causes of pneumonia such as asthma, aspiration of fluids, immunodeficiency, etc. So, it stretches credibility to assert that the flu causes pneumonia when, in fact, the data shows that it only causes a small minority of cases.

      Because of the recent flu vaccine shortage in 2006, the CDC said that healthy people under the age of 65 should do without a flu shot. But, there is also data that shows there is little, if any, benefit in those over age 65 that get the flu shot, in preventing influenza, hospitalization, length of hospitalization, and death. In fact, some studies show an increase in risks for those over age 65 that do get the shot.

      So even if there were enough flu vaccines, why would you be urged to get one? The CDC just said that healthy people under the age of 65 can do without a flu shot. Those of you who take care of your immune system year round don’t have anything to worry about.

      The question you want to ask yourself is “Do I really want to have a vaccine injected into my body when my immune system is not in the best of shape?” Before you decide just how easy this decision is to make, look at a few things that will make the decision a little easier.

      This year’s flu strains were decided in February. In my opinion this is for one reason — it gives the vaccine manufacturers time to produce the vaccine. This is real rocket science, because this is for people that will get the flu in December-January, and based on a “Crystal Ball Theory” from about 30 “experts” based on the flu viruses that invaded the U.S. last year.

      The biggest problem people face with flu shots is that they are being injected with a number of toxic additives. How would you like to have antifreeze injected into your body? Don’t worry, they call it ethylene glycol…makes it sound better doesn’t it? Or formaldehyde? (to kill viruses). These additives have been used in recent years. Here’s the best one — a mercury derivative called Thimerosal (used as a preservative).

      H1N1 Swine Flu Shot? 50% (or maybe all) of this vaccine will contain the adjuvants Thimersal and Squalene. Both are linked to neurological diseases and disorders.

      Micropaleontologist Dr. Viera Scheibner, who conducted research into the adverse effects of adjuvants in vaccines, wrote the following about squalene.

      Squalene “contributed to the cascade of reactions called “Gulf War syndrome. (GIs developed) arthritis, fibromyalgia, lymphadenopathy, rashes, photosensitive rashes, malar rashes, chronic fatigue, chronic headaches, abnormal body hair loss, non-healing skin lesions, aphthous ulcers, dizziness, weakness, memory loss, seizures, mood changes, neuropsychiatric problems, anti-thyroid effects, anaemia, elevated ESR (erythrocyte sedimentation rate), systemic lupus erythematosus, Guillain-Barre syndrome, multiple sclerosis, ALS, Raynaud’s phenomenon, Sjorgren’s syndrome, chronic diarrhea, night sweats and low-grade fever.”

      Are there safer alternatives to the flu shot? Of course there are. Lose the sweets. Sugar compromises the immune system. Eat a healthy diet with plenty of vegetables, fruits and fresh organic meat protein. Wash your hands more often as many people are walking around with colds, you may be shaking hands and touching things others have. How about zinc? Fifty milligrams per day will help prevent colds and flu.

      I got Guillain-Barre Syndrome and Transverse Myelitis from a flu shot in 1996. You couldn’t pay me to get another flu shot of any kind. And by the way…Over 70% of doctors do not get the flu shot either.

      Regards to all.


    • Anonymous
      October 20, 2009 at 12:45 pm

      I am pretty sure my GBS back in 1995 came from a virus. It definitely did not come from a flu shot.

      I can’t decide what to do regarding the [B]swine flu shot [/B]this year. This is the first time I’ve ever been tempted….I have never taken a flu shot since my GBS.

      My problem is that I have severe asthma. I came very close to dying in October 2006 from a flu/asthma attack. I was ventilated for 3 days.

      I’d rather not go through THAT again~! I cannot risk getting such a (supposedly) severe flu as the H1N1. I saw a report this morning on the “Early Show” that 26% of people contracting the swine flu have asthma. And 6% have a compromised immune system. So I come up lucky twice~!

      I have a 4 year old daughter that also has asthma, and I’m really leaning towards getting her the swine flu vaccine (the injection, NOT the nasal spary with the live virus).

      [I]What has been everyone’s decsion regarding the swine flu shot this year[/I]-? Honestly, I’d have thought this would be a bigger thread, with all the publicity H1N1 has received lately.

      Thanks for the input~!


    • Anonymous
      October 20, 2009 at 3:43 pm

      I am not getting the H1N1 or the regular flu shot and my doctors have advised me against it. It actually states “If you have had Guillain Barre you should not take the flu shot” on the literature given out. Both my husband and 8 year old daughter on the other hand have received theirs and need a second one (H1N1 needs 2 shots)and I am not volunteering at school this year per Dr’s orders and my own common sense. I am shopping during the weekday mornings when it is less crowded and just trying to stay away from people I don’t know. People I know, try to stay away from me if they are sick I realize this new bug you may not be aware of being ill until 2 days later but it’s just the best I can do without living in a bubble. So that’s my story and I’m stickin to it!:rolleyes:

      just Joyce

    • Anonymous
      October 20, 2009 at 4:56 pm

      I really don’t know what to do. I’ve heard both – that it’s ok to get the vaccine and that people with a history of GBS should not get the vaccine. My GP told me that I could absolutely not ever have a flu shot again, even though my GBS was from a viral cause. My neurologist says I can get it.

      I also have been diagnosed with Sjogren’s Syndrome with a possible Lupus crossover in the last few years. Which only leaves memore confused because my immune system is obviously not functioning properly.

      I basically don’t know what to do. Is it more risky to get the swine flu or to get the vaccine????? :confused:

    • Anonymous
      October 21, 2009 at 3:46 am

      Here is a link to a very recent CDC question and answer on the links between the vaccinations and GBS, if you want to read it. Personally, I had read a different conclusion (based on a scientific review article) of the effects of the 1976 swine vaccination than is reported in this link. I had read that the swine vaccination increased the likelihood of GBS by 7 times which is much more than the CDC says (and closer to what Jethro says above).


    • Anonymous
      October 21, 2009 at 9:41 pm

      I will not get the flu vaccination….the doctors and reports now seem split on this issue (years back they ALL said no flu shot). My personal opinion is that the doctors that say its ok to get the flu shot are like mad scientists and we are their guinnea pigs. So, I will not have a flu shot when the flu is what has caused me to have GBS 3 times!

      I guess it is almost anyones guess right now since the evidence is not conclusive either way.


    • Anonymous
      October 31, 2009 at 10:29 pm

      Sorry for the late reply. I finally received a response from the neurologist from the University of Minn. He is the one that has written books on GBS. He said that if the triggering event was a flu shot than the recommendation is to NOT get a flu shot. If the GBS was caused by anything else than the advice was to go ahead with the vaccination. He did also add there is no good science to this. Take that for what it is worth. Interestingly, he did say if you are over the age of 35 there is less risk that the H1N1 will be particularly severe secondary to the fact that older people have been exposed to a previous strain of the virus and would have partial immunity. I am thinking that we (my family including my three children) are experiencing H1N1 right now. I have had a sore throat for two days, my son has been coughing, with a fever intermittently for two days now. I am going to the doctor tomorrow if I or my kids worsen and lobby for Tamiflu. Be safe all and protect yourselves as best you can.

    • Anonymous
      November 1, 2009 at 1:08 pm

      Dear GBS/CIDP Friends,

      With the neuro toxins and other addatives that go into these shots…anybody may get anything – especially with an immune system as fragile as ours! And the neurologist at the University of Minn. is right; there is no good science for flu shots – just 30 “experts” meeting every Feb to “guess” what three flu strains to use for the flu season that will begin in Nov, Dec. It’s called the “Crystal Ball” Science.

      1. These are actual interviews from a 1979 CBS 60 Minutes report on the 1976 Swine Flu Vaccine – click on the Black Box:
      [url]http://www.examiner.com/x-6495-US-Intelligence-Examiner~y2009m7d10-CBS-60-Minutes-300-death-claims-from-1976-swine-flu-vaccine-only-one-death-from-flu[/url] There is a lot of other interesting information in this article.

      [COLOR=”Red”]Late Note: I just watched CBS 60 Minutes tonight 11/1. They talked with the CDC about GBS and the 1976 Swine Flu Shots. The CDC stated that 40 million people got the shot and out of the 40 million people 400 got GBS. [/COLOR][COLOR=”red”][B]How stupid do they think we are? Per the 60 Minutes Report above (made in 1979) there were over 4,000 law suits just on neurological claims…and 2/3rds of those were GBS/CIDP claims.[/B][/COLOR]

      2. This is not GBS – It is worse than GBS; another very, very rare disease from a flu shot:

      Best regards.


    • Anonymous
      November 1, 2009 at 3:00 pm

      I recently saw an internist at a free clinic and he said NO to both shots for me.

    • Anonymous
      November 2, 2009 at 10:05 pm

      I appreciate you soooo much for all the time you take researching these kind of topics. I am not healthy enough to take all the time you do on these topics here. I THANK YOU again for what you do here.
      God bless YOU,

    • Anonymous
      November 3, 2009 at 1:13 pm

      This debate will never end. We all have different medical information; what is the right answer? I need to trust my physician’s experience, or get a new physician! I developed GBS from Campylobacter, so I never experienced a viral issue. My infectious disease specialist said I should get the shot because my immune system is so compromised from the GBS and Crohn’s Disease.

      Whether or not I will listen to his advise is another story…

    • Anonymous
      November 3, 2009 at 10:16 pm

      But my neuro, my oncologist, my orthopedist and other docs are all saying GET IT! But the dead virus shot….not the spray!
      Yes I am scared stupid about doing or not doing? But, I guess I am lucky in that I’ve not an ‘egg’ factor to complicate things. What I [B]WILL DO[/B] now that I’m newly mobiler IS to take ONE shot at a time…two weeks apart and see how things go. That is…. IF the docs’ offices have anything when I want it? I am NOT gonna nor am able to wait in a LINE w/other folks who might be ‘sharing’ heavens knows what? It’s not that I’m anti-social? Rather I seem to have become a ‘cave-dweller’. I’ve been in a sort of ‘isolation’ soo long that I mite have LOST some immune defenses. THAT scares me!
      Who knows what this new stuff will do to folks? I am certainly HOPING that either infections or injections do not contribute to our community tho! The folks who suffer from this do not wish this on anyone else. Not even their worst enemies. Lets hope this is true that we don’t get more folks from this!Hope always to all !

    • Anonymous
      November 4, 2009 at 7:23 am

      Good morning.
      I got GBS from a flu shot. I didn’t know I had GBS for almost a month. I love eggs and I am not allergic to eggs.
      I don’t care what doctors say. THEY HAVE NOT WALKED IN OUR SHOES.I retired from a hospital and everyone was ready to walk when the CEO said we had to have the flu shot. Guess who won. My doctor says NEVER TAKE THE SHOT He won’t even give it to healthy people,
      I don’t gamble when the odds are against me even a little (Lakoda)

    • November 7, 2009 at 10:12 am

      I did not get GBS from the flu shot. My GBS followed a Cortisone shot and a severe cold days after the shot. My neuro at the time told me never get another flu shot again. That was in 1995. I have not had once since.

      I am in the high risk group (asthma,seizures) and I am torn if I should get one.

      I got a pneumonia shot about one month ago with no side effects as of today.

      My new Neuro thinks I should get the Swine flu shot. However, he also told me he has never received a flu shot. He told me his hospital was forcing all of them to get the swine flu shot and he was pretty upset.

      So who knows? I’m leaning towards getting one and for my daughter who has asthma. If you have lung conditions like us, I don’t think you can afford to take the chance and not get the shot. The H1n1 attacks the lungs so fast, it’s scary.

      Greg Giddings

    • Anonymous
      November 8, 2009 at 1:08 am

      Dear GBS/CIDP Friends,

      This same subject comes up every year. I made a post concerning an Article in the GBSFI Newsletter [Summer 2003] [I]The Communicator[/I] by Joel Steinberg, MD, PhD, [U]Safety of Immunazations for Guillain-Barre Patients.[/U] Dr. Steinberg’s opinion is By and large, the risks of complications from the flu are substantially greater than the small risk of side effects from the flu shot. Accordingly, the flu shot appears to be relatively safe for most candidates for it, including most former GBS patients. However, if your GBS was caused by a flu shot you probably should not get the shot again.

      In all cases it’s best to discuss your pros and cons with your family physican for his help and guidance in making the decision.

      The Article also discussed 311 “recovered GBS patients” that received a flu shot. My opinions and theories did not agree with the Article. I explained and asked why? Below is all concerning my Posts about that Article:

      The GBSFI Administrator did not take kindly to my original post, so I edited it as not to be so harsh and critical of the Author.

      Read below.


      10-26-2006, 03:38 PM
      Administrator Join Date: May 2006
      Posts: 64

      To Our Discussion Forum Community

      The GBS/CIDP Foundation International is appalled at the recent posting with negative remarks to Dr. Joel Steinberg. There are several reasons we find these comments unacceptable and harsh. Dr. Steinberg, himself a GBS patient, has for 25 years voluntarily written all of our educational literature, sits on both the Medical Advisory Board and Board of Directors. He is always available, free of charge to address the needs of all GBS patients.

      His dedication is beyond reproach. Our Medical Advisory Board, our “think tank” of neurologists has always respected and supported the work he does for GBS/CIDP patients everywhere.

      GBS/CIDP Foundation International

      10-26-2006, 07:06 PM
      Senior Member Join Date: May 2006
      Location: Southern Indiana
      Posts: 601

      GBSFI Article By Joel Steinberg, MD, PhD

      To GBSFI and all Members:

      The recent post has been edited. Dr. Steinberg’s name has been eliminated from all comments and the language is less harsh.

      However, the statistics remain the same and connot be changed unless GBSFI would like to challenge the theories I used based on “symptoms for GBS” and numbers used by the “CDC on flu shots and GBS”.



      P.S. GBSFI has now posted the Article [url]http://www.gbs-cidp.org/newsletters/2003summer.htm[/url]
      Understand your illness. Recovery and progress will require YOUR knowledge of the disease.


      10-26-2006, 05:02 AM
      Senior Member Join Date: May 2006
      Location: Southern Indiana
      Posts: 601

      GBSFI Summer/2003 Newsletter…

      The following is from the Summer/2003 GBSFI Newsletter, The Communicator. Safety of Immunizations for Guillain-Barre’ Syndrome Patients By Joel Steinberg, MD, PhD

      Guillain-Barre’ syndrome (GBS) briefly came to public attention in the fall of 1976 when it developed in an unusually large number of people who had received 1976 swine flu shots. More recently, rare mild increases in GBS cases have been associated with influenza immunizations. These events have raised concerns among GBS patients about the safety of immunizations. Most recommendations about immunizations have been derived from experiences with the population at large. The general teaching has been that most former GBS patients who would otherwise be a candidate for an immunization should still likely receive it, with rare exceptions. But what about the actual experiences of GBS patients with immunizations? Through the efforts of our sister organization, the Guillain-Barre’ Syndrome Support Group of the United Kingdom, data was collected from a large body of patients, and reported by Drs. J. Prichard, R. Mukhergjee, and R.A.C. Hughes of Guy’s, of the King’s and St. Thomas’ School of Medicine, Dept. of Clinical Neurosciences, London (J Neurol Neurosurg Psychiatry 73:348-9, 2002). [B]Of 311 GBS patients who, after recovering, received an immunization, only one got sick enough to prevent walking.; ten other patients developed mild symptoms such as abnormal sensations, weakness or fatigue, but they did not require hospital care. Information about exactly what type of disorder these patients developed was not available. However, the low risk of substantial problems, in one patient out of 311, or 0.3%, suggest that most immunizations are safe for most recovered GBS patients.[/B]

      The general approach to making a decision about the safety of immunizations is based on comparing the risks of developing an illness and its complications with the risks of developing complictions from the immunization that is used to prevent it. By and large, the risks of complications from the flu are substantially greater than the small risk of side effects from the flu shot. Accordingly, the flu shot appears to be relatively safe for most candidates for it, including most former GBS patients.

      If however, a patient’s GBS followed shortly after receiving an immunization, within two weeks or so, it would likely be unwise to receive that immunization again.

      Finally, it is likely best for a patient with GBS to wait at least a year after its onset to receive an immunization, in order to help assure that the immune system is now stable and in normal working order. Ultimately, the best approach to decision making about various immunizations is to discuss the pros and cons with the family physician who can take the patient’s individual medical history into account to help offer a recommendation. END


      [COLOR=”Blue”]1. Of 311 GBS patients who, after recovering, received an immunization, only 1 got sick enough to prevent walking; 10 other patients developed mild symptoms such as abnormal sensations, weakness or fatigue, but they did not require hospital care.[/COLOR]

      [B]So, it appears that 1 person definately had a case of GBS. Now, 10 more with “abnormal sensations (pins and needles), weakness and fatigue”[/B] – this sounds familiar, and any knowledgable neurologist would diagnose GBS after they received a flu shot. [B]So, it really looks like there was 1 confirmed case of GBS and 10 relapses back to GBS from the 311 patients.[/B]

      [COLOR=”blue”]2. According to the CDC statistics (in 2003), only 1 person in 1 million that get a flu shot will get GBS from the flu shot, or approximately 60 per year (out of 60,000,000 that get the flu shot).[/COLOR]

      So, 11 out of 311 doesn’t sound very good when compared with the CDC stats. [B]In fact, that’s about 33,000 times the CDC numbers – wow! And the flu shot is still recommended?[/B]

      [COLOR=”blue”]3. Information about exactly what type of disorder these patients developed was not available.[/COLOR]

      It would appear that all it would have taken is a phone call to find out the information. [B]After all, the data was at GBSFI’s sister organization, the Guillain-Barre’ Syndrome Support Group of the United Kingdom. How difficult could that be?[/B]

      [COLOR=”blue”]4. However, the low risk of substantial problems, in one patient out of 311, or 0.3%, suggest that most immunizations are safe for most recovered GBS patients.[/COLOR]

      [B]Surely GBSFI knew the CDC statistics on flu shots[/B]…and it’s not 1 (which would be more than 3,200 times the CDC number), it’s 11 patients (over 33,000), check the math, and get the records. [B]It sounds like “the dog ate my homework”…how difficult could it be to get the medical data?[/B]

      [COLOR=”blue”]5. Ultimately, the best approach to decision making about various immunizations is to discuss the pros and cons with the family physician who can take the patient’s individual medical history into account to help offer a recommendation.[/COLOR]

      [B]After the eradication of polio, Guillain-Barre’ syndrome is now the most common cause of acute flaccid paralysis worldwide.[/B] One of the main problems is the lack of experience in general doctors, emergency doctors, and some neurologist in recognizing the symptoms of GBS quickly so that treatment can be started. [B]This is because GBS is rare, and asking advice from a family physician about GBS and a flu shot (in my opinion) would be about like asking a pig when Sunday comes. The fact is, doctors are part of the bureaucracy…the money loop that helps protect the need for the useless influenza vaccine.[/B]

      As always, these are my opinions.

      Regards to all.

      Understand your illness. Recovery and progress will require YOUR knowledge of the disease.

      Last edited by Jethro : 10-26-2006 at 06:39 PM.

    • Anonymous
      November 8, 2009 at 8:39 am

      Where to begin? I was pregnant when I came down with GBS. My daughter is now grown with children of her own. No doctor has ever been able to answer whether or not she is more likely to contract GBS from a flu shot since I was carrying her during my initial bout of GBS. Most doctors say it is not worth the risk. Also, what about being around someone who has gotten the flu mist? Does anyone know anything about that?

    • Anonymous
      November 8, 2009 at 3:05 pm

      Dear Boomer,

      I suggest you read the following link concerning Flumist:



      Best regards to you and your daughter.


    • November 8, 2009 at 7:15 pm


      Thanks for all the info. You have given me a lot to think about.


    • November 12, 2009 at 10:31 pm

      I have done some research and found out the preservative THIMEROSAL is only in the multi dose vials. It is not in the nasal spray or single dose.

      Also, SQUALENE is not in our vaccine. It is in other countries but not in the US.


    • Anonymous
      November 14, 2009 at 7:33 pm

      Hi Greg ,

      I got GBS from a flu shot ….. then diagnosed with the chronic form of it. I think you would be putting your body at a HUGE risk getting the H1N1 all in the name of not getting the flu. I have several friends who are nurses and they said they are treating it just like any other flu virus . Once you have one auto immune condition your body can react to anything like that and set you up for another . I ended up with 3 autoimmune issues . The first being CIDP , Hymolitic Anemia and Transverse Mylitis. I never had anything before the flu shot . Just something to think about 🙂 Good Luck with your decision !

    • November 15, 2009 at 9:28 am

      Hi Kimberly,

      I also have CIDP now. This is the hardest decision I can remember. It’s only because of my asthma and other lung issues(that started with a collapsed lung at birth) is the reason I’m going back and forth.

      I have two doctor’s. One saying yes, and the other saying no, follow the CDC guidelines.

      I just don’t know yet!!


    • Anonymous
      November 17, 2009 at 11:19 pm

      I dont see any CDC guidelines for CIDP. The GBS guidelines in the documents they supply medical personnel says GBS patients can get it. I went ahead and got it since the proof that vaccines wont work for IVIG patients seems to be missing. I see no research data anywhere supporting it. I found one study of pediatric AIDS patients who receive IVIG also being administered the H1N1 vaccine and they still produced antibodies in better numbers than those who didnt receive IVIG but there are so many other things going on with that group I don’t considerate it relevant.

    • Anonymous
      November 26, 2009 at 11:20 am

      I am so scared to get the H1N1 vaccine. My Neuromuscular Specialist & Family Dr., both approved me getting the vaccine, since I get the seasonal flu shot every year. My GBS was caused by a viral upper respiratory infection. I KNOW I can’t go through this again. I had a relapse in February of this year and had steroids in my medicine cabinet & was able to stop the progressaion, but I just don’t know what do…………. Please Help!!:eek:

    • Anonymous
      November 27, 2009 at 11:29 pm

      So far so good here. Had a nasty cold I had to get over but other than that I have had no relapse issues. Im putting off my IVIG for a month just in case it would hamper the H1N1 vaccination’s effectiveness.
      I really wish there was more research out there about IVIG and vaccines.

    • Anonymous
      November 28, 2009 at 8:19 am

      [SIZE=”3″][COLOR=”Purple”]Good morning all.
      I got GBS from the FLU shot. I WILL NEVER TAKE THAT SHOT AGAIN. I keep seeing posts wanting others to make decisions for you, If you like to play with a LOADED GUN then do it. If you trust your doctor then take it, I am sadden that people enjoy playing games with their lives. I was in the health care industery. Over 95% of the staff never took the shot. You believe our goverment as they do have a reputation of LIEING.[/COLOR]
      If you enjoyed walking in the step of others with GBS /CIDP then be my guest (DO IT)I give thanks every day and will NEVER TAKE A FLU SHOT AGAIN,

    • November 28, 2009 at 10:32 am


      I don’t believe people want others to make decisions for them. They just want information. I did not get my GBS from a flu shot. Even though I have not had a flu shot in 14 years, I did this year because of lung issues and the H1n1.

      I have friends who work in hospitals and can’t believe how many people are hooked up on ventilators due to the H1n1.

      To tell people they are playing with a loaded gun is wrong. Each person has to make a personal choice due to their own health issues.

      After hearing first hand stories from friends who have battled the swine flu this year, I decided getting the shot was worth the risk for me.

      My daughter(who has asthma) got the shot two weeks ago. 500+ children have died this year. In a normal year approx 100 children die of the flu.

      I’m here to share my story and and let people know if the H1n1 shot was right FOR ME.


    • Anonymous
      November 29, 2009 at 10:57 pm

      [B]We are here to give the information that we have so people can make an informed decision on taking the flu vaccine or any other vaccine. It is always up to the individual person to make their own choice. My husband developed GBS/CIDP from the flu vaccine and this family doesn’t take the vaccine anymore. Next month my daughter-in-law will deliver her baby, her Dr wanted her to take the swine flu vaccine and she said absolutely no after seeing what it did to my husband. That was an informed decision after knowing the facts, that is all we can do give the facts to people.[/B]

    • November 30, 2009 at 1:39 pm

      I think every one need to take this decision for him self. I was told by my doctor that it was me that had the final over if I took the shot. I did take it and I think that was right for me. I have also diabet so it was bigg risk to have the swine flu for me.

    • Anonymous
      December 18, 2009 at 8:43 pm

      I finally just did it and got the H1N1 shot. I did NOT get GBS (2-’96) from a flu shot and get the flu shot every Fall and now I got the H1N1 shot. I have been following this thread….

      I also have asthma and had pneumonia in January and was sick in bed for over a month…what a mess. I do not want to do that again.

      I also do not ever want GBS again…. so it is a dead virus in the shot and I felt it was a chance I had to take.

      I am still tingling….(twinkling)…so what else is new…

      Good luck deciding…it is not easy, but decide what is best for YOU.

      God bless….. and may good health bless us all in the New Year!!

    • Anonymous
      December 26, 2009 at 8:59 am

      [B]Why I don’t trust the CDC:[/B]

      The Washington Post
      November 8, 2009

      [B]Editorial commentary:[/B]

      You’ve likely seen the images in the news, and perhaps even personally — long lines of people, including children and pregnant women, waiting to be the latest guinea pig to receive the swine flu vaccine.

      If you read only the headlines, you’re left with the impression that the biggest tragedy is not enough vaccine to go around, and may even shake your head that “high-risk” groups like children and people with asthma are being turned away.

      But then through all the fanfare come a few quiet, and sometimes not so quiet, voices of reason. Voices from doctors who are NOT recommending the swine flu vaccination for their patients because it is just too new and untested.

      Voices from health care workers who say they will also refuse the swine flu vaccine because of potential side effects and questions about the vaccine’s efficacy.

      And voices from mothers, fathers and pregnant women alike who have opted to not get the vaccine for themselves or their children because the risks appear to greatly outweigh any benefits.

      And it is this growing group of voices that is now starting to give the latest propaganda techniques used to frighten you into accepting a swine flu vaccine, a real run for their money!
      Why Are Doctors and Health Care Workers Refusing the Swine Flu Vaccine?

      In May of this year researchers distributed 810 questionnaires to public hospital workers. Less than half of the nearly 400 workers who returned the questionnaires intended to accept H1N1 vaccination.

      This is very telling, though not surprising considering the majority of health care workers also refuse the seasonal flu shot.

      The most common reason given for refusal, and rightfully so, was potential side effects, followed by questions about the vaccine’s efficacy.

      [B]Even among a focus group of 85 people, very few said they would get vaccinated in the event of a pandemic. Again, many noted the risks involved in using newly developed vaccines that are rushed to market as a primary concern. Many also believed, correctly I might add, that they could protect themselves through their own behavior, including:[/B]

      •Frequent handwashing
      •Staying away from crowded places and sick people
      •Eating well to maintain their immune system

      [B]Further, a revealing article written by Richard Gale, a former Senior Research Analyst in the biotechnology and genomic industries, and Dr. Gary Null, author of Vaccine Nation, stated:[/B]

      “Increasing numbers of scientists and doctors are issuing harsh criticisms of the government’s plan to vaccinate virtually the entire U.S. population with a poorly tested vaccine that is not only ineffective against swine flu, but could cripple and even kill many more people than it helps.”
      Fortunately, this site, and many others seeking to shed light on this deceptive manipulation of facts about the swine flu, are having a significant influence, and people are refusing to believe the government propaganda.

      [B]Vaccine safety advocates everywhere are beginning to make a serious dent. According to a recent Fox News poll, the majority of people in the U.S. now believe the swine flu vaccine may be deadlier than the actual virus.
      Weighing the Risks versus the Benefits[/B]

      Any time you opt for a medical procedure, including vaccination, you must decide whether the risks outweigh the benefits. There are always risks of any procedure, and in the case of the H1N1 vaccine, the risks are potentially steep.

      Senior neurologists sent a confidential letter to the UK government warning that the swine flu vaccine has been linked to a deadly nerve disease known as Guillain-Barre Syndrome (GBS). GBS attacks the lining of your nerves, causing paralysis and inability to breathe, and can be fatal.

      German lung specialist Wolfgang Wodarg has also come out about even more potential health risks associated with the swine flu vaccine. According to Dr. Wodarg, the swine flu vaccine contains animal cancer cells, and there’s no data indicating whether or not this may cause an allergic reaction when injected.

      It also raises questions about the risk of contracting cancer.

      [B]Likewise, Johannes Löwer, president of the Paul Ehrlich Institute, believes the side effects of the vaccine can be far worse than the actual swine flu virus, which typically causes only mild symptoms, requiring just a few days in bed.
      Swine Flu Cases are being Greatly Exaggerated[/B]

      Now that we’ve looked at the risks, so what are the benefits? When you consider how over-hyped the swine flu “pandemic” really is, not much.

      It amazes me that despite all the evidence to the contrary, health officials and mass media are still saying the swine flu could kill some 90,000 Americans — if we don’t all get vaccinated.

      There is simply NO evidence to support this outlandish projection. The evidence actually points to the exact opposite, that this season will have LESS deaths from flu than last year.

      The data is very clear that it’s a milder than normal virus. Only a few percent of all cases with the designation “swine flu” are actually the H1N1 virus. In the Southern Hemisphere, people got over the wave of the flu just fine, before the vaccine even became available.

      As of August 30, 2009, the CDC ceased testing and counting actual H1N1 virus infections. As of that date, any and all cases or deaths of people exhibiting “flu like symptoms” are automatically tallied as an “H1N1 case,” artificially driving up the perceived threat.

      The CDC’s public explanation is that they are convinced a pandemic is underway and, therefore, accurate monitoring is unnecessary because it’s so widespread, world-wide.

      However, as I’ll show you in just a moment, this is simply not true! Yes, the H1N1 virus has appeared world-wide, but it is not the CAUSE of most flu like illness and death. In fact, the H1N1 virus is a tiny player, causing very little trouble.

      CBS News, after conducting a three-month investigation into the swine flu statistics, uncovered a number of very sobering facts that clearly show this swine flu pandemic for the cruel hoax it really is.

      [B]What did they find? CBS reported:[/B]

      “The results reveal a pattern that surprised a number of health care professionals we consulted. The vast majority of cases were negative for H1N1 as well as seasonal flu, despite the fact that many states were specifically testing patients deemed to be most likely to have H1N1 flu, based on symptoms and risk factors, such as travel to Mexico.”
      According to the CBS News study, when you come down with chills, fever, cough, runny nose, malaise and all those other “flu-like” symptoms, the illness is likely caused by influenza at most, 17 percent of the time, and as little as 3 percent! The other 83 to 97 percent of the time it’s caused by other viruses or bacteria.

      So remember that not every illness that appears to be the flu actually is the flu. In fact, most of the time it’s not.

      Curiously, the CDC still advises those who were told they had 2009 H1N1 (and therefore should be immune to getting it again) to get vaccinated unless they had lab confirmation.
      Is the Real Source of the Swine Flu Related to Filthy Factory Farms?

      It is interesting to note that scientists working to understand the genetic makeup of the H1N1 virus have linked it to a virus behind a 1998 swine flu outbreak at a massive industrial pig farm in North Carolina.

      [B]The Raleigh News & Observer cited Raul Rabadan, a Columbia University scientist who’s studying the new virus’s genetics, who said:[/B]

      “This virus was found in pigs here in the United States. They were getting sick in 1998. It became a swine virus.

      It spread among pregnant sows in Newton Grove, N.C., causing them to abort their litters. The virus then spread to pigs in Texas, Iowa and Minnesota — putting epidemiologists on alert about the new viral strain and the potential for a human outbreak.”
      When North Carolina public health officials tested workers at the pig farm back in 1998, 10 percent of workers had developed antibodies to the virus, which means they had been infected but not become ill.

      If it’s true that this latest hysteria over swine flu can, in fact, be traced back to a factory farm, it raises a whole new set of issues that are being completely ignored by both government officials and the media.

      [B]As the Humane Society of the United States pointed out:[/B]

      “When thousands of pigs are overcrowded into cramped stalls and pens inside massive, unsanitary, warehouse-like sheds, it’s a veritable breeding ground for disease. As the former executive director of the Pew Commission on Industrial Animal Farm Production described, “Industrial farms are super-incubators for viruses.””
      And the people working at those farms can easily become a bridge for the viruses to reach the general population.

      So instead of waging a giant media campaign geared toward getting the entire U.S. population a swine flu vaccination, what public health officials and government should be doing is waging a war against agribusiness giants that are perpetuating this kind of unnatural and unhealthy form of food production.

      Natural methods, once again, will prove to be the answer here, and should be used to grow any food you buy as well as form the basis of your flu prevention lifestyle.

      [B]About the writer:[/B]

      Dr. Mercola is the founder of the world’s most visited natural health web site, Mercola.com. You can learn the hazardous side effects of OTC Remedies by getting a FREE copy of his latest special report The Dangers of Over the Counter Remedies by going to his to his Report Page. [B]END[/B]