Growing pains or CIDP?

I remember having pain in my legs and calves at night when I was a child, and it would be quite painful. It was like a deep ache. My mom would tell me to drink more milk. My husband (6’8″) had a lot of these too. 🙂 Sounds to me like it could be growing pains.

Kelly,

I am a mom too (2 and 4) so I can relate. I am very paranoid too. My son has had some medical issues, and I have to be hypervigilant. Good luck!

Jessica

Kelly,
As a child, I had terrible pains in the legs. My mom and family all said they were growing pains. Mom always gave me alcohol rubs and It did sooth them.
Hope it is nothing more serious with Emily.
Good luck
Shirley

Hi Kelly,
We get those predominantly in the hamstring area, occassionally in the calves. There has been a 3 inch growth spurt in the last 2 months. Growing pains or cidp? Who knows!

[QUOTE=Emily’s_mom]I know I said I was taking a break but I need advice…

Emily has been complaining of pains in her hips, front of her thighs, & calves. Sometimes she will scream because the pain is so intense. It even wakes her up in the middle of the night.

We were on our way to her neuro appointment today when the brake lights went out of my car – so we had to drive back home & reschedule for next week. (my husband is fixing the problem now…hopefully!)

She doesn’t seem to have any other CIDP symptoms & her eye seems to be ok.

It’s just so difficult to know!

Every time she has any pains it takes me back to before she was diagnosed when I was so desperate for answers. I knew something was wrong but I just kept getting told it was “growing pains”. Now whenever someone suggests growing pains I just shut down & don’t want to hear it.

Does anyone remember having growing pains or have kids who have had them? What were they like? Emily says it feels like her legs are going to explode. Can anyone relate CIDP symptoms to that?

Thanks.
Kelly[/QUOTE]
Hi Emily’s MOm

Growing pains ? No. Dont talk the medic who told you that again. See another one. They are just too eager to be dismissive.

Good luck

John

Hi Kelly,

Poor Emily.

Oh yes…I have been having pains in my legs. There’s one spot in my calf that feels like an intense stabbing shooting pain – it is that painful. I can’t do anything when it happens (can’t walk, move, anything – except yell from the pain)…I have to wait for it to subside – luckily it goes within a few minutes, though I can have it happen several times a day. I am also having a lot of stiffness in my legs, hips, knees – my muscles feel contracted all of the time. I seem to be having more pain, even though some of my other CIDP stuff has subsided. I thought (with me anyway) it may have had something to do with the fact that I have been doing more physically (because I can now) and my nerves/muscles were complaining!

It’s not growing pains with me – I’m 50. I can remember having leg pains sometimes at night as a child – but they were not as painful as what I experience now.

Kazza

I am not sure if would help her but it helps me.

I use a warm rice bag when my legs and feet are hurting me.

It helps me with the pain so I thought I would share.

Rhonda from Canada

Kelly,

Has Emily had a growing spurt lately? The only time my daughter complained of growing pains was when she went through a significant growth spurt. If not, then maybe it does need further consideration.

However, my daughter never screamed or cried from that, so I would definitely discuss it with her doctor. Do you keep a journal/record? I find it helps me a great deal when I go see my doctor. Just a suggestion …

I’m glad the motrin is helping. I hope Emily gets relief! Heat helps me, so Rhonda’s suggestion might help.

What a great mom you are Kelly – full marks !