Getting a Dr. to talk to?????

    • Anonymous
      November 28, 2007 at 9:04 am


      I had GBS when I was pregnant with my son. I now have a one year old and I am doing well. The thing is … I dont have a neurologist anymore and I am frustrated with who I can go to and ask questions?

      My family dr. is great but no expert on GBS. So if I want to talk to someone I need to be referred to a neurologist. I just want to call or email a Dr. and ask a few things. I dont thing it is worthy of an appointment.

      Like I am wondering if my son is more prone to get GBS since I had it while I was pregnant. And some other general questions about residuals, dental work etc.

      Anyone know of a place to talk to a neurologist? I am in Ontario Canada.

    • Anonymous
      November 28, 2007 at 10:02 pm

      There is a wealth of knowledge here if you would like to ask questions here. You might also be able to contact the office of your former neurologist and ask for the phone nurse or leave a request for answers to specific questions from your previous neurologist. Neurologists are often really busy, so the last may not work.

      Regarding the question if you son is predisposed to Guillain Barre because you were pregnant with him when you had it, the answer is no. Whereas GBS is rare, there are more cases of other immune mediated diseases that moms can get when pregnant and that are also not associated with an increased risk of the disease in the babies. So do not worry about this. The logical explanation is that the problem in Guillain Barre is that B cells make antibodies. These antibodies can cross the placenta and possibly affect the baby before birth or shortly after birth, but transferred antibody has a short time to stay in anyone’s body. It is a possibly shared manifestation of the disease, but is not the disease. So babies are okay because they do not get the cells misprogramed to make antibody that reacts against nerve cells. It is the antibody producing B cells that continue the disease.

      With Hope for cure of these illnesses (and health to our children).

    • Anonymous
      November 29, 2007 at 8:57 am

      Thanks for your reply.

      I am feeling much more relieved. I was doing some research on the immunizations and getting concerned that he may have a higher risk.

      I would rather get GBS a 100 times than for him to get it once.

      I see that most people go on to have normal pregnancies after so hopefully that will be the case when we decide to try again.

      Thanks again.