General Questions
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AnonymousJune 12, 2006 at 10:27 am
I was diagnosed with GBS in May 2006. I was in the hospital for about 2 1/2 weeks then in rehab for about 2 weeks where I had to relearn how to walk, dress myself and such. This has been the most difficult time in my life. I was wondering how does everyone else deal with this? I feel so tired all the time. Any ideas on how to help me get out of this funk I feel like Im in….:o
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AnonymousJune 12, 2006 at 10:37 am
hey friend,
welcome. sorry to hear ur havin a rough time. it ain’t easy, we all have good dayz and bad. Tell us about yourself, war u from, wat u do etc. This is a good place to hang and be creative. Lots of good peeps here. Read some an be sure to start posting more. Not only is it a help line its a place to be creative. Don’t mind me tho, I’m just the village idiot. if u have the time here is a link to my first post on here in some time. I was far away for a long while myself. (Link deleted by administration)A neighbor turned me on to Multiplayer Online Games.. MORPG’s they are called. I fer git wat that all stands for.. Great timewasters. I have played Star Wars, Everquest, World of Warcraft.
to name a few.God Bless
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AnonymousJune 12, 2006 at 2:37 pm
Greetings and welcome to the family. GBS is a difficult disease but hang in there and rest when you need it and you will get better. In the beginning I slept alot and tried to use my energy wisely. As your nerves regenerate the myelin, you will feel your endurance and strength improve. I will be at 3 years this November with CIDP and am doing quite well. Keep coming back here and ask questions, we are here to help and support you any way that we can. Take care.
Jerimy
[quote=LRutter]I was diagnosed with GBS in May 2006. I was in the hospital for about 2 1/2 weeks then in rehab for about 2 weeks where I had to relearn how to walk, dress myself and such. This has been the most difficult time in my life. I was wondering how does everyone else deal with this? I feel so tired all the time. Any ideas on how to help me get out of this funk I feel like Im in….:o[/quote]
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AnonymousJune 12, 2006 at 7:30 pm
Welcome, to the site. Hard to adjust to being tired… Sleeping more than normal did help me. Change of schedule and learn what I could do and when I needed to slow down is something I am still working at. Keep asking questions there are many experienced people here that can help you.
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