• Anonymous
      March 17, 2012 at 8:11 pm

      Hi, I have created a survey to learn more information about these illnesses @

      As I have already had over 100 completed in 4 days I have published some intital results @

      If you haven’t filled it in please do, it will run until March 2013.

      Thanks Drew

    • March 18, 2012 at 2:18 am

      that is great that you are doing this!!! Thank you!!! I noticed one thing interesting – in the what caused it colum you have blood transfusion as an option- All my issues started out after blood transfusion. I didn’t realize that is a known possible trigger?? Any info on that?? thanks again!!!

    • Anonymous
      April 5, 2012 at 5:31 pm

      Sorry for the late reply, but I was told by another sufferer that they thought they had potentially got the illness after a blood transfusion and when discussing it with my consultant he though it was possible. So I added it to my list to see. I will let you know how many others state this.