GBS Fatigue Study –

    • Anonymous
      June 19, 2006 at 9:38 pm

      Hi all:

      There is a GBS Fatigue Study going on. They need more participants.
      The first part is a questionaire. The second part is an EMG – NO NEEDLES!!!
      Just checking 4 nerves on ONE side of your body. YOU will need to come
      to the University of Minnesota for the second part. So if you live in
      Minnesota OR a neighboring state and are willing to participate, please
      Dr. Kevin Brown [email][/email]

      Dr. Brown is doing the study with Dr. Gareth Parry. Remember the research
      currently shows 85% of GBS’ers get back nerve and muscle function at 100%.
      The fact is: only 15% do and 85% have dibilitating fatigue. So please, if you
      are interested in making a difference, contact Dr. Brown.

      If I can answer any questions, feel free to leave me a message here.
      Of course it hurt… but honestly… NOT MUCH and then it was over!!

      If I can make a difference to anyone later on, I am happy to do it. It all
      took about an hour to complete the Neuro examine and EMG. Time well

      Blessings Maureen Boz

    • Anonymous
      June 19, 2006 at 10:12 pm

      Thanks Maureen I emailed him saying that I would be interested.


    • Anonymous
      June 20, 2006 at 10:32 am

      Thats interesting and Im sure will be a big help when the results come out. Pity they arent doing anything on post GBS as well.

    • Anonymous
      June 20, 2006 at 11:27 pm

      It sure helps with everyone who is willing to participate.

      Hopefully it will help as written research for any GBS’er
      of the future.

      Bless you……

      Maureen Boz

    • Anonymous
      June 22, 2006 at 2:43 pm

      I am looking forward to hearing the results of this study.

      Thanks for the info.

    • Anonymous
      June 26, 2006 at 3:47 pm

      Maureen, thanks for the info. I’ve emailed Dr. Brown and heard back today, so I’ll be participating in the study.

      Did I read a post that said you live in Hastings? If so, I’m in Burnsville, neighbor! 🙂 How long have you had GBS and how are you doing? I’m 9 months into it and hoping to walk on my own by the end of the summer.

      Again, thanks — be well!