GBS Fatigue Study –
AnonymousJune 19, 2006 at 9:38 pm
There is a GBS Fatigue Study going on. They need more participants.
The first part is a questionaire. The second part is an EMG – NO NEEDLES!!!
Just checking 4 nerves on ONE side of your body. YOU will need to come
to the University of Minnesota for the second part. So if you live in
Minnesota OR a neighboring state and are willing to participate, please
Dr. Kevin Brown [email]email@example.com[/email]
Dr. Brown is doing the study with Dr. Gareth Parry. Remember the research
currently shows 85% of GBS’ers get back nerve and muscle function at 100%.
The fact is: only 15% do and 85% have dibilitating fatigue. So please, if you
are interested in making a difference, contact Dr. Brown.
If I can answer any questions, feel free to leave me a message here.
Of course it hurt… but honestly… NOT MUCH and then it was over!!
If I can make a difference to anyone later on, I am happy to do it. It all
took about an hour to complete the Neuro examine and EMG. Time well
Blessings Maureen Boz
AnonymousJune 26, 2006 at 3:47 pm
Maureen, thanks for the info. I’ve emailed Dr. Brown and heard back today, so I’ll be participating in the study.
Did I read a post that said you live in Hastings? If so, I’m in Burnsville, neighbor! 🙂 How long have you had GBS and how are you doing? I’m 9 months into it and hoping to walk on my own by the end of the summer.
Again, thanks — be well!
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