feeling full all the time

Hi NebraskaFan

In the begining, I was fine and had no contispation…years later, I noticed the
same feeling…full…even if I was hungry and hadn’t eaten.

I use a Probiotic pill, bought from a good nutrition store, with well over seven
billion live flora in it. Within about an hour, I was fine. What it does, is put
live “good bacteria” within your intestines, to help regulate your food absorp-
tion…it also helps to keep the intestinal muscles moving. You don’t have
any gas, bloating, or feeling full. When we take multiple medicines, be it OTC
or antibiotics, steroids, they mess up the functioning of the intestines in
some people.

Yogurt and special milks do not have enough of these live flora to work well
enough…if the driver of the truck, leaves the dolly in the sun, for just a few
minutes, hundreds die and they become ineffective.

The nutrition vitamin store I use, is Swanson Health…I order tons from them.
I’m currently taking IgG supplements, which are better than colostrum in
aiding my immune system. They seem to extend my time between IVIG’s.

Good Luck…

Miami Girl

Hi Nebraskafan,

A lot of Miami Girl’s post makes sense – there are so many things that can have an effect on digestion. Drugs, in particular, can destroy the balance of good intestinal bacteria that is so necessary for healthy absorbtion of nutrients and elmination.

On the other hand, you described the experience my niece had before she was diagnosed with celiac disease. I was worried about her for a while – each time we sat down to eat a family meal together, she would only take a few bites, and then was too full to eat. It was clear that she was very uncomfortable with her body – (not that she was trying not to eat for fear of gaining weight). She always felt full, bloated, and started having bowel problems. Finally, it was discovered when she went to the doctor with a bowel blockage. These are some of the common symptoms associated with celiac disease. Once gluten was eliminated from her diet, she felt much better.

I am not suggesting completely altering your normal diet – just to be aware – in case the situation continues or gets worse. A doctor can perform tests that can help to make a diagnosis. Many people aren’t aware that celiac is also an autoimmune illness.

Hopefully your situation is just temporary and you’ll be back to normal soon.
Best wishes,
cd

N,
You may want to mention this symptom to your neurologist because it may be a symptom of the CIDP. I just recently read something about that feeling of “fullness” in reference to neuropathy. It’s worth mentioning I think. Let us know what you learn.
Linda

I am having the same trouble. I thought it was from the constipation, but that cleared and I still feel very full. I also have no appetite.

I told my neuro about it, and he got me an appointment with my GI within a week. I went to see her today.

She has already done 2 endoscopys on me. For ulcers, then my esophagus was giving me trouble and she had to put a balloon in so I could get food and drink to go down, and now this trouble.

She said when people have things like CIDP and it is effecting the intestines, they don’t work right. They then can develope a yeast infection in the intestinal track. So that is what she thinks it is in my case.

So she gave me a script for it, and I am to call in about 2 weeks to let her know how I am doing. If I am no better, she will do the scope again. But she believes this will clear it up.

It does make sense with what others here have said too. I have already gotten the infection in my mouth when I was in the hospital and had surgery (Appendix burst and I didn’t know, and I had a belly full of gang green.)

I hope you get relief from it soon as it is awfully uncomfortable.

Blu

[QUOTE=Miami Girl]Hi NebraskaFan

In the begining, I was fine and had no contispation…years later, I noticed the
same feeling…full…even if I was hungry and hadn’t eaten.

I use a Probiotic pill, bought from a good nutrition store, with well over seven
billion live flora in it. Within about an hour, I was fine. What it does, is put
live “good bacteria” within your intestines, to help regulate your food absorp-
tion…it also helps to keep the intestinal muscles moving. You don’t have
any gas, bloating, or feeling full. When we take multiple medicines, be it OTC
or antibiotics, steroids, they mess up the functioning of the intestines in
some people.

Yogurt and special milks do not have enough of these live flora to work well
enough…if the driver of the truck, leaves the dolly in the sun, for just a few
minutes, hundreds die and they become ineffective.

The nutrition vitamin store I use, is Swanson Health…I order tons from them.
I’m currently taking IgG supplements, which are better than colostrum in
aiding my immune system. They seem to extend my time between IVIG’s.

Good Luck…M.G.I was curious about IgGsupplements.
Can you give any info?I like Swanson products.THANKS
How many milligrams are necessary to make a difference?
Miami Girl[/QUOTE]Nomore room.Joe Flaherty

Hi Joe

The IgG immunoglobulin capsules come as 500mg. each…I take two in the
morning and two at night. Swanson’s sells them for 11.99, I believe.

Lol…I also take Vitamin E, Ip Inisotol, Vitamin C, Calcium with Vitamin D…

I did a lot of research on colostrum, this product is better than that…they
also say so on the bottle…

Basically, I’m using a lot of supplements for the immune system because I
really believe that nutrition and supplements are key to this disease…I went
through college on tunafish, Tab and friday night pizzas…so I’m trying to
make up for it.

I have found that the IgG supplements are doing something because I’m
postponing my IVIG’s further apart. I’m in the motor damaged part of CIDP,
sensory is not the problem…I have axonal damage in the right foot totally,
but weakness is also in the left…my fingers are bent towards my palms…
but, I have no pain at all.

My Asian nutrition books, my holistic doctor said to buy, list candida as the
primary cause of most diseases…getting that under control will basically
balance out your system…the emphasis on the liver and kidneys. Everyone
has it in their bodies, but once it gets infiltrated to every portion, the immune
system can’t function properly, thus, things go array.

I also use B12 and a B complex pill…those I take twice daily…1000mg.
I also find that my standing short periods of time is stronger, than before…
less hypertension in the knees, less shakyness, firmer, like I used to be.

Some will think it’s crazy, but, I know I’m onto something…if we didn’t have
a pre-bacterial or pre-viral complication before the onset, normally our body
would fight it, but without a strong balanced immune system, we whacked
out and attacked ourselves…we weren’t strong enough to fight it…
Try the IgG Joe, see if you don’t feel the difference..

Miami Girl

Have you considered gastroparesis?

“Gastroparesis is caused when the vagus nerve, which controls the movement of food through the digestive tract, is damaged or stops working. When this happens, the movement of food is slowed down or stopped.

The vagus nerve becomes damaged in persons with diabetes when blood glucose (sugar) levels remain high over a long period of time.

Other causes of gastroparesis include the following:

anorexia nervosa
surgery on the stomach or vagus nerve
postviral syndromes
certain medications, particularly those that slow contractions in the intestine
smooth muscle disorders, such as amyloidosis and scleroderma
diseases of the nervous system, such as abdominal migraine and Parkinson’s disease
metabolic disorders, including hypothyroidism

Hi Nebfan, did you begin to wonder about our Huskers Sat??? Scarey I forget where you live–out west maybe. Anyway I have been having an awful time since dx May 06, but suffered from 8/05, just never went to Dr. Now my Dr. is gone from Yankton clinic and I have been bouncing around. Finally a Neuro started coming here from Dakota Dunes on Weds. She did the emg and all the tests AGAIN (other Dr.s I tried did them also)> She then ordered a nerve biopsy
GENE WAS RIGHT–he said not to do it.
Well the Neurosurgeon talked me into it and now I have a very ugly slash in my leg as well as an infection. Went back for follow up and he gave me anitibiotics, he said the results were in, but I had to discuss them with my Neurologist, but they did confirm CIDP (which I knew I had). Then I find out this weekend the Neuro is gone until Oct 4th. I have not had IVIG since May. Oh yes like you I have also had zillions of blood tests and a MRI (again).
I am at a loss as to what to do for a Dr. to help with CIDP in this area, and sounds like you have the same problem. I hate to find a different Dr. who will want to do the tests all over again. There are numerous Neuros in the DD clinic and I am trying to get into one of them, but no call back yet. I am just so upset, dont know what to do……should have listened to the folks on here who said no to biopsy Take care Regina

Hi Regina

It sounds like you got positive confirmation of CIDP, so why was the biopsy a mistake, other than gettng an infection? My scar was noticable at first, but it is fading. Its been 9 months since my biopsy.

Helen

eta Autonomic nerves are part of your peripheral nervous system, so it makes sense that gastroparesis must be somewhat common to CIDP. Many on this board – myself inclouded, have optical nerve problems, another peripheral system.

Just a quick note – my neuro at Hopkins told me (and the cluster of students around him) that “your EMG is mostly normal” and I said “so then why is my leg numb?” he said “the nerves we tested are OK but there is no way for us to test all of your nerves.” That makes sense to me and I don’t know that I want to contemplate how they would test my intestinal nerves.

Nonetheless I do believe that the “low motility” symptoms go along with the other autonomic symptoms I have. I use the food processor, drink lots of water, try not to eat much meat as that tends to take a long time to digest, and if I am able to walk I try to take a walk each day or do some other type of exercise that uses my abdominal muscles even if it’s just lifting my legs in bed. Lack of exercise contributes to constipation as do dehydrating drinks, rice etc.

It’s something to mention to your doc. Just because you may not have obvious autonomic symptoms like erratic blood pressure doesn’t mean you don’t have other symptoms less obvious. After all, not EVERY nerve in your body was attacked in the same way at the same time to the same degree was it? Parts of my legs remained able to feel touch, parts still remain numb. Some of my autonomic symptoms have abated, others have not. That’s the fun thing about neuropathies – they always keep us guessing huh?

Julie

[QUOTE=Miami Girl]Hi Joe

The IgG immunoglobulin capsules come as 500mg. each…I take two in the
morning and two at night. Swanson’s sells them for 11.99, I believe.

Lol…I also take Vitamin E, Ip Inisotol, Vitamin C, Calcium with Vitamin D…

I did a lot of research on colostrum, this product is better than that…they
also say so on the bottle…

Basically, I’m using a lot of supplements for the immune system because I
really believe that nutrition and supplements are key to this disease…I went
through college on tunafish, Tab and friday night pizzas…so I’m trying to
make up for it.

I have found that the IgG supplements are doing something because I’m
postponing my IVIG’s further apart. I’m in the motor damaged part of CIDP,
sensory is not the problem…I have axonal damage in the right foot totally,
but weakness is also in the left…my fingers are bent towards my palms…
but, I have no pain at all.

My Asian nutrition books, my holistic doctor said to buy, list candida as the
primary cause of most diseases…getting that under control will basically
balance out your system…the emphasis on the liver and kidneys. Everyone
has it in their bodies, but once it gets infiltrated to every portion, the immune
system can’t function properly, thus, things go array.

I also use B12 and a B complex pill…those I take twice daily…1000mg.
I also find that my standing short periods of time is stronger, than before…
less hypertension in the knees, less shakyness, firmer, like I used to be.

Some will think it’s crazy, but, I know I’m onto something…if we didn’t have
a pre-bacterial or pre-viral complication before the onset, normally our body
would fight it, but without a strong balanced immune system, we whacked
out and attacked ourselves…we weren’t strong enough to fight it…
Try the IgG Joe, see if you don’t feel the difference..

Miami Girl[/QUOTE

[QUOTE=Miami Girl]Hi Joe

The IgG immunoglobulin capsules come as 500mg. each…I take two in the
morning and two at night. Swanson’s sells them for 11.99, I believe.

Lol…I also take Vitamin E, Ip Inisotol, Vitamin C, Calcium with Vitamin D…

I did a lot of research on colostrum, this product is better than that…they
also say so on the bottle…

Basically, I’m using a lot of supplements for the immune system because I
really believe that nutrition and supplements are key to this disease…I went
through college on tunafish, Tab and friday night pizzas…so I’m trying to
make up for it.

I have found that the IgG supplements are doing something because I’m
postponing my IVIG’s further apart. I’m in the motor damaged part of CIDP,
sensory is not the problem…I have axonal damage in the right foot totally,
but weakness is also in the left…my fingers are bent towards my palms…
but, I have no pain at all.

My Asian nutrition books, my holistic doctor said to buy, list candida as the
primary cause of most diseases…getting that under control will basically
balance out your system…the emphasis on the liver and kidneys. Everyone
has it in their bodies, but once it gets infiltrated to every portion, the immune
system can’t function properly, thus, things go array.

I also use B12 and a B complex pill…those I take twice daily…1000mg.
I also find that my standing short periods of time is stronger, than before…
less hypertension in the knees, less shakyness, firmer, like I used to be.

Some will think it’s crazy, but, I know I’m onto something…if we didn’t have
a pre-bacterial or pre-viral complication before the onset, normally our body
would fight it, but without a strong balanced immune system, we whacked
out and attacked ourselves…we weren’t strong enough to fight it…
Try the IgG Joe, see if you don’t feel the difference..

Miami Girl[/QUOTE]
M.G.Thank You for taking the time to reply to my question. Iwill try the product.

The fullness also could be from the stomach not empting out properly. I had this problem about 6 years ago and looked like a skeleton before they found out what it was. They put me on a table that makes the muscles in your stomach contract more. The GI doctor told me that was another residual of the GBS/MF.