Facial weakness

hipaula,

your facial weakness is within the gbs norn. no one knows how long nor to what degree any one gbser will recover. rest is important. take care. be well.

gene gbs 8-99
in numbers there is strength

hi paula. i still have facial weakness as well as numbness in my mouth, tounge, throat, gums, etc. and i was diagnosed in nov. 2001. it has affected my tastebuds a bit too. (not my eating, unfortunately), but i’ve learned to live with it. this is normal. it’s annoying, but it is normal. stay well.
deb

Welcome. I was diagnosed with GBS in last week of May, 2005, just three months later of yours. I did have the weakness of face. But due to electric stimulation, the face become as it was. I was given elec. stimulation for two weeks; about 20/25 minutes per day.

Pl let us know whether any such type of electronic or electric stimulation has been applied to you by PT? Or what the medication you had taken for the same?

Bye Bye, take care.

Those darn facial nerves are tough to recover. It took a year before my left eye lid decided to work, and my lower left lip is still out, post GBS 10 years. They say it does not help medically, but I use a vibrator on my face- it feels good- and I do it because who knows what tiny muscles are atrophying due to non-use…. let’s keep those buggars working regardless, I say!

I noticed a decrease in sensitivity on the left side of my face, as if someone drew a line directly down the middle. It seems the left side is West Germany and the right side is East Germany. My smart facial cells all want to live in the East 🙂

paula, i was dx in feb. 05 and also had electric stimulation while in pt. it was actually the speech therapist that did it and it really helped then. i could still see that my face still fell around the eyes, corner of mouth and around the jaw line. i have now been getting acupuncture for about four weeks and she did do this to help the facial muscles. i can see a difference but some of my friends say they can not tell but i put the make up on it every day so i can tell the results. i am happier with how it looks now than i have been for 2 years. dont know how it would work on others tho. i guess it is trial and error as it is with all the things that go with gbs. i also had miller fisher variant. even with the acupuncture it is a slow process and you cant always tell after a treatment if it will help for a day or so. so good luck
barbara:D

Thanks Paula

By the grace of God, my case was not so bad becaz just within one/two days, I was diagnosed as suffer of GBS and my Doc injected IVIG (one dose of continuous 6 bottles, each having 5 gms of ivig in 100ml fluid, another dose after 8 hours, in all three doses i.e. total 18 bottles) which helped to stop the progression of GBS. I stayed in hospital under observation for 1 week. I never had the problem of walking, Once I was stand on my feet I was able to walk independently. My problem was to stand up from sitting position and vice versa. I was not able to hold anything in my hands.

After returning home, two days later, my face became victim of paralysis, right side of face was affected and closing of my eye lid was also the problem. Immediately my PT started Electric stimulation which last for 10/15 days @ 20/25 minutes per day, along with 35/40 minutes light exercises.

Gradually face became as it was. I recovered fully within one & half month. I have no problem in day to day routine work, except some residuals like tremors in hand; early over exertion and tiredness; need to take more slip etc. etc. I do not take any medicine since last one year or so.

As far as you are concerned, after 19 months, Doc/PT expert can tell you more about it.

I would like to narrate here the story of one of my colleagues, (and is residing very near to me in our colony; aged around 30 years) was also down with GBS in October, 2006, who had the same facial problem and the same PT had used elec stimulations. His condition was worst than me bcaz he was paralyzed below waist. Elec.stimulation was applied to his both legs first which were badly affected and thereafter to his face. His recovery period was two months. Nowadays he is also very normal. I therefore feel you should seek the advise of an expert PT again in this regard.

Bye Bye take care.

paula, yes she does put the needles in my face. she has worked on the paralasis and on my sinuses. she also has worked on my feet and legs, hands and arms, and stomach and back. in other words she works all over the body depending on what she sees i need that day. it really doesnt hurt like i thought it might and i have seen progress. good luck,barbara