Drs in Massachusetts

    • Anonymous
      August 27, 2009 at 11:21 am

      Help! Trying to find a neuro in Massachusetts. Switched to a new one from the old and it’s like going from bad to worse!!!!


    • Anonymous
      August 27, 2009 at 10:55 pm

      Hi Dawn,
      It would help if you told us where in Massachusetts. If you’re anywhere near Boston, Dr. Gorson (may not have name right) from St. Elizabeth’s Hospital has spoken at our symposiums and I was impressed by his knowledge.

    • Anonymous
      August 28, 2009 at 6:22 am

      hi dawn,

      coincidentally, i just received the gbs/cidp brochure from the organization that supports this forum. these are contacts in specific areas– the information for Massachusetts is as follows:

      Massachusetts (Boston)
      Miss Barbara Kuzmitski
      6 Essex Road, Unit #16
      Ipswich, MA 01938
      (978) 356-3819

      Ms. Rosemary Morrissey
      119 Marengo Park
      Springfield, MA 01108
      (413) 736-7686

      Massachusetts (Cape Cod)
      R. Donald Biron
      68 Mates Way
      Brewster, MA 02631
      (508) 896_7823

      but like liz mentioned, tell everyone what part of Massachusetts as locals may have better information and or experience.

      good luck 😉

    • Anonymous
      August 28, 2009 at 7:51 am

      Liz, thanks for the info. I remember someone mentioning that he was on the board for the foundation when I first joined the forum, but you just reminded me of that.

      Alice, unfortunately the chapters in this state are not very active or accomodating. I did hear back from one chapter last fall and was told they were holding a spring meeting, but never heard back.

      Thank you both for responding

    • Anonymous
      August 28, 2009 at 7:57 am

      I was traveling to Beth Israel, but was not happy being a disease and not a person with a disease. Plus the dr didn’t believe in any supporting alternative medicine.

      I switched to UMASS in Worcester, and these past two weeks have been hell with getting in, and then getting scheduled for an IVIG one day treatment, which I need NOW, but have to wait a week for………..I am relapsing a bit, and the last time this happened, it only took four days to end up not being able to turn over in my bed! I had a touch of a virus a couple weeks ago after being back to 100%, and being down to 3 mg of Pred. It’s upsetting, but I also have to blame myself since I have been thinking I am normal! Have been slacking on my herbs and supplements, eating regular food as oppossed to the anti inflammatory diet I was dilegent about, and working too much………and the heat out here has been horrendous, and I work outside in it…………..SO, my own damn fault that I’m relapsing! And I’ve learned my lesson………….maybe….lol


    • Anonymous
      August 28, 2009 at 9:41 pm

      I see Dr. Anthony Amato at Brigham and Women’s Hospital in Boston. I do not know his stand on alternative medicine, but he is very knowledgeable, capable, and I would recommend him to anyone. Good luck.

    • Anonymous
      August 29, 2009 at 10:13 am

      My husband and I (he’s the sick one) are headed to Braintree MA to see Dr. Patrick Madden on Sept 8th. We have been to several neurologists/neuromuscular types here in Central PA (unsuccessfully), and have decided to hit the Boston area.

      Dr. Madden was recommended to us by someone with CIDP who also struggled for some time to get a Dx. She cannot say enough good things about him.

      My boss had/has transverse myelitis. After many unfruitful visits with various neurologists, he landed at Mass General and says almost all of the neuros there were great.

      he also mentioned that he saw a MGH physiatrist who brought in both allopathic/Western AND alternative pain management therapies such as acupuncture. If you would like, I can get actual MD names from him.

    • Anonymous
      August 30, 2009 at 12:01 pm

      Thanks Gary and Natalie

      I will check out those neuros.

      Natalie, sorry to hear you have to travel so far. Good luck with the appt.