Does GBS affect Organ functions?

    • Anonymous
      May 6, 2008 at 11:12 am

      I was wondering does GBS affect organ function? I was paralized and my trunk was the worst affected. My stomach and other parts from the waiste up feel bad and hurt. I sometimes hurt in my stomach really bad. I am going to the Dr. today to get it checked out. I think it might be gol-badder. Anyone else have these problems?

    • Anonymous
      May 6, 2008 at 12:06 pm

      [B][FONT=Palatino Linotype][SIZE=3]This is what happened to my wife, in 2000 she kpet getting sick at her stomach vomitting. One hospital tried 4 times & couldn’t find out what the cause was, shortly after being admitted to a hospital in Louisville Ky. The tests they ran showed a diseased gall bladder that was 3 to 4 times larger than it should have been. The next day they did the surgery on here & removed her gall bladder. Then within 48 hrs the GBS set in on her & literally paralyzed her from the neck down. That’s when her 7 yr battle began & she lost all control of her kidneys, during that time period. [/SIZE][/FONT][/B]

    • May 6, 2008 at 4:02 pm

      Hi Kinney,
      Don’t forget, everyone is different, so what Kevin feels, you feel, or Debra felt is all different. One persons outcome certainly is different from anothers.

      I cannot speak about what you are feeling, or even know if it is similar to Kevin’s GI issues, but I can tell you what he experiences. It started with a tingling feeining in his ***** when he urinated, he also used to say it would feel like he still had to go even after he thought he was done. So he did still have some control and feeling, just not like it used to be. He also had a VERY difficult time with constipation, and that lasted for about three months after ivig. The urinary problem cleared up in a couple of weeks after ivig.
      Currently, 20 months out, he is symptom free from an autonomic perspective. Good luck!
      Dawn Kevies mom

    • Anonymous
      May 7, 2008 at 4:44 am

      I still have plenty of autonomic issues… bladder, stomach motility, kidneys, intestines… generally things just don’t work as well as they used to – sometimes I go all day without peeing a single drop, other days things are relatively normal. I’m sure it will get better with time. :rolleyes:

    • Anonymous
      May 8, 2008 at 12:29 am

      Yes ~ the nerves are the main communication system for the entire body, so damage done anywhere can lead to compromise anywhere. Allopathic medicine use to tell us that there was an absolute “demarcation” line between peripheral and central nervous systems but now the current thought is that the lines are “blurred”. I think it’s taken a lot of anecdotal evidence to help them learn otherwise.

      I, too, had a horribly diseased gallbladder but no one knew how/why. And even tho it has been removed I still get spasms in that area that are excruciating at times. Of course, when I am over-tired the residuals rear their ugly head 😮 I will always here Gene saying “rest, rest, rest!”. Thank you , dear Friend.