Does anyone else out there with CIDP experience this?

    • Anonymous
      July 17, 2009 at 1:55 pm

      :confused: I have noticed as my CIDP progresses that when one I tip my head backwards (and not even extremely back) I start getting what I can only describe as restless energy running across my shoulder blades and down my arms. Something like restless leg syndrome (which they diagnosed me with early on and which went away as the CIDP cause my legs to become more numb) It seems as if this symptom is getting worse — and seems to be happening even when I just sit up straight. It is very uncomfortable — not painful but irritating. It goes away when I leaned forward and relax using my biofeedback techniques. But my posture is suffering because of this. Anyone have input on this? Maggie

    • Anonymous
      July 18, 2009 at 2:23 am

      Hi Maggie. Do you have spinal displacement or alignment problems? I get that when my c spine is misaligned-quite alot. Or do you have inflammation in your c spine area? I would bring it to the attention of your dr. Take care.