Doctors in Ohio
AnonymousAugust 12, 2013 at 2:07 pm
I am posting for my sister in law who was diagnosed with GBS. She is needing a different doctor. Her current doctor doesn’t have any compassion for her condition, has made her cry. Now mind you I don’t know the circumstances of the incidents. She does have mental issues also. She is wanting a new doctor who will be a little more caring. I also have another question while I’m posting 🙂 Is there pain with GBS? We took her to an ER because of severe pain and the ER doctor told her with GBS there isn’t pain and she didn’t need anything for pain because she just has chronic pain syndrome. I told him I had been doing research about GBS and was under the impression there WAS pain. The doctor came back in the room a few minutes later and said he had talked to a neurologist and the neurologist told him no people with GBS do not have pain. We are located in the Ohio. If anyone knows of a doctor please give us any suggestions. Thank you!!!
August 13, 2013 at 12:23 am
There certainly can be severe pain with GBS. Parry and Steinberg wrote:
“Pain is an integral part of the disease, but sometimes it is not given sufficient attention. … It is frequently underappreciated and undertreated by doctors, ….”
In my case, it was mainly leg pain. Even after getting off pain meds during recovery, I would experience severe pain if someone moved my legs the wrong way.
My advice is to get a copy of Parry and Steinberg and a neurologist who understands the disease.
August 15, 2013 at 9:01 pm
There are eight doctors specializing in GBS at the Cleveland Clinic – Neuromuscular Center. It seems to me that this concentration of specialists at the same location would provide good treatment and advice for your family. Three of them specialize in both GBS & CIDP. I would start with Dr Steven Shook, his phone 216 444 5559.
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