decrease in sexual desire with CIDP

    • Anonymous
      April 20, 2010 at 6:22 pm

      I have had CIDP for 3 years. I was one of the lucky ones in that my neuro diagnosed quickly and I first did prednizone and then went to plasmapheresis which i had to do twice in 6 months. I have been in remission for 16 months for which I am very thankful. I am on imuran daily and prednizone 5mg every other day but all of my sexual desire has gone. I have been engaged for two years and am afraid to get married because I have this issue. He has been wonderful but I know it is very frustrating to him. Has anyone experienced this with CIDP? or maybe with Imuran and prednizone as treatment

    • Anonymous
      April 23, 2010 at 3:00 pm

      I took prednisone for years for my asthma and this was a real side effect. My doc told me long term pred. users can suffer this side effect. After I got rid of the major cause for my stress and asthma (divorce after 28 years, and huge support from Alnon) I stopped the prednisone and my life is back on track – totally.

      Good Luck! 🙂

    • Anonymous
      April 23, 2010 at 3:26 pm


      I think that the illness and the meds can definitely take a toll. Perhaps you can talk to your ob-g.

      Sounds like you have a good guy so definitely a keeper!

    • Anonymous
      April 24, 2010 at 6:10 pm

      I don’t think it is the CIDP as much as it is the meds. I went through a severe decrease in testosterone levels mainly due to meds. Neurontin, prednisone, and of course any of the “mood” drugs” all can inhibit sexual desire, response, and performance.

      On the positive side, when I stopped taking the meds, the sexual side effects went away. I have tried different meds. I no longer use neurontin for neuropathic pain, or any of the seratonin type drugs for headache relief. I still take morphine for pain management, and that has its own side effects, but you can’t get away from them all.

      Good luck, and don’t be afraid to talk with your Doc about the side effects of these meds.