It all started in September while I was pregnant. My mouth started to go numb followed by my fingertips then my toes and it just kept going. I was almost completly imobile and on puree food. They put me on prednizone in December which really did not help. In January they did 5 treatments of Plasma which helped a lot. After 4 weeks started to get worse again so in March they gave me 3 plasma enduced my labour and gave me 2 more after.
Happy to say the baby was fine. They waited for me to start declining again and tried IVIG which did not work. Now I am getting plasma again hoping it will help.
My quest is to find other with the protein at a young age. I am being told it is rare for someone my age.