Cidp & Diabetes

I don’t have CIDP, but GBS since May 2005. I was Type 2 Diabetic before the GBS. I was diet controlled, then got GBS, was on insulin shots during hospital stay and for a month after. Then on Metformin for a year. Now back to being diet controlled. I know mine wasn’t from the GBS because it was pre-existing. But they are both auto-immune.

Tonya Correll

My husband has CIDP and Type II Diabetes. He was finally diagnosed in 2007, although, he has been suffering since 2003. It just took a long time for us to find a Neurologist that was willing to keep looking until a diagnosis was found.

We had been able to control his diabetes with diet only until he began taking IvIG treatments. During and following these treatments, it becomes a roller coaster ride trying to get his blood sugars back under control. I just read recently about the sugars in this treatment so we will be discussing this with our Neurologist.

I am new to this forum and would love to hear how others are coping with this challenge.

Happy New Year to all.
Sharonhh

First of all, make sure your ivig is not sucrose based!!!! I just read something the other day that cidp actually is higher in frequency than we think because most people w/diabetes go on to be dx w/ cidp. Both immune related of course, both w/ peripheral neuropathy. Life is so interesting and intertwined. Good luck to you!
Dawn Kevies mom

Since I also have diabetes II, I researched the different brands of IVIG a couple of years ago when I first started infusions. I found that Gamunex was the only one without sugar. One time I had to settle for Gamuguard instead but the nurse assured me that the sugar content was low and nothing to worry about.

I’m surprised that they would flush with dextrose. I was told that they were always using a saline solution. If the line was left in for another day, they used heparin as an anti-coagulation agent..

I’m on monthly ivig and they always flush with normal saline. Then prior to going home a heparin flush. we attempt to save the needle for the three days.

I am also type2 diabetic and have CIDP. My neurologist suggested I do my best to control theDiabetes and see what happens with the CIDP. so far so good !