Can GBS be reason for Epilepsy

i wish i could help you with this one but i have no idea. i know lots of people have this electricity feeling throughout their bodies that feels like seizures. i ended up not having gbs but i had a ton of the symptoms. started with fatigue and what seemed like seizures. i knew what was happening tho but couldnt make it stop or control my body. tested me once but no seizure activity during the test. my problem ended up being a bad medicine reaction. when i stopped the med, it took a month for the eletricity to stop. i had been on that med for over a year.

really just popped in to say hi and wish you luck. there are tons of good people around here who may have an answer for you. They will answer your thread if they do.

Jane, I just want to say hi. I am sorry I can’t help you with this as I have no experience of seizures related to GBS. I haven’t read anything on here either that pertains to it although if you do a search you may find some old posts. I hope things work our for you. I will keep you in my prayers. You appear to have a very postive attitude and that will go a long way in supporting Reinardt.

Good luck in this journey.

Hi Jane,

I would have to agree with your neurologist that it doesn’t have anything to do with the GBS. It is so easy for all of us to assume things go along with our disease, but as I have recently learned, I need to make sure with my physician. Plus seizures are usually within the central nervous system and GBS is peripheral for the most part. The good news it is controlled nicely with medication. Good luck to you…

Ok..don’t hold me to this, but it seems that i remember somewhere along the line reading that going off of neurontin or similar medications can cause seizures. You may want to look at some of his medications and see if there is anything about that.

I dont know if i am out of line or not, but im going to tell you this anyway. It has nothing to do with GBS. Please, forgive me if i should have kept this to myself, but i dont want anyone to go through what my son went through.

There is a drug called Lamictal that is used to treat seizures. It is a good drug and works well but has side effects that are rare but horrible. It is a rare reaction called erythema multiforme and in its worst form, it is called Stevens Johnson syndrome. If your doc recommends this, talk to him about this reaction and be sure you make an educated decision about whether to use Lamictal or not. The reaction is listed as “a rash” but it is so much more than that. Sorry, I dont mean to scare you or give negative press about the drug, but the reaction is just that bad that i feel i have to tell you about it. There are several law suits related to this drug (i chose not to be part of that) and many doctors refuse to prescribe it. Others have told me that they will take a patient off it when they become their doctor.

Again, sorry if ive added any more stress to your situation. Im sincerely just trying to look out for you. Hopefully its not even as issue Good luck with all that is on your plate. I’ll be thinking about you, sending blessing your way;)

Hi! Not sure about this question due to not having GBS but I think I would let the doctors check him further to see if something else is going on. Maybe something metabolic. B-12 can cause seizures if not absorbing. So many other things too! Wishing you my best and hope you find answers!

good lcuk to you, jane! do know how to post a pic of your son? we love to see the little guy!!!

Jane! He’s a sweetheart. Mr. Muscles…

Jane dear,

Reinardt is handsome,
my prayer for him is he grows out of the delibitating condition.

HAPPY BIRTHDAY, REINARDT.
Pallas,