Burning pain in feet
May 8, 2007 at 10:45 am
sorry no info
AnonymousMay 8, 2007 at 12:27 pm
When my feet would burn and itch, it was always a symptom to get more rest. Remember, I do not have aidp or cidp, just regular GBS residuals. Someone on this forum has mentioned some prescription ointment for a pharmacist to make.
I’ve got to share again, that with me recently taking some good vitamins especially with B12, my symptoms in my feet are greatly reduced.
Good luck on finding your answers – you are at the right place!
AnonymousMay 8, 2007 at 12:38 pm
i get the burning feet/ they feel like I am standing in hot sand or water and cant get out. I get this off and on and more when I start to relapse. and I dont really have any great cures for my feet. but this is a symptom of my CIDP. best wishes to you and hope you can find more out soon.
May 8, 2007 at 2:20 pm
Caryn, that is just it, there were no tests. This is why I question the explanation and am seeking another opinion. Furthermore, if his first ncv/emg as well as his second (5 1/2 months post dx and 61/2 months after the first) show a block, I do not understand the explanation of “inflamation” of the top of the myelin. Also, there was no change for the worse in the second ncv/emg which I might add was 5 1/2 months without ivig. With no obvious progression, and with out the aid of ivig for 5 1/2 months, and the intrduction of this new theory, I am again wondering if the pains he gets periodically and the periodic tiredness are indeed residuals of aidp(GBS) and in fact not cidp. I respect our neuro. and am ever so thankful that he actually caught the dx after two other neuros. gave the wrong dx. However, due to the heightened mental toll the ivig is having on Kevin, I have to be sure I even need to give it to him. Do you think an “inflamation” is a possible characteristic of aidp? Would irritating the nerves with over use cause the inflamation? Dawn Kevie’s mom 😮
AnonymousMay 8, 2007 at 3:38 pm
I believe that both aidp and cidp show characteristics of inflammation, but there also is demyelination. That’s why the NCV shows a slowing of the signal conduction. They also measure the strength of the signal, which I think relates more to axon damage. There are a lot of things that cause similar symptoms. I have relapsing/remitting CIDP, which means I would spontaneously feel OK, then start getting weak again, etc. But after a year of that, the weak times were definitely worse than at the beginning.
I had a lot of diagnostic tests besides the EMG/NCV. Lots of blood work, MRI, basic physical evaluation (measuring strength, reflexes, etc) and, finally, a muscle and sural nerve biopsy. Some patients also get a lumbar puncture, but I was spared that. There is no definitive test for CIDP. It’s a clinical diagnosis that’s confirmed or refuted by other tests. They had to rule out muscle disease since my serum CK was mildly elevated, and the muscle biopsy is the way to do that. The nerve biopsy ruled out other possible processes (like vasculitis), showed no axonal loss, and confirmed demyelination and inflammation. Physical tests showed lower than normal strength and no reflexes. The total picture was consisent with CIDP, so they diagnosed me and put me on IVIG and it worked. Without it, my weakness would very quickly progress. The fact that Kevin isn’t progressing probably is why they’re looking at aidp, since I believe that the progression of symptoms is self-limiting. However, I’m not sure what you mean when you say there was no “obvious progression” when he was off it for 5-1/2 months. Relapsing/remitting CIDP progresses much more slowly than the progressive type.
I understand your frustration with the IVIG — it’s not pleasant, even for an adult. I’m getting an infusion Friday, which will be a 6-week interval (when I started I was getting it every 4 weeks). Maybe if he’s not relapsing, he can get it less frequently.
I don’t think nerves can get irritated from overuse and cause inflammation, but lots of activity could cause increased symptoms — you hear that all the time on these boards.
Keep asking the Drs questions and let me know if you want a referral to one that has experience with CIDP (I know 2).
AnonymousMay 8, 2007 at 7:38 pm
Dawn: I have GBS but burning feet is still a major problem for me two years out. I have posted this before but a prescription I use which helps me a lot is amtrip/baclo 2%/2%PLO-you need a prescription from the doctor and a pharmacy that makes up compounds. It sooths my feet immediately and lasts for hours. It might be worth a try. Jeff
May 8, 2007 at 8:37 pm
Thanks for your responses! Jeff, I am going to take that prescription info to the neuro. to have on hand! Thanks Dawn
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