burning foot pain

jeff, burning foot pain for me too for years along with hot, red feet. never really solved it. went away w time [well down a lot]. how much neurontin do you take? can you rest in bed rather than in sittting? or at least trying to lean over hard to the left or right? lido is suposedly no good for gbsers, although some have taken it w/o effect. take care. be well.

gene gbs 8-99
in numbers there is strength

Jeff ~ have you tried rubbing your feet with Vicks and putting on a pair of socks? The menthol in it will bring better circulation to your feet which means more healing oxygen in that area. You mentioned that for 2 or 3 hrs./day the pain is very intense. Is it always about the same time of day? Perhaps an hour or so before then you could take more neurontin?

I am truly sorry to hear of how difficult it is for you right now 🙁 As Gene mentioned ~ time. It’s been that way for me too. Please know that healing thoughts are with you.

Jeff, are you on Neurontin/Gabapentin? I had really bad burning in my hands, felt like I dipped them in acid. The Neurontin really helped.

Jeff,

I too am battling at the moment with my feet and hands – however I dont think it is nearly to the point where yours is at the moment. The had ‘cooled’ off for a couple of months – it wasnt constant, more breakthrough. As of 5 days ago it has pretty much been constant, burning and cramping. I had such a bad expeirence on 150mg Lyrica, but even though it had side effects, it still broke the awful pain and it was wonderful for a couple of weeks. I have 26 tablets left and am wondering if I should break the capsules apart and try half the dose to see if it will help get the edge off without the very bad side effects. As to the Lidocane patch, I’m trying to remember who uses them ….. I will try and go back and see if I can find it.

I have been thinking of doing the Vicks thing that Judy said, and I think I am going to try and get a heating pad to put on my feet and see if it relieves some pain.

Jeff,
Sorry, I don’t have any remedies for your burning feet but I do know what you are going through. I am having the burning on my face now as well as my feet and hands. My face feels like I have a fever – but of course I don’t – it feels exactly how my feet and hands feel. Mine has been worse since I have been doing more physically (trying to catch up on house work etc, over the past couple of weeks – which by the way, I never catch up on!!) – so it’s time to rest up for me!
I’d be interested to know if you find a remedy.
I hope you find some relief soon!
Best wishes
Kazza (CIDP)

jeff,

you have a good doc who will raise your neurontin. you can go as hi as 5600 mg/day & it doesn’t have to be spaced out evenly eg. you could take 1000 or more at before your worse times of pain. also you can up it by more than 300/week, but then cut back to the min needed to forestall the pain. take care. be well.

gene gbs 8-99
in numbers there is strength

Jeff,
My onset for gbs was 9/2006 and have the burning pain (neuropathic) pain in my feet as well. It seems to be more prevalent in the evenings when I sit down and I have noticed that it increases when my feet are not elevated. In other words try keeping your feet up when sitting. Physiologically I suspect that circulation is exacerbating the burning. Dr. Gareth Parry is a pretty respected neurologist with gbs experience. He has written several articles on gbs with respect to fatigue and collateral sprouting which he believes causes the pain in the feet. Check them out and I wish you luck.
Dave

[FONT=”Comic Sans MS”][SIZE=”3″][B]
Jeff, this is an excerpt from the Spring 2000 Newsletter:[/B][/SIZE][/FONT]

Residual Effects Following Guillain-Barré
Gareth J. Parry Consultant Neurologist Auckland Hospital
Professor of Neurology University of Minnesota

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A second under-appreciated symptom that may persist for many years is pain. Certainly severe disabling pain is very rare. However a number of my patients complain of persistent discomfort in their feet. The discomfort may take the form of annoying parenthesize (tingling) or there may be a vague aching discomfort. The symptoms have the same characteristics as typical neuropathic pain in that they tend to be worse in the evening or at night and are particularly annoying following days during which the patients have been up on their feet a lot. The discomfort is not particularly responsive to analgesics but usually does respond to drugs such as gabapentin or amitriptyline, drugs typically used in the treatment of neuropathic pain. However, these medications have to be taken on a daily basis to be effective and one problem with deciding whether to treat this residual symptom is that the discomfort is usually rather mild. Thus, patients may be daily irritated by their symptom but be reluctant to take a drug every day for a symptom that significantly bothers them only once or twice a month. I have seen no mention in the medical literature of this phenomenon. It is possible that I see a highly selected group of patients in my practice who had initially been more severely affected and that the prevalence of this annoying residual symptom is much higher in my patients than in the usual population of recovered GBS patients. I would be most interested to learn whether the group of patients reported by Merkies and colleagues also suffered from minor persistent discomfort.[/SIZE]

[FONT=”Comic Sans MS”][SIZE=”2″]There are more of his papers in the archives, I find them very helpful, I wish you the best,
V[/SIZE][/FONT]

The feet are the worst. On top of the constant discomfort I have the effects of Diab T1 that make things worse. When my blood sugar drops to 50 and the feet burn intensifies I know I’m about to fall down and not get up:o

I use a hot pack.
Seems to help most of the time.
When things are bad nothing really takes away all the pain…

Rhonda from Canada

I have similar problems with my feet and I am post GBS 25 years. I had little residuals that affected my abilities to function until about 4 years ago when they began to increase. Today I have severe tingling and stabbing pain in my feet especially when i am tired or have been on my feet all day. Most of you have a burning sensation but I have the opposite. My feet feel as if they are frozen, as if I have been outside for a long time and the cold has set in. When you touch my feet though, they are hot to the touch. Does anyone else have this symptom? I have been tested for Diabetes, lupus, etc, and nothing comes back postive. I had an EMG and NCV four months ago and do have peripheral neuropathy which is being attributed to the GBS.

I had thought I was done with GBS but I guess we are never done….

Janet