Been A Long Time…

    • Anonymous
      July 17, 2013 at 2:39 pm

      Greetings All,

      It’s been many months since I have been on here. So far I don’t see any familiar names. I had GBS in 1997 when I was 39. Now at 55 and on disability, I am still dealing with residuals. I hope I can be of assistance to someone new to this illness that keeps on giving!


    • GH
      July 17, 2013 at 11:54 pm

      I’ve been here for two and one-half years, although I started under a different name. I still have some residuals from CIDP, and expect I may always have them.

    • Anonymous
      July 18, 2013 at 2:14 am

      Well my neuro yesterday said I still have residuals from GBS but I do not have CIDP. 16 years and there is no end to this…
      Good to hear from you! I’ve been on facebook but the groups are not like I used to have here and I suppose this site has changed as well. I see Jethro is still posting and I bless his heart for hanging in there. This stuff is unrelenting as the neuro said I’m like a small percentage… oh joy! Have you found any group on facebook? Please share more!!!!