back pain,is this usual, or result of bad lp

    • May 24, 2007 at 5:07 pm

      sorry no info

    • Anonymous
      May 24, 2007 at 10:06 pm

      Emily has had back pain when she was in a relapse & before being dx’d.

      Emily’s 2nd spinal tap was pretty rough. They put her under sedation but she still was able to move around (I cannot think of the name of it for the life of me.) They poked her about 6 times & finally I yelled at the poor guy. They ended up rushing her to down to surgery & putting her all the way under to do it. Her 3rd spinal was done while she was awake & it went MUCH better. She did have some pain after that 2nd spinal though. I think it lasted a few days.

      Emily was a c-section baby & I had an epidural. The anethesiologist hit a nerve TWICE that made my hip feel like it was being broken. It was the worse pain EVER! Seriously. I had back spasms for about 4-6 months afterwards. My OB said that will sometimes happen but it’s rare.

      Did he have any bruising after the botched lumbar punctures? I had a HUGE bruise for about a month after my epidural.

      How is Kevin doing? Is he still complaining of leg pain? I’m really sorry if I was rough on you in the post about it. I re-read it & I really did not mean to be so rough. It’s just that I’ve been where you are & I’ve travelled the rough road. I don’t want anyone else to do have to do it too.


    • Anonymous
      May 24, 2007 at 11:49 pm

      Dawn, i have several types of back pain. and i’ve had the botched lps also, very painful. the pain from the lps is different then my everyday back pain. usually the pain from the lps will only last a few days to a week or so. mine felt like someone was tugging and stretching every nerve in my legs, very painful, achy and it didn’t just flare up and immediately calm down-it seemed to go on and on. i do get a similar pain if i over do certain things, like bend over for a period, stand in one place for too long ect. i find if i rest laying flat on my stomach it relieves the pain and relaxes the back better. Give Kevin my best. I hope he gets some relief soon. take care.

    • Anonymous
      May 25, 2007 at 8:56 am

      It took four tries to get my LP done. I had pain in the lower back for some time after that about 2 or 3 weeks. I hope Keive gets over it soon.

    • Anonymous
      May 25, 2007 at 2:52 pm

      My LP was done very well and I still had several kinds of back pain thru the course of my 18 months of GBS. I am still not able to stand in one place for too long. I can be talking to someone and I have to take small steps away from they as they talk or shop. I am like a little kid that just drifts away! Being in bed and not being able to move or be turned on my stomach because of the trache or the feeding tube in my stomach my back took the brunt even when they stoved pillows under me to keep changing the positions. My tailbone was the worse. Sound also caused pain. It was like an electrical shock went from my tailbone up my spine as some cars and motorcycles passed, church bells rang above my head or someone touched that area. While in the water for aqua therapy all that sensitivity would disappear as I floated. It was so relaxing. It was not all the time or all at once. I did not take any meds for it either. But it was very real! Still disabling at times. Get plenty of rest! Mine was worse when I got tired.

    • Anonymous
      May 26, 2007 at 12:37 am

      I have never had a LP but I did have GBS and sometimes my back pain goes beyond annoying. And, usually I’ve over-done on some activity ~ like gardening! Gardening is the one thing that I do that time goes by and I’m so surprised. And, sometimes, I can’t trace the back pain to any one thing in particular. I’ll repeat myself again ~ we truly don’t know all of the long-term residuals of these crazy diseases 😮

    • May 26, 2007 at 10:15 am

      Thanks for your responses everyone! I wonder if it is unrelated to the lp or gbs? Kevies was laying on a giant ball yesterday and while he was rolling, he said he cracked his back and it felt better?! Maybe he is out of alignment from walking funny when his ankles were hurting, or maybe it is the lp, I guess it’s going to be another of those wait and see things.. Have a nice long week end! Dawn 😮