anyone else "empty headed" and tired?

OK that was funny! I get those monthly PMS residuals too!

As for the brain fog, yes I get that when I am exhausted and the B vitamins do not help any. By late afternoon I’m pretty useless for much of anything using my brain or fingers. (like typing on a forum – you should see how many corrections I’ve made so far!)

I don’t have much pain worth speaking of, little shooting zaps every now and then but blessedly numb most of the time. I do get them in my scalp too and sometimes just brushing my hair is painful – which can be a problem since I have refused to cut it and it now reaches below my rear end. It’s vanity, what can I say?

At any rate I try to follow the advice of my physical therapist – she says my body is trying to get used to new nerve pathways and get used to feeling things again so I need to remind it of different sensations. She suggested I take different textures and rub them over my skin – soft, bristly, slick rubber etc. to get my skin used to the sensations again.

And just in case this is poor wiring in my brain I also try to associate doing PT and other uncomfortable things with something positive I really like to do. For myself I listen to a book on tape I really like but only when I’m doing something I really don’t like – it’s a mind game but I’m winning.:D

Just had to say ……. empty headed and tired, thats my middle name! 😮

Hmm, empty-headed . . . I use to know what that meant ~ along with a gazillion other things 😮 The Wizard of Oz; was it the straw man or the tin man??

Winnie the Pooh/Lori, I have those weird things in my head also-today its really bad. I’m dealing with too much stress right now and my resids are going crazy. School started today-good thing, weather is causing toooo much resids to act up along with the pressure causing headaches. I had to go back to bed after the kids got off to school, until 1230, felt a tad better after a warm shower, but the nerves are really going nuts when I try to do anything-even sitting. I had to use my seat in the shower and use my cane when I walk-can’t wait to get these nerves under more control. I agree Rest is needed if the resids are flaring again. I can’t blame PMR for my problems, I’m spayed:rolleyes: hopefully its just from the stress. Take care and get some rest Lori.

Hi Gals, The guys would not understand all this stuff. I am welll over PMS by 20 years–age not spayed…. I am very fluffy in the brain and I find doing crossword puzzles makes the mind work better. Speaking words do not come so fast.
I had my sural nerve bioposy on Tues. I dont think I will be getting into any knife fights in the next few years???,this slit in the leg hurts too much. Doc was cutting and looking and he says “humm”>I say WHAT. He found an airy little vein and afraid that was it, but he dug (yuk) some more and found the right nerve. It should now be in Omaha or Mayo . I just hope it answers my Neurologist questions and I get my lower legs and feet back. Very tired of this after almost 2 years since onset. Poor me:confused: Thanks for reading……keep going!!! Regina

Hi all….I seem to have awful bouts of short term memory loss(fluff). It drives me crazy. Probably good for the husband especially after a disagreement…I cannot remember it.

Regina…May I ask what the nerve biopsy was to determine? My neuro has been relunctant to confirm GBS/CIDP. He pretty much labels it idiopathic peripheral neuropathy. I am being treated with monthly doses of IVIG.
Over the last 2 years what has been your treatment? Sorry for being nosey.

I too get those stinging sensations on my head. I thougt I was crazy because every time I mention them to my Dr. he looks at me like how weird is that???? Valerie

Hey there, I’m the queen of puzzle games – believe it or not it’s a lesson I learned from my mother who is in her 70s. My mom has always done logic puzzles, crosswords, and hidden object games to keep her mind fresh and trust me you don’t want to get in an arguement with her! I started taking up the challenge last fall when I was having trouble remembering things and having LOTS of trouble seeing. I tend to stick to hidden object games because reading gives me a headache still. There are lots of free ones out there, you can do a search on Google for them, or check out Big Fish Games (mom introduced me to them!!) Also Spintop games. Some of them also have a memory component to them – you remember that solitare game where you can only turn over two cards at a time and you have to remember where the matches are to eliminate them? Anyway, despite the grief I get from my “friends” who claim I just sit around and play computer games all the time – I have actually improved both my vision and my memory. It’s not perfect by any means but I noticed that I don’t have to leave lists ALL OVER the house now, usually one will suffice. :rolleyes:

My husband has also noticed an improvement in my memory, though he never complained about it (heh heh). I don’t care if my “friends” think it’s stupid, it works for me and I’m getting better so I’ll keep doing it as long as I can still get the free ones. 😀

Hi, I dont mind you asking. My sural nerve biopsy is going to join all my other recent tests and mri, where my new Neurologist hopes to find exactly what I do have. I had first been dx with GBS, but once I joined in this forum, I knew it had to be CIDP> My Neuro at that time said we will see, and then he was gone. I bounched around with two other Neuros and now I am with a Neuro who is about 6o miles away.
Anyway I gimped and fell and broke my ankle before I went to a Dr. That was from Aug 05 to June 06. I then started imediately with IVIG (three) and spent16 days in hosp. in intensive physical therapy and OP> The top of my legs gained all their strenth back and the bottoms stayed the same and drop foot in both. This Dr. wants to get the DX and treatment right. She is leaning hard to IVIG again. I have not had one since May and I am finding my nerves are not working so well–loosing control of bladder and more numbness in my fingers. SO, if I were you I would stay with the IVIG and meds. Oh, I am also on Lyrica 200mg twice a day and Cymbalta 60 mg 2 a day. Cymbalta also helps keep the depression away. I am so gabby, sorry!! Regina

I am sorry, what was I saying? DOH:D

Oh Rocker, you made me laugh out loud! Thanks 😀

Guess I am boring all you regulars. Wont post again. Regina

Hey, Regina don’t stop posting I have more questions. Did you respond well to the 3 IVIG? When do you get the biopsy results? Wll this tell defintely what your illness is?
How do you treat the foot drop?
I had 5 IVIG in June, then 3IVIG in july and 1 in Aug. My neuro wants to do 1 a month for the next 6 months. I sure hope this works because I aqm getting really impatient with this whole mess.

Thanks,
Valerie

well I have problem remembering words, and also saying wrong words, I cant find words in my head it is all stuck somewhere inside. and in afternoon I’m so tired all the time need to lay down in the middle of the day to have some energy in the afternoon. I have to cook in the evening and that is more enough for me sometimes I just cant. I feel so wast-less.. I don’t understand how my family tolerate me so lazy.