Another neurologist / another dead end!

    • Anonymous
      January 11, 2010 at 8:21 pm

      Hi Everyone!

      This neuro was at a free clinic, (dealing with the no Ins. situation) so some of what he said may have been to do with the “free clinic” aspect. Anyway
      he did the standard reflexes and muscle strength test and said everything seems ok and he knows that I definetly DO NOT have ANY kind of chronic polyneuropathy!!……and the LAST thing I should do is talk to “other crazies” on a forum that are just going to fill my head with symptoms and anxieties!:rolleyes:

      So….I don’t know….maybe it’s not a polyneuropathy (that would be great!)
      He’s having my blood checked for Lyme disease and if that’s not it, at least it’ll be something else to rule out.

      Thanks for listening and oh yeah….HAPPY NEW YEAR!:)

      Lori

    • Anonymous
      January 11, 2010 at 11:01 pm

      Lori,

      You know your body best and if you feel there is something wrong keep searching for answers wherever you can.

      Not all doctors know about GBS and CIDP even the specialists.

      Don’t give up…keep looking for a doctor that will help you.

      Rhonda from Canada

    • Anonymous
      January 12, 2010 at 12:30 am

      Lori,

      This is a standard reply. Generally, they are correct. the incidence rate of CIDP is like 1 per 100,000.

      BUT that does not mean that you don’t have it, I do.

      Keep on plugging away. You need a diagnosis, whatever it is. I will be thinking of you

    • Anonymous
      January 12, 2010 at 5:51 am

      [QUOTE=Lori]Hi Everyone!

      This neuro was at a free clinic, (dealing with the no Ins. situation) so some of what he said may have been to do with the “free clinic” aspect. Anyway
      he did the standard reflexes and muscle strength test and said everything seems ok and he knows that I definetly DO NOT have ANY kind of chronic polyneuropathy!!……and the LAST thing I should do is talk to “other crazies” on a forum that are just going to fill my head with symptoms and anxieties!:rolleyes:

      So….I don’t know….maybe it’s not a polyneuropathy (that would be great!)
      He’s having my blood checked for Lyme disease and if that’s not it, at least it’ll be something else to rule out.

      Thanks for listening and oh yeah….HAPPY NEW YEAR!:)

      Just because doctors act like they know it all certainly doesn’t mean that they do. YOu know your body and symptoms better than any doc ever will. Have had some very bad incidents with neuro docs….bad ego trips. Trying to see a 3rd one tomorrow. Best of luck…don’t give up!