and update and Noni juice

Hi guys.

I am still searching for another dr. I got an excellent referall to a professor only to find out he’s in the “other” office that my current Dr is in.
I dont know what to do. All other dr’s want my med recs first then they decide whether to see me. That’s a total crock if you ask me. But, I’m still working on it.

In the meantime, I’m still getting ivig every two weeks. 40mg each time for a total of 80 per month. No, it’s not enough and no, I CANNOT convince my Dr otherwise. But, I have to have something so I continue with this.

I now walk with a cane all of the time other than around the house and around my workplace. I have brought it in to work a few mornings…but I dont use it to walk the halls.

I am super busy. Planting flowers is becoming my favorite thing to do…besides hanging with my son and hubby. Connor is in baseball, coach pitch, and has games twice a week. I’m the team Mom…and I enjoy it.

One thing I want to tell about . I was at my pain mgmt Dr last week. This man is awesome…always trying to find a way to help me. A friend of his gave him a bottle of this stuff and he brought it into the room with two cups and asked me to do a “shot” with him. The seal had been broken so he wanted me to see him drink it, too. And, I do trust him completely.
We took a shot. It was BAD. The after-taste is literally like vomit.
He had me take it home to drink the rest and let him know how I do. I’ve only drank it once since bringing it home…I do feel like I owe it to him to try it b/c he said it’s expensive. It’s just hard to do. It tastes so bad.
It’s called Tahitian Noni juice. Anyone heard of it or tried it ?
It’s a supplement. He also gave me a b-12 shot…a real shot, in the rump.

He thought ithe Noni juice may help…like I say, he’s desperate to help me…and willing to try anything.
I know he’d be disappointed to know I’ve only had one serving since being home.
You are spose to drink 1 oz a day. YUCK.

going to Myrtle Beach with hubby in two weeks. So excited.

hope all is well.

I forgot to mention. I took Connor to the dr b/c I noticed he isnt running like the other kids on his baseball team. I’ve always thought he “over ran or walks”. He’s still rather clumsy.
The dr watched him walk and run. He did the reflex test on both knees and there was nothing. You can imagine how my heart sunk. He has great ankle reflex and thought that maybe the knee thing was b/c he was tense. He has sent us to an pediatric ortho dr in June …Connor’s bones are out of line. You can see how his legs bow from the knee down. When he runs, he pushes off from the inside arch area of his feet rather than heel/toe. He’s flat footed like I am. I ask for your prayers with this. The Dr said maybe some PT will do but we wont know until we see the dr. I pray its nothing major.

take care guys,
Stacey