AFO update part two

Hi Stacey from up Northern Neb. Things are bad, but you can hang in there. Lots of prayers for you thru these forums. The AFO’s are not so bad at least they help you safety. Believe broken bones from falls are not much fun. Your Mom and I are the same age. I can appreciate how she feels mentally. I feel like giving up alot. I think the Cymbalta helps alot, it also is to help nerve pain. Maybe you should think about asking the Neuro about it thru these difficult times. Sincerely, Regina
PS Those darn Huskers are not helping any of us to be happy in this state, watch Volleyball, they are winners!!!!!:D

WELL,
Frankly, if the guy is cute, some tears might actually get you a hug from a totally hot guy! Now that would be a definite boost to your morale!!! Ha HA!

Regarding your afo’s, I am so glad it is finally going to happen for you!!!!

The other day I was wondering if you ever went for your ivig, I seem to remember you were scheduled when your mom was dx. Were you able to get in?

How is your mother doing, what is the outlook? Is your sister helping with some of the duties yet?

How is your little man doing? Just think soon it will be Christmas and you can start shopping for toys with your new afo’s and walking with confidence.

I am so proud of all of us, in some way or another, whatever the dilema, health, family, we all seem to be excepting things lateley!! You, Kevie, me, Liz, and on and on. Good job to all of us!!!

Have a great day tommorrow and what the heck, hug the afo guy and thank him for helping you, if he is that hot, I would Ha Ha !!

Dawn Kevies mom

Hey Stacey,
Just wanted to give you some support for getting your AFO. I was pretty emotional when I got fitted and then when I picked them up. But I also felt so good in them and they are so pretty (Purple with butterflies) that I was kind of excited tool. Like I was getting a new toy! I was also self conscious walking around in them but I have gotten better. I don’t wear them everyday and now my challenge is finding winter boots or shoes that will fit them. I think the fact that we have come this far is really worth celebrating in terms of acceptance. Its o.k.to be emotional about this. It is a hard pill to swallow so feel your feelings while still moving ahead and making these hard choices.
I hope things go well next week with your mom. Take care.
LINDA

Hi Stacey,
We are not far from Chicago, Kevin’s doc is at Rush Univ. which is in the heart of the city. If I have my fuzz buster on, I can make it there in 25 minutes (w/o any road rage!!) I would LOVE to meet you! If you want to pm me your adress, I will see if we have any pokemon stuff left (or donated it already) and I will send it to you. I was so tired of Pokemon, I started calling it pokedork!!

I know your husband is your prince, I was just messing with you, everyone always needs a little attention from a really hot stranger! You may find this odd, as I am a conservative republican living in a suburb, but I think Kid Rock is hot! I don’t know what it is about that bad boy!!

When do you think you can schedule some treatment? Maybe when your mom comes home, you can arrange to have it at her house. Hey, you could even get the nurse to help you with your mom, slip her a twenty or something. I really think that nurses are hard wired with a special compassion, I bet she would see the complexity of your situation and help in a heartbeat.

I hope you have a good day!
Dawn

I LOVE CREED! And yes, they did do a “naughty “movie together those bad boys. I admit, Kid Rock needs a bath and might need a brillo pad to remove some of the slime, but for some odd reason, he fascinates me.

I can’t really listen to Creed much any more as their songs are deep and somewhat meloncholy. I need something a little less intense. Nickelback is some nice easy listening and if I am in a really wild mood I’ll pop the Korn or Slipknot cd in.

I think it would be great if you could get the ivig before the New Year, maybe the benefits would help you to gain a new positive outlook for the New Year!!!

I think I remember you mentioning that ivig did not help much, how much did you recieve and how often? Kevin is 114 lbs and he is getting 100 g over four days and this will be every month for a while before we taper to a maintanence dose. I have to say, he more than maintained when we were doing the 6 week loading doses, so hopefully that will be a plan. What is the longest set of consecutive treatments you received in the past, did they allow enough time for improvement and keep the treatments high at first?

Well, have a nice day tommorrow, and don’t worry I’m not not considering leaving my family for Kid Rock, he has been with Pamela Anderson who has been with Tommy Lee who has been with God knows who or WHAT!!!!

Dawn

Stacey,
I have AFO’s for both feet up to right below my knees. they are custom made and yes I wear mine on the outside of my pants basically because I really don’t care what people think. also I have found less negative comments with the AFO’s than when I didn’t have them. Think of it this way if you fall without them people talk but if you maybe trip a little with them people don’t even blink. People can be confusing. Wear them with pride because you are able to walk more steadily and if you stand with pride nobody will notice the AFO’s. Good Luck and take care
Jody

Hi Stacey,
I am trying to send a picture of my AFO’s. The Ortho baked the material into the plastic. Cool, huh? I hope I did this right so you can see. Let me know.
Linda

Linda, I’m…speechless! lol, had no idea that could be done.

Stacey, hang in there. Getting a brace was an emotional experience for me, too, but you’ll be just fine. The first week is a bit awkward as you get used to it, then you just forget about it. And you will truly appreciate the added stability that it gives you.

Balance exercises are very effective PT focuses on that with me, too.

L Cala, Those are cool AFO’s! I didn’t know they could do that. They would match my purple cane! 😀 OH the things we do to be a little different!!!! :rolleyes:

Yaaaaay! I Did It! I Am So Glad You Guys Could See The Picture. Stacey, I Didn’t Even Ask For This. When I Walked In And Sat Down, The Ortho Said, “well, Lets Get To The First Important Decision, What Pattern Do You Want?” So Naturally That Made Me Way More Interested In The Whole Idea Of Afo’s So When My Partner Asked If They Had Anything In Brown Poodle (in Honor Of My Dog Michelangelo), The Ortho Left And Came Back With A Whole Book Of Designs. Since There Were No Poodles I Settled For The Butterflies And Now We Call Them My Wings. So See If They Can Hook You Up. In Any Event, I Am Glad You Are Getting What You Need. Take Care.
Linda