advise on finding neuroligist for 2 yr old

    • Anonymous
      April 3, 2010 at 11:29 am

      I am new to this and not for sure what I am doing, but I posted on cidp child forum but I dont know how many check that. Does anyone know of a great childrens hospital or doctor wth experience with cidp. We live in the panhandle of Texas. Hope someone has suggestions.

    • April 3, 2010 at 1:14 pm

      Not sure about Texas, but with a 2 y/o and the lack of verbal communication and the nature of this disease, I would probably go right to mayo to get everything checked and tested at once. Waiting and giessing only causes more damage. If that is not possible due to finances or insurance restrictions, I would just call the nearest (for your convenience in travel because you will have many appointments) childrens hospital and ask if any of the peds neuros have experience in cidp. I would continue till I found one. Good luck, keep us posted!